I had a spell of awful vertigo last year. It last for almost the entire year. There was no explanation for it. It just started happening. I felt dizzy/lightheaded when I was laying down; when I...
People like that drive me nuts. I'm ashamed to admit it but I have, at times, wished this disease on someone who has said things like that to me. Well, let's see how their...
Tears are welling up in my eyes as I realize you're 20 years my junior. I cannot IMAGINE having had this illness at 18. Ditto everything ivy said. ***Hugs & Prayer****...
When I was first diagnosed with CD, my GI said, Over the years, though, he's changed his suggestion and says that when I have IBS'y spells (he believes some of my symptoms sound more like IBS rather...
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I don't like to fly. Even before my CD, it made me anxious. But I do like to travel so...Catch 22. I've only flown for fun a couple of times. Most of the flights I've been on have been work-related....
I was guilty, IN THE BEGINNING, of spelling Crohn's as Crhon's. I don't expect the average person to know how to spell it. However, I DO expect those in the medical profession who DEAL with Crohn's...
Do any of you ever get a prescript ion drug and then never use it for one reason or another & end up having to throw it out? My GI gave me 6 sample boxes of Lialda last year. I didn't want to...
Ok, my croaky voice turns out to be drainage...clear drainage that my doctor could see in my nose. Go figure. I'd never have guessed. Usually I can feel drainage. SR5599, maybe the same issue with...
Oooh, glad you posted this. I started on Prednisone & Imuran 3 weeks ago and since then I've had this weird, raspy/vibrating/croaky voice. It's been driving me nuts. I've been worried that it's the...
What kinds of things are coming at you??? I'm glad you posted this, too. I just got back from my GI yesterday and he prescribed Prednisone & Imuran. I'm supposed to take one, 50mg Imuran per day for...
Thanks for the input guys! I do keep a Word document to jot down questions between my 6-month interval appointments with my GI. But this time, I've only had 2 weeks since my "progression" diagnosis...
So my 3rd colonoscopy 2 weeks ago showed my Crohn's is progressing. I go this Friday to talk to my GI about new treatment - he'll be recommending Humira. My mind is so clouded. I don't know what all...
My heart goes out to you. I live alone, too, and there have been many times when I've had so much pain in the bathroom - dizzy, sweating, chills - that I got scared. My anxiety about no one being...
I'm so glad you posted this topic. My scope last week was not good - disease is progressing. I go next Friday to see my GI. His recommendation that we will DISCUSS is Humira. I'm anxious about the...
I had bloodwork (including SED Rate) on April 2nd - all normal. On May 17th I had my 3rd colonoscopy and I was told I was in a bad flare based on the inflammation; abscesses & ulcerations seen. I...
I just think of Humira as the end-all drug. If it doesn't work then surgery is next. Maybe that's not true but it's what I think. My GI wants to take me off Colazal & put me on Humira. My last...
That's awesome, Ides! I mean about the results, not the prep. :) Last week I took the MoviPrep, too. I started at 5pm then did the 2nd liter at 11pm. Only managed to get 1 1/2 of the 2 liters down....
8-10 YEARS?! Oh my gosh - that SHOCKS me. My GI does a colonoscopy on me every 3 years, unless something comes up and I need one sooner. I had my 1st one in 2004 which diagnosed me with Crohn's. I...
I took Ferrous Sulfate for years. All of my Rx directions said to take it on an empty stomach, 1-2 hours before eating....
Shannen is from 90210 fame...well, the 1990's version! You'd have to have been a teen/20-something in the 90's to appreciate it. :) I'm not a fan of Dancing with the Stars either, but I can't help...
So who will be showing their support for fellow Crohnie, Shannen Doherty, tonight on the season premiere of Dancing With The Stars???? :smilewinkgrin:...
I had my GB taken out last April. I was having an upper burning/pain/ache in the middle of my torso, between my breastbone (a few inches above my belly button). My GI didn't know "what" would cause...
Looks like most everyone directed you to food books (I know you specifically asked about diet) but I found this book to be of great understanding to me when I was first diagnosed:...
I agree with Nanners...antibiotics can mess up the digestive system...and stress - good lord - what ailment CAN'T be traced back to STRESS?! :smhair: From my experience, if your bowels are waking you...
Ouch! Mouth sores are awful. :mad: What is your question about them?...
Possibly thrush?...
This is definitely what my "Crohn's mouth sores" feel like when I'm in a flare. It feels like a knife has cut up my gums. Very hard to talk. Tongue gets the same thing, too....
It could be something as simple as Crohn's Arthritis. When I'm flaring, my ankles swell to the point I can't walk or drive for 2 weeks. My right ankle is usually the worst. I know there have been...
The article says, "Most adults need at least 5000 units per day...". Is that 5,000 UI? I never understand the labeling on the D3 bottles and how much I should be taking....
. :smile:...
Wish I had some ideas for you...AND me. I'm at a loss. Have been for years. Just yesterday I was listening to a syndicated radio show. The male DJ's were talking about how they just don't want to...
U-N-P-R-E-D-I-C-T-A-B-L-E! It's MORE than just a bowel movement to us. This disease affects EVERYTHING on and within our bodies. When I was 13 and in the 7th grade, my stomach used to hurt every...
I was shocked to see in the grocery store yesterday that these products with Olestra in them are STILL on the shelves! I picked up a bag of LIGHT Ruffles and looked at the ingredients and there was...
Oh lord! I would NEVER eat Olestra NOW that I know I have Crohn's! That would be a death-wish! :skull: :tongue:...
I ate Fat Free Pringles...they had Olestra in them. 30 chips for only 2 Weight Watcher points! I also at the WOW! brand LMills mentioned. Doritos, usually....
I'm putting together a Weight Watchers guide for my dad so he can try and lose weight. In order to put together and eating list for him, I'm going back to my food diary from 2002 when I first started...
Do you still have your gall bladder? ...
Hey rummy, I'm sorry about your diagnosis but glad to know you're doing reasonable well. I currently have Crohn's Colitis , too, meaning my disease (for now) is only located in my large intestine....
I've been quite sick for the past 2 years. Just now starting to come out of it. Since I'd been throwing up and pooping out every bit of nutrients I was able to swallow, I knew it had to be affecting...
Do you still have your gall bladder? If so, have you had it checked?...
I'm right there with you...for the past 2 days. Out of NOWHERE. Today is worse than yesterday. Yesterday, I just felt tired/sleepy at work but I was still able to function. Today at work, I can...
The thing that bugs me the MOST about this is that LIBRAX (and its generic) has to be WEENED OFF OF! If it weren't for Zena, I wouldn't have a clue that this drug wasn't available anymore. Luckily I...
I'd be curious to know what ya'lls pharmicists (those of you who take Librax OR the generic Chlordiazepoxide-Clidinium) have to say about the future of Librax and its generic. MY pharmacist made it...
Grrrr! I just called my pharmacist and it's true...once the supply of Clidinium (generic for Librax) is "used up", they (Qualitest) will no longer be making the generic for Librax (nor will any other...
I would have SWORN I've had a stomach ulcer since last August. GI told me to just keep popping another Omeprozole when the pain came on. That didn't help. Neither did Tums or Maalox. So he did a gall...
Thanks, Nanners! :)...
All this time...all this waiting...even a Gall Bladder removal surgery and the Upper Endoscopy only showed MINIMAL GASTRITIS! How is it possible to be in so much pain for months on end...pain that...
My ankles swell when I'm in a flare. Very bad. Can't walk or drive for 2-3 weeks. Sometimes when I'm not really flaring but just don't feel great, my ankles stay just slightly swollen. Not enough to...
My ankles swell REALLY bad when I'm going into a flare (so bad that I can't walk or drive and I end up on crutches for a few days until I'm able to hop around from the kitchen to the bathroom to my...