Yes, I do! I've often wondered if I have Crohn's because my primary issue is constipation. Miralax is my constant companion. I am on Remicade and had been doing well. But now I am having issues with...
I have often struggled with constipation as part of my Crohn's. I take Miralax and a probiotic daily and that seems to help....
This is worrisome to me. My GI has been trying to get me to go on Remicade for the last five years, even though my Crohn's (gut symptoms) has been pretty well managed, until I developed an intestinal...
Could you take it with an antinausea med like Zofran? That's what I did when I was on Flagyl and cipro for a month recently to heal an intestinal abcess. (It worked wonders, by the way) Flagyl left a...
I have been on LDN for my Crohn's for nearly two years. The only other medication that I take is Pentasa, and I've been doing quite well since starting LDN. It aapears to even keep my Crohn's-related...
Hi all, My husband has had psoriasis for years. He has recently developed (psoriatic) arthritis in his feet, back and shoulder, too. He's a pharmacist who stands 8-10 hrs a day on his feet, and this...
Hi, I have Crohn's and have been on LDN since June of this year. I have Crohn's-related arthritis that flared severely just prior to that. I started a short course of steroids to get it under...
I'm on my 6th or 7th night. Moved to 4.5 last night. I wonder if I should switch to the cream. I take a probiotic. I have not tried drastic diet changes like no dairy or gluten. I do try to watch my...
Hey InSoFla, I am taking the diluted liquid. It tastes awful - very bitter. I take it between 10 and 11 each night. Skip told me that I should get my flare under control first - that LDN isn't strong...
Hi all, I *think* I'm presently undergoing a flare. I've lost about 30 lbs since late Sept; 7 in the last week without trying. My Crohn's-related arthritis has me in tears most mornings, it hurts so...
Have you researched and considered using LDN (low dose naltrexone)? I wonder if you could use it in tandem with the Remicade and eventually stop Remi and switch to a nonbiologic regimen like Pentasa...
Hi everyone, I have had quite an eventful year. I had a large, benign, intramuscular tumor removed from my thigh last month. I have lost about 27 lbs since Sept - six just this week. I had thought I...
How's she doing now?...
Is there an update on how you're doing on LDN?...
Have any of you considered using LDN (low dose naltrexone)? Especially singingsupernurse. There's lots of info about how it is useful in combatting Crohn's and MS, among other ailments. It's not a...
Let them know. Sometimes it can be a problem with anesthesia. Patients can aspirate on food if they vomit during a procedure. Make sure you tell them. My friend's son was turned away and his...
Thanks, everyone. And I mean everyone. My best to each of you. This disease sucks....
Yes, I am terrified to try any of them, honestly....
I have had one resection and managed on Pentasa, acupuncture and an assortment of herbs and supplements since my diagnosis in 2005. I recently had a flare mostly in the form of severe arthritis and a...
Hi there, I am glad that I have remicade as a reserve medication. I will go to it if I absolutely have to. But I have a very unique and challenging and complicated health history. I seem to get the...
What a headache. Meantime, I'm trying to convince my GI to prescribe it to me. He wants to put me on Remicade and I don't want to go on it, period. I'd prefer to try LDN first, while my symptoms are...
Then again, I just found this back and forth on another board. Maybe worth checking out. http://www.crohnsforum.com/showthread.php?t=19495...
A doctor on the LDN Yahoo board group. That would seem to make sense to me....
I took it short term for back pain unrelated to Crohn's once. It really helped. I didn't take it long enough to have constipation. I'm on Percocet now for surgery-related pain and arthritis. I have...
Have you tried Percoset? My rheumy put me on that when I balked at Prednisone and it really helped. Mobic has also helped me tolerate the arthritic pains....
Kimberly t, I was advised no because remi is an immune suppressant and LDN is an immune stimulator, so they'd work against one another....
InSoFla, Have you tried it and how have you done on it? How can I get my GI to prescribe it?...
Hi Brian, I see you're in Raleigh. I am, too. If you don't already have a good GI, I suggest Dr. Chris Schwarz with Raleigh Medical Group across the street from Rex Hospital. Good luck!...
How are you doing now? Is LDN working for you? I am going to suggest it to my GI, who want to put me on Remicade or Imuran....
Hello all, I'm baaack! Ugh. So, I had a biopsy on the lump in my thigh (after an ultrasound, MRI and x-ray showed a mass with both benign and malignant characteristics and after 4 months of losing...
Thank you, Stef. That's exactly what I needed to hear this morning. Chin is up, hands are raised. Giving thanks at church right now....
Thank you all so very much. Bee Sting, what else can you tell me about LDN? Is there a way we can exchange email, if that's OK with you? Did your doctor recommend it since he/she would've had to...
Someone suggested it to me on the Crohn's board. Check thread under "found tumor, please pray." why are you asking? did a medical professional recommend it to you?...
Dear friends, Well, I've been losing weight (20 lbs since late Sept) and had a puny appetite for months. My gut has also been bothering me on and off the last three months. Of course, I assumed this...
Thanks. That is helpful. Do you ever cheat now at a restaurant or while out at a restaurant with a sandwich or pizza or anything? And if you do, does an occasional lapse make you feel horrible or is...
Thank you. Do you have any recipes you can share/point me to. And specifies in brand/types of pasta? I'm feeling very overwhelmed in even trying GF....
My friend is a functional medicine doctor and has suggested that I go to a gluten-free diet. I love my wheat products - sandwiches, pastas, pizza, cakes. I can't imagine cutting all of that out and...
Thanks so much, gumyby44. It has really been frightening. I have a 5 and 11-year-old and was laid off from a job 3 years ago after nearly 20 years there. I go for bloodwork Monday. And would...
I took Pentasa throughout my entire pregnancy and felt and did great! I also nursed while on Pentasa. My husband is a pharmacist and is very conservative with drug use, but he was comfortable with me...
Hi all, I've lost about 15 pounds or so since late Sept. Nothing compared to some of you, I know, but my appetite has become increasingly puny. I also brushed across a strange lump on my left outer...
Osteo-biflex with glucosamine didn't help at all. When I switched to Vege Glucosamine by Karuna, I experienced relief within a few days. It's a vegetarian version and really helps me....
All of this is good advice and I have an appointment scheduled with a new doc a week from today. The thing is that, for the most part, I feel good. My arthritis hasn't bothered me in a few weeks, my...
I have had crohn's-related joint pain on and off for the last two years, but my gut has been relatively good. Acupuncture and Chinese herbs and a veggie glucosamine along with lactobacillus probiotic...
I came down with a terrible cold a week and a half ago. Went to my primary care doc and found she left the practice with no notice to patients! Anyway, I've been sick for a week and a half and am...
Thanks everyone. Do you all ever worry when you start feeling like this that it might be cancer? I always worry in the back of my mind that my disease will mask an even more deadly/menacing health...
Hi everyone. It has been a long time since I've been on here. My Crohn's has been in pretty good check the last six years. I mostly have crohn's-related arthritis as my most cumbersome issue. The...
My husband has psoriasis. I have Crohn's. He just recently started having swelling on the pads of his feet and arthritic pains. He went to his primary physician and had a blood panel done. It showed...
Clarification: I believe that my miscarriage and stillbirth were the result of the antibody issue and not the Crohn's....
I had a resection in 2005 as the result of an emergency. This is also how I was diagnosed after months of unexplained migratory arthritic pains, mouth ulcers, bloating, loss of appetite and weight...