I had Prometheus labs done last year and was told that my ADA levels were 22 and people who are in remission have a level of around 6. At first, when my other GI asked me if I wanted to go down in...
I have been on Humira since 2010. I started off taking it once every 2 weeks. Then because I started to feel sick on the days leading up to my next injection I was pushed up to once every 10 days and...
The big gaping hole is definitely surprising. I also had one, when I had my fistulotomy and abscess drainage. I had to do wet to dry dressings for several days though. I still have a scar from that...
Have you tried any medications? I know how you feel as I was one to have recurrent perinanal fistulas and abscesses. And I know how painful they are, I shiver just to think about them! I would get...
Hello, So it has been a while since I have posted here because fortunately I have been in remission. But, I am at a lost and need some help. I have been on humira since October 2010. I started off...
It wasn't warm but the medicine might have froze because the water that soaked the boxes were very cold. I looked at the liquid in the injection and it was cloudy. Suprisingly, Abbott(the...
I called The Humira hotline and they said I should not put them on because the stability of the injection was compromised. They told me to call my insurance to try to get an override. So devastated...
I know, but the pharmacy isn't open today so I thought I'd ask here for now. I edited my post to mention that they are pens. They are in a plastic container type thing inside the box. They are sealed...
Something was leaking in my fridge and my boxes of Humira got soaked. The plastic containers that is inside the box that holds the Humira pens was wet also. But the Humira pens inside the plastic...
Thanks for your responses! @clonehead: On Monday and Friday, I spend all of the school day (9am-3pm) at the local elementary school doing hours for my classes and just getting experience in the...
Just a little back story, I was diagnosed in Sept 2010 with Crohn's. I have had ups and downs since then. I'm now starting to have really intense cramps and have been having around 5-7 BMs a day....
thank you both, I went to a walgreens clinic and was able to get a rapid strep test done, and it came out positive. So I was given amoxicillin for 10 days. Glad I didn't wait the 3 or 4 days!...
So I need some advice. I take Humira once a week and azathioprine 50mg twice a day. And I got a cold about a week and a half ago, started out with a sore throat then got runny nose then stuffy nose,...
It has been a godsend for me! I have had some bumps in the road but nothing like before I was on Humira. I have been on it since 2010 and take it weekly. But did have to incorporate azathioprine to...
The past few weeks for the first time in a long time, I have been feeling really good. After my fistula surgery in February, I am now able to power walk an hour a day, with no pain. And have been...
Thank you for your responses! I got back the Methymalonic serum results which apparently show whether you have a B12 deficiency if the level is high. My Methymalonic serum level is low normal. So I...
I got my results back for various blood tests I got Done. And my B12 level was 323. I'm confused though because it says 200-1100 is normal but then it says that it has been shown that people who have...
I have a small hole next to the vagina which was believed to be a recto vaginal fistula but when the surgeon tried to put a seton in he couldn't get to the other side, he said there was a dimple in...
I have also had blood come out after humira injection. if it's not a lot it shouldn't be cause for concern....
Oh no I'm not thinking there is any lying or anything like that. he is a great surgeon. But I asked him over the phone if he had done anything to that small hole and he explicitly said No, he didn't...
Forgot today was Saturday and can't contact the doctor:( This whole situation is so odd......
Umm, no. Not that I know of. I don't know why a fistula would make Imuran make you feel sick. You should definitely get a second opinion on that. And if you have been taking Humira since 2009 didn't...
I am so shocked right now! If you have been following my posts on here you might've read that I thought I had a recto vaginal fistula so did the colon and rectal surgeon. Well I went for the exam...
After some straining, I was finally able to go. And I know they tell you not to strain but I was having terrible abdominal pain. Of course now I'm having horrible anal pains! Because finally after...
I never thought I would be complaining about constipation as I have never been constipated. The opposite, I have always had 3 or more bm's a day. But I have not had a single BM since last Thursday. I...
So I was able to speak to my colon and rectal surgeon today to find what it is I had done when I had my exam under anesthesia on Friday. Since when he explained it to me on Friday I was a little...
Yea, it's the weekend and my doctor is on vacation for 2 weeks. And I still don't know what I had done! I'm pretty positive he foxed the fissure I had as I was having very painful bm's and I knew it...
But I don't what was done! I went in today for an Exam under anesthesia and flexible sigmoidoscopy. But they weren't sure what they were going to do until they went in and saw what was going on. So I...
Tomorrow I have surgery at 7:30am and I was instructed to put an enema on tonight and one tomorrow morning. I started the enema, and got around a quarter of the way through and couldn't hold it at...
Oh, I hope I'm not starting a flare. I still have the crazy amount of mucus. I didn't think it would be related to the fistula but was wondering since I sometimes have that same mucus as vaginal...
Just some backstory, I have an appointment for next Friday to have an Exam under anesthesia and possible seton placement or fistula plug. They believe I have a recto vaginal fistula. I'm not sure if...
I've been on Humira a little over 2 years, I take them once a week. The main side effects I get, but not always, are headaches, dizziness and fatigue. I get the side effects less now but they still...
I've been using Humira for more than 2 years now, in the belly, once a week. I always leave them out 30 minutes and they always sting. Sometimes more than other times. But it's not that bad. Have...
I am getting the Exam under anesthesia on feb 8th to check on a fistula and I wanted to make 2 requests before going into the operating room. I know the surgeon comes and speaks to you right before...
There is definitely a correlation. At one point I even started taking birth control to stop my periods so I wouldn't have to deal with the pain! Since I started taking azathioprine I haven't been...
Can't eat bananas either:( wanted to try one yesterday and did and I ended up today with diarrhea and lots of abdominal pain. Sucks:( I take Humira and it's anti-TNF. So aren't you not supposed to...
I think it's better to be safe and go to the ER....
In my previous fistulas I had them cut open and They had to be filled with gauze by a nurse that came to by house and that was super painful. I also had a 1 inch hole and then 1/2 hole afterwards....
I got the date for February 8th. The nurse told me they're going to do the flexible sigmoidoscopy and either a fistula plug or a seton. I put a separate post asking about the plug as I didn't see any...
I do the same thing,lol:) it's a problem because then when you begin to say you don't feel well everyone tells you you were great last week! But I do hope you start feeling better and get everything...
Went to the colon and rectal surgeon today and he looked at my anal area and rectum and said he didn't see any fistula he only noticed a narrowing of the sphincter, whatever that means. But other...
You should go to your GI and see why you are having so much pain. You shouldn't be having that much pain.i can't really help too much on pain medication as the majority of the prescription meds make...
I feel the same exact way. I think those commercials just show everyone else that we are just always struggling to find a restroom because of the urgent and/or frequent bm's. I know you really can't...
Hi, I have been on Humira for more than 2 years and don't have high blood pressure. But I started taking a medication a while ago that did raise my blood pressure up to the 140s. A medication that...
I don't think a particular diet will work for everyone as everyone with Crohn's is different so even if you speak to someone who has Crohn's and has had fabulous results with a certain diet it may...
Hi, I am currently a college student, I'm 20 and in my second year. First and foremost go to the disability resource center on your campus. They are a lifesaver. They can provide you with the...
Thank you so much for your responses:) I spoke to the GI again and had told him I was weary of just doing sitz baths and nothing else because I have had fistulas before and even with daily sitz baths...
It's me again. Sorry, but I need some advice. I just got a response from my GI about the fistula I have around the perineum. If you didn't see my last post, I went to a OB-GYN who saw the fistula and...
Thanks for your responses! I'm more calmed down now, I was really Pissed off when I got out of the gyno. And scifigal, he doesn't sound like an idiot, he is an idiot. He also saw 6 patients in about...
I am on the verge of tears, I am just so upset! My GI had sent me to a gyno to check what was going on and he saw the fistula. When I asked what I should do, he said I couldn't do anything as...