Thanks for the response. I go to both my nephrologist and GI on a regular basis. They said the pain could be caused by either disease. Just wanted to see if anyone had any experience with the same...
I am getting pain on my right side under my rib cage. I can't tell if I am starting to flare or if I am having cyst pain from my liver. Or maybe my Crohn's inflammation is causing inflammation in my...
I had severe brusing so my docs had me taper off. After several months of severe d, my gastro put me back on 3 mm daily. It took about a month to settle down, but now I am feeling great. Good luck!!...
Gail, Thanks for the quick response. About how long did it take for the steroids to leave your body? I have been on Entocort for about 14 months and weaning since July. Elizabeth...
For the last 6 weeks I have been weaning off Entocort. I am down to one pill a day and have been experience severe back and hip pain. My family doc gave me a steroid shot in the hip yesterday and...
sending prayers your way. I also have kidney disease along with crohns and it is a struggle most days. it is hard to find the right balance with both diseases. Hang in there!! Elizabeth...
Sending prayers your way. It is a terrible feeling just trying to get to work everyday. I call it my "survial mode". I know you feel bad when pred. sounds good. I pray you are feeling better very...
I agree... walking but no lifting. I learned the hard way, and now have a hernia. And all because of laundry.... LOL It took me about 8 weeks before I felt the surgery was worth it. Good luck and...
I am sorry to hear you are dealing with so much. I too have gone in for obstruction pain and end up in the hospital for a few days and then they mention in passing that the scans also showed a kidney...
I take a burst of prednisone and then after I taper I use Entocort as a maintanence drug. It isn't perfect but I cant handle the side effects of the other drugs. It took me about two weeks for it to...
They are excellent at scheduling appointments when they know you are from out of town. When I had my surgery I did all my preop appointments and scans in one day. They give you a schedule and you...
I have polycystic disease which involves my kidney and liver. Although I don't have fistulas my Gastro is considering Humiria because I am having issues with Imuran and infections. We are making the...
Thanks for all the advice. I am on probiotics now but I will try the new probiotics you suggested. Thanks Elizabeth...
For those of you who have had c diff... was your output different than when you had a flare? I have been on 3 rounds of antibiotics in the last month and I am trying to figure out if my constant...
Thanks for the good advice. In the last year I have had 2 CT scans and a battery of tests done by my ENT and no success. I do take probiotics but will make sure it has saccharomyces boulardii. It...
Ari, I am dealing with a similar situation now and I am about ready to stop taking all my meds and start a new. My symptoms overlap so it is very difficult to make sense of it all. Good luck and I...
I have been on Imuran for over a year and have been fight sinus and kidney infections. I am on my third antibiotic for my current sinus infection and now they are afraid I will get C diff. Just...
I also have Crohns and my taper depends on how long I have been on the pred. I usually decrease by 5mg every 10 -14 days. If I get symptoms I will take Entocort, which is a steroid only released in...
Welcome Bojo! Elizabeth...
I have had an incisional hernia since my resection in 2006. It only really bothers me when I eat a big meal or am on my feet for a very long period of time. I have decided to let it be. Elizabeth ...
Congratulations on completing your graduate degree. Elizabeth...
My doc tells me to give his office four days. I can call the nurse and she will let me know if there is anything big that I need to come in for, if not I wait for my next appointment. Good luck!...
I have Crohn's disease and polycycstic kidney disease so I am trying to figure out what disease or both is causing my right side flank pain. How much pain is associated with PKD? Is it constant or is...
Nanners gave you some great advice. I would like to add to drink plenty of liquids as to not get dehydrated. Everytime I would get up to use the restroom or eat I would walk around my house as much...
I am a 4th grade teacher at a small private school. My sister-in-law works there too so she will cover for me in an emergency. She is very discrete which makes it much less stressful. She has MS so...
I would call the doc with your concerns now so that he/she can order the bloodwork and you can have it done before you go in for your appointment. That way you can get answers and not have to wait...
Thanks for the advice. I didn't think about that option, it has been awhile since I had to worry about birth control. Elizabeth...
No parent wants to worry their child. We think we are supposed to take care of our children, not the other way around. I worry more about me getting seriously sick and how my children will handle it...
My GI told me it is very common to have both when he gave me the diagnosis. Elizabeth ...
I hate waiting...... I had to wait for my resection surgery for 2 months and the was much worse than the actual surgery for me. Wishing you the best!! Elizabeth...
I am so happy for you. I remember how disappointed you were when your Crohn's returned so quickly after your resection. Congrats!! Elizabeth...
My 20 year old daughter has been suffering from migraines so after many tests her neurologist finally put her on topamax. He briefly made a comment about her birth control being less effective while...
Welcome aboard Beth. I am not familar with MCD but I am sure someone with more experience will be along soon. I do have Crohns and UC so I'm not totally in the dark. I hope you can get your flare...
How does your doctor expect you to quit work? Is she going to help you get disability? Hopefully everything goes well today at the doctor and you can get some of your questions answered. Good luck...
Same thing happens to me. It is like a love hate relationship. I hate the side effects of the steroids but it keeps the inflammation to a minimum. Can you take a lower maintanance dose? When I am...
Since being on Imuran I sometimes lose my appetite for about 2 weeks and then it's back. I find myself only craving white bread, bagels and sweets. It is really odd. I also get very fatigued and just...
I know this is kind of odd.... but when I had my surgery I started my period the same day een though it was supposed to be two weeks away. The nurses said that many times it is brought on by trauma...
It takes a long time to get your head around this disease. I think everyone thinks at one time or another that they may be going crazy. I told my doctor this once and he said, "people who are really...
I go every 5 years because I always have issues afterward. Elizabeth...
My ER is the same way... I go in for abdominal pain and they test me for STD's, tubal pregnancy, and host of other things that I don't have. You would think the 10 inch scar down the middle of my...
You need a prescription for the syringes but my pharmacy provides them for free. The vials of B 12 are only $2.50 with my insurance, what a deal. I also get them in my arm. ....
I am so sorry to hear about your situation. I know it is a very hard decision and you want only the best for your friend. I had to put my dog down this summer because his stomach had flipped and...
None of my doctors( nephrologist, GI or GP) addressed my low B-12 levels (around 180). After asking questions on this wonderful forum I am the one who had to call and inquire about the injections. I...
Cleveland is very efficient and organized. It was easy to get a call back from my doc which shocked me because of its size and his caseload. When waiting for surgery it took a month and no call back,...
OH yeah..... I was extremely dizzy and felt like I had rubber legs. After I was on it for several weeks the side effects did lessen. I found it helped do eat small amounts of food to keep something...
Hi Simplegift, I don't have diabetes so I won't be much help there. But I do know what it is lke to think things are going well and then the docs throw bad news your way. It is very hard to deal...
Same thing happened to me because of taking the wrong pain meds. I was never so happy to had a bowel movement. I called my mom and yelled in the phone. "I pooped" and she started cheering. It was...
We used to tent camp but now we have a nice camper with a much needed vent in the bathroom. LOL It is loads of fun. I used to dread vacations because I always flared, but now I can make my own food...
My regular pharmacy fills mine and my mom gives me the injection. Elizabeth...
Hi Joann, I am sorry to hear you are having kidney issues. The moderators at this site are very helpful and kind. Hopefully someone will be along soon to add to the information you have researched. I...