I don't take Imuran, but I was hospitalized in Feb. for acute pancreatitis. The pain was the worst I've ever felt & was intense constantly. I was admitted to the hospital the morning after the pain...
Wow, I'm sorry to see how many of you are dealing with a flare for years! I had a bad flare for 7 months and I didn't know how I was going to get thru it. I look back on it and still don't know how I...
I took that a few years ago during a bad flare up. Doc gave it to me to counteract the craziness that resulted from steroids. The Klonopin did help. I took it for daily for a number of months. When I...
I'm going to hold off until I speak with 1 of my specialists. My primary doc was unsure of how Reishi would interact with Remicade, She was also unsure about using this given a recent bout of...
There have been a couple of requests for updates. I am re-reading this thread today, & I too would like to know how people feel about Lingzhi/Reishi mushrooms. Especially those of you that began...
I have also had good results with Remicade. 2 + years now, and its still doing the job. I had immediate relief after my 1st dose. I would give it a go! Good luck....
Another thought in addition to those already mentioned. I'd speak with a Department Administrator or the hospital's administrator regarding this. Policies should be guidelines and there needs to be...
Glen, I hope you're feeling better today. Mornings are a bad time for my wife also. It takes a long time for her to start to feel OK....
KarineB, Have you recently been on steroids? I had similar problems a couple of years ago. Doc put me on a diuretic, started wearing support socks, kept my feet up & wore extra large slippers instead...
Nana, Glad to hear that your grandson is doing better. That said, it sounds like he still has a way to go before he is really feeling better. I would request that the doc keep him in the hospital...
Sukay, The nurses are constantly monitoring the pace of my drip. I've been lucky having never had a bad reaction to the drug and the positive effect it's had on my CD....
Tiredjim, I too know the worn out feeling situation. I had a severe case of acute pancreatitis at the end of February. Spent almost 2 weeks in the hospital. I've been on disability since then. Hope...
I average 3 1/2 hours from start to finish. It's a long process, but I feel lucky compared to the company that I keep during the process. Most of the others are there for Chemo. When I leave, I say...
Nana, I too send my thoughts and best wishes for your grandson's speedy recovery. I was surprised to read that the doc d/c the steroids completely without a gradual reduction in dosage. It took her 4...
I had a Remi infusion today and asked the nurse about the swine flu and Remi. She said that she is unaware of any specific issues related to this flu and people taking Remicade. She said what is...
In addition to hand washing, I have to be more aware of how often I tend to rub my eyes. Especially with tree pollen pretty high. In addition to the eyes, be careful regarding the mouth and nose...
Ivy, I assume that you meant that we would be higher on the list for vaccines if needed? I've been following the news reports on this subject with a great deal of interest as I too take Remi. I also...
Kitt, Thanks for your words of wisdom. Our families have some similarities...like your husband, I have Crohn's. My wife supports me with my disease. My wife has depression. I do my best to support...
Missy, It seems as though you need to get some counseling to help you through your situation. Try to take things 1 at a time. Even saying take things 1 day at a time can sometimes be too much for me....
I feel tired all the time. Compounding that, for some strange reason, I have trouble sleeping. Although I took an Ambien last night, I'm up early having only slept very lightly during the night. I'm...
I'm doing well at 2 years. Hope that it keeps going for a lot longer....
Kriss, I'm glad to hear that the Remicade is working for you. I've been taking it for about 2 years now, and it is still helping me (I'm keeping my fingers crossed!). I started having improvement in...
Mrs. Red, I want to thank you for starting this excellent thread and I want to say that I hope that you and your husband are doing better. I'd also like to let you know that I needed a thread like...
Kriss, I have an appt. next week for a Remi infusion. I will ask about this. At this time, I haven't heard of an injectable alternative....
It depends on how bad your flare has been and how you are feeling now. I totally agree with Kriss. Returning to early will probably make things worse. Speak with your doctor about how you are feeling...
Dreamer06: I thought most people get remicade infusions every 8 weeks. Have you always gotten your infusions every 6 weeks? Now your doc wants you to wait until the 8 week mark. Maybe that would be a...
My wife takes Cymbalta and is tired all the time as well. I have attributed her lethargy to the depression. Maybe it is the medication. I get so confused about all of this....
Thanks for the replies. I'm still hoping to hear from someone that is using Emsam. Kitt: Yes, the Emsam is a transdermal patch. That's about all I know about it also. I will check with the...
Karen, I'm here on behalf of my wife. She has suffered from depression for years. I'm also here on behalf of myself. I've been coping with my wife's depression, but sometimes it is very hard to deal...
Karen, Any ballpark idea of how long the 5 mg of Abilify will take to start to work? I too hope that it will help. I realize that I didn't mention earlier that the links that were posted at the start...
Thanks Raniah. I am hoping that someone here might know something about the Emsam. It's one thing to talk to the doc about a medication and another thing altogether when you get info from someone...
My wife's psychiatrist has suggested a potential change to the MAOI drug Emsam. Any advice/thoughts on the effectiveness of this drug? My wife has tried many different anti-depressants over the years...
Karen, Thanks for your support. Any idea how long it should take for the Abilify to help? Do you think 5 mg will make any difference?...
My wife has depression and she says that her worst time is in the morning. She dreads the start of the day. It generally takes all day before she starts to feel better; which tends to be when I'm...
Yeah, you have to get rid of that infection BEFORE you get the Remicade. Definitely complete the course of antibiotics before your infusion. You don't want to chance any of the nasty complications...
Hi, I posted a couple of months ago about my delayed Remi infusion. This was due to a long drawn out cold that just wouldn't go away. I was 3 weeks late in getting my infusion. But, I made it through...
I'd say most of the beautiful people are just "painted" ladies, needing loads of make-up to show their faces. Or maybe they've been through lots of cosmetic surgery. The men too. Work out at the gym!...
Thanks Karen. Doc is starting her at 5 mg. He said this is a very small dose & if she does OK with this, he may increase the dosage. I do hope it helps. She has tried lots of different meds over the...
Hi all, I read most of the previous posts (I'll get to them all later), but also wanted to add my thoughts. I'm usually over at the Crohn's Forum, as that is my affliction. I came here because I too...
Thanks for the replies. I had my infusion today. Luckily, I made it the extra few weeks with only the 1 problem....
I'm not aware of anything to eat/drink during a flare that will help build up your energy and strength. In my experience, it just takes time and patience. It will come back when your body is ready...
I've read the previous posts with great interest. I'll definitely be looking into this some more. Earlier, Cat's Claw was mentioned. Has anyone used this? A colleague of mine gave me a bottle (direct...
Fatigue is definitely an issue that we're probably all dealing with. I'm trying to do yoga weekly, but recently have been unable to do so. I've had an upper respiratory infection since New Years that...
Its been 11 weeks since my last infusion. Usually I get them every 8 weeks, but the delay this time is due to a pesky upper respiratory infection that just won't give up. My primary doc has advised...
Misterie, I agree with all the previous suggestions. Definitely speak openly and honestly with your doctor regarding how you're feeling. I did this 2 days ago, and my doc prescribed Zoloft. I'm...
UPDATE 2-U.S. FDA approves UCB bowel drug, with caution Last Updated: 2008-04-22 15:39:17 -0400 (Reuters Health) WASHINGTON (Reuters) - U.S. health officials on Tuesday approved Belgian drugmaker UCB...
A lot of times, I don't necessarily feel sleepy...just tired. Yesterday, I felt like lead. I didn't have any energy at all. Today's a bit better, but I still feel tired. It's pretty much a perpetual...
Good luck Nicole with your surgery! It's great that you've got an up-beat attitude. That is definitely in your favor. Keep your spirits up and know that we'll be pulling for you....
Timmysang, I was out of work for 2 extended periods during 2006 and 2007. This totaled 7 months. I was covered with my STD during the first 6 months, then I got a letter saying I'd used up all my...
I had relief from my CD symptoms beginning the day after my first infusion. I've been on Remicade now for 1 year, and I think that it has helped immensely. I'd give it a try if other options are not...