Thanks for your ideas and support. It is a yeast infection, I can't imagine a baby going through this. I think last night I finally saw an improvement. Since she's 22 I can't make her do anything - I...
My daughter has developed a severe case of diaper rash. She was in the emergency room Sunday the pain was sooooo bad. Now she is on diflucan and nystatin powder as well as diulauden(sp?) for pain....
my daughter's cimzia arrives by fedex in thermosafe directly to our house. Once she calls it arrives within 24 hours. I understand it can be ordered to go to your doctor's office if you want....
Thanks for the kind words - it's big part of what keeps me going....
We are very sad and stressed today. My daughter was supposed to get her first shot of cimzia yesterday, but a visit to the surgeon first saw an infection within the abscess. They cancelled the cimzia...
If you are allergic to Remicade can you try Cimzia? I don't know about surgery - that would make my daughter go over the edge. Unfortunately, hers oozes alot and she can't do anything fun any more....
My daughter is finally starting cimzia tomorrow. I still don't understand how it will help the abscess heal, but we are praying it does. between the 3 seton drains and the new fistula on her butt...
my daughter was diag almost 2 years ago when she had appendicitis and a resection. She was prescribed Lialda, but was in denial because she had no more symptoms. then last summer she started with...
my daughter's waiting to start cimzia 5/11 - I am nervous about her getting sick with anything actually. But specifically my boss is in Mexico on vacation and will be returning to work Monday. Also...
My daughter takes Advil without any ill effects. Bleeding has not been her problem and she only takes with full meals. Usually its 600-800 mg at a time....
my daughter came home with percoset. which she took for almost two months after her first surgery in Feb. But she was afraid of being addicted to them so she has tried just tylenol and/or advil. But...
I've been taking immodium on and off for ten years. I can go months without it then have to take it every day. But again, I have IBS and I have never given it to my daughter with crohns....
What is cellutis(sp?)? I believe when she was in the hospital they tested stuff they got out of the abscess. Her GI said there was a lot of different bacteria but not too much of anything. They did...
I have IBS and was taking 4 immodium a day. but I NEVER was constipated, that's something they said to watch out for. Everyone is different - I never get cramps or pain when taking them and usually...
My daughter was left with a "hole" and she cried whenever she went to the bathroom - that gets better soon. She thought the hole was closed because it didn't bother her as much but the dr said it was...
her abscess is so out of control we would gladly take remicade if we could. insurance doesn't cover it. Last October when it was mentioned we said no because we thought it was overkill. Now of course...
She has 3 drains in, but they left the hole open to heal from the inside out. She's still on cipro and beside the tenderness in the drain region and pain in the abscess from time to time she feels...
My daughter's surgeon and pathologist where not in agreement at first. She had what was left of her appendix removed and part of her colon that was or was not damaged because of the appendicitis or...
Yes, March 20th they scraped it out. Which was an extremely painful recovery. Then she was getting better but thinks the vacation with all the sitting on the plane and walking around has irritated...
thanks for the responses. Since she doesn't have very good insurance and it doesn't cover remicaide - that's what we hoped to get. She is getting cimzia because they have an assistance plan. I have...
Good Luck. My daughter had relief because the pressure pain was gone and her abscess is huge and she had it for quite awhile. I truly hope you get that kind of relief....
My daughter has another fistula. We had a mini vacation last week and between the plane ride and all the walking around she is in terrible pain. Advil doesn't work anymore so she's going to take...
The best thing for you to do is to get your father to keep you on his insurance. My daughter went off ours and her's through work covers nothing. I tried to buy her insurance and was told that no one...
I don't know if they use the same ones everywhere, here in Connecticut it was Interim Health that contacted my daughter. Although the first injection is to be in the dr office in case of any ill...
My daughter has 3 drains in now, apparently the abscess runs from almost her tailbone to her girlie parts; one drain is at the top near the tailbone, another in the middle and then the more...
Sorry to hear your difficulties, it certainly would help if you had a decent dr. We never heard that kind of gloom and doom. My daughter was diag. in the summer of 2006 and had no symptoms or...
Thanks for the info and support. We are waiting for Cimzia to approve her - that should be any time now. She 21 now and was diag at 19 when her appendix ruptured and she had a resection. She never...
My daughter had her first drain put in last July, it was a relief because the pressure from the full abscess was much worse....
If you have time, sitz bathes should help a little. If you are working it's hard to make the time....
I can't imagine your pain, but if you get any relief from the meds take them - without feeling like a junkie, does a diabetic feel like a junkie when taking insulin, of course not. Take them when...
We were told the same thing by my daughter's gi and surgeon. She's waiting for approval from Cimzia for their assistance plan because her insurance won't cover it....
My daughter had her abcess drained twice and once they had to put the drain back in. In March the surgeon actually scraped out the abcess and had her in the hospital on Flagyl and cipro by iv. At...
Good Luck Julie - we are waiting for an answer any day as to whether my daughter gets the assistance. Her insurance doesn't cover it and my insurance company indicates it's more than $1400 per month...
FC - do your setons still drain? My daughter is hoping for a future without having to wear pads, they in themselves cause her to get a rash and she absolutely refuses to use small gauze pads like the...
On another thread there was discussion about using a private potty if there were no public ones and having a pass to let you do so. Well I have another issue have you ever waited in line for a...
when i'm having an IBS flare my mom always asks why... she means well -but I don't usually know why and I've said that a hundred times....
Her boyfriend doesn't understand the illness yet - he's trying. It seems to be stressing him out too....
Actually the most foolish thing I heard was when one sister-in-law told another, who suffers terribly from depression, to think "happy thoughts" and she would be fine....
Last night my daughter was told "she wasn't trying hard enough". Can you believe it. Her boyfriend's family apparently feels she is milking this last surgery for her abscess. What I don't understand...
My daughter doesn't tolerate Flagyl - she throws it up no matter what. In the hospital she was given it intravenously and tolerated it better. It is supposed to be a great antibiotic for the gut....
after my daughter's surgery 3/13 for the perianal abscess (scraping it out) we went to her gastro guy for a followup and he said there were notes in her records that the colo-rectal guys felt she...
my husband's been on Asacol for 18 months with no side effects. - but everyone is different....
My hubby likes to say "better to share it than bear it." Lifting depends on where you are and with whom. When you lift you make it obvious and you can't blame the dog....
my biggest fear is that cimzia won't clear up the abscess and fistula(s)...
just got back from the GI and they want to start my daughter on Cimzia rather than Remicade, for financial reasons. Does anyone know if cimzia works as well for perianal abscesses. that's the only...
Actually my daughter takes Lialda for her crohns - 3 a day. My husband with colitis takes asacol. I don't really know the difference....
I agree. This site is my lifeline - it keeps me sane. I refer to all of you as my support group. Still can't get my daughter on there....
I have IBS. I think it's a junk diagnosis when the dr. can't find anything else. I had every test there was and they couldn't find anything. However, I lost 33 lbs in about 3 months and was deathly...
I've found it most uncomfortable when driving - especially because you have to sit in it. Thank god I wasn't stopped for anything. The fear of it happening creates terrible anxiety....
That's why my daughter always uses wipes. They are alot gentler on that very raw area. Also I was told not to drink carbonated beverages and since rice is a binder, that may thicken things up a bit....