Kaycie, My insurance said the same thing. they cover 85% of what is medically necessary. I thought they would have a limit of what i could order like some people said medicare did but they said no...
I promise it will get easier to deal with changing and emptying the bag. I had close to the same type surgery. It is normal to not go every day with a colostomy. They are not as active as the...
Mine is only a colostomy so I still have most of my colon. They only had to take out some of my sigmoid and my illeocecal valve and some of the cecum. so the crohn's is still there in my colon but...
Drama Queen ( my stoma ) is 2 months old today. She likes to hold it in and then really go alot at one time so I call her the drama queen. She likes to be the center of attention sometimes. haha I...
My surgery was done 2 months ago today. It was done as an emergency surgery as I had a major blockage. I was concerned at first about living with a bag but once I saw that I could lead a much more...
I find that filters on my colostomy bag only last about 36 hours and then they seem to not work as well....
I had venofer iron . I had one every day for 5 days. They gave me 200 mg at a time and they lasted about an hour each. They said it can be pushed thru in about 5 monutes but most give it at a slower...
I have used the packets but they seem to make the smell when emptying much worse. Did you find this to be true for you?? They did help with the ease of emptying though....
I know how it feels to try to work with doctor's office. I placed my first order with edgepark for my ostomy supplies on Monday. They call today (My order should have been here today) but they say...
Sorry summerstorm, I have trouble saying things how they were said. I think it is this fibro fog I am in sometimes. Anyhow, I got to bowl with my team this past week for the first time after surgury...
I have had my ostomy for 7 weeks and the other day I told my husband that I was trying to be a normal person again and he said" you are normal and that your old "normal" wasn't working. So accept...
Getting ready to place my first order for bags tomorrow. Think I am going to order the convatec sur-fit natura drainable pouches with the invisiclose outlet with a filter. Does anyone use these and...
I had 5 iron iv transfusions over a two week period in Jan. They used venofer(sp?) iron and it only took about an hour to do each one and only seemed to cause a few headaches at first but other than...
I had been only doing shots in the stomach until last month. Had to have a colostomy and still have drain tube in stomach. So yesterday when I started back on my shots I did one in my upper thigh. I...
I have had crohns since 1973. Mostly alll the big D during that time. last several months was severally constipated so went to the ER on the 12 of March. Ended up having emergency surgury the next...
I'm glad I am not the only one. I am 53 so have had hot flashes in the past but ususally just at night. But since starting on the Humira I had them all throughout the day. They seem to be getting...
I do not have a seton but do have a fistula. I started on Humira just over two weeks ago. So far I have taken the 4 shots and then the two at two weeks later. I too was really scared about starting...
ensure plus has a much better taste than regular in my opinion. Especially the chocolate!!...
Took my second set of shots tonight. so far so good. I could tell last few days that it seemed the first ones were wearing off. So was looking forward to taking these tonight to see if it helped. Now...
Memorytheatre, I don't have any advice since I didn't have Crohn's till I was almost 18. However will keep your son in my prayers. I am sorry you guys are having to go through this with such a young...
I just started on Humira last week and just had my second Hep B vaccination several days later. They said it wasn't considered a live vaccine so it was ok. Just check with your dr to be sure it is ok...
When I start the belching and burping (it smells and tastes terrible too) then my intestines start churning and I start feeling sick. I know that in about 6 hours I will be staying in the bathroom...
Muskogee, Oklahoma...
I didn't ice before the shots but after I had been home a while one of the sites was getting a little raised up so iced it for a while and it went back down. This morn I just have a tiny bruise there...
I have been reading posts on here for a long time and feel like you all are friends since you understand what it is like to have CD. I have been especially reading the posts on Humira as my doctor...