thoughts and prayers coming your way...the way God has been faithful on your visit thus far, I know it will go well!...
wow...that is quick! i feel like you guys...sometimes I can't even finish my meal before its returning to the outside world...its a very love hate relationship we have, me and food, i love food, but...
lots of thoughts and prayers for a quick recovery!...
I am going to Mayo in Jacksonville, FL if they will take me! They are supposed to review my chart and decide. Fingers crossed they will take me....
Hi all. I am still in the quest for a diagnosis. I got the results back from my pillcam study and it showed "mild blunted villi"...though I tested negative for celiac. And several small ulcers with...
thanks...i didn't know if that was normal...the receptionist said he sees patients, but doesn't give second opinions...guess its good i don't have a diagnosis yet???...
anyone have petichiae with their anemia? I just all of the sudden today had diffuse red pinpoint spots on my upper and inner thighs??? not a lot of them...but its new...my last cbc was normal...but...
haha...disgruntled...that's awesome...i can only imagine what mine will say...and no...i have not...but i am learning my lesson the hard way now! ugh!!! any tips for timely retrieval?...
thanks ps...it is going to take a bit of time to gather all of the information and test results anyway....too many hands in the pot... yeah i was thinking maybe its from my B12 deficiency...at least...
oh man...i am so sorry...that is sucky...i am having appetite issues my self the past few days...i have been living on gingerale for the nausea...but i need more... i am a newbie and don't officially...
so i called the office of a guy in town that is supposed to be a crohn's specialist at the advice of many of you lovelies...not the doc specifically, but a new one.... i was told...he doesn't do...
Thanks all...I have had several vomiting episodes, I attribute them to the pain...They seem to be mostly just bile and mucus...aka early morning or late at night....sorry...I know you've all...
that's great! thanks so much...this is my first experience with message boards...how do i make my email active???...
no...you don't have to recover it!!! you do expel and flush it...its not reusable...thank goodness...
that would be awesome!!! do you know any good GI's around here? that is exciting! thank you thank you thank you...
thanks janice! I am in central florida. I just found a Crohn's specialist named Dr. Shafram...I haven't made an appointment yet. Anyone heard of him? thanks for the hug...I am getting B12 shots...
PS, I started going to a therapist recently during all of this rollercoaster of trying to get a diagnosis, mind you...we are still searcing, but she turned out to be a God send. By coincidence, her...
patientspiders...thanks! ill look for it!...
patientspiders...where can I find that brownie recipe? :)...
thanks janice and gumby... it is comforting to hear so many on hear that have multiple conditions...it seems difficult to get my docs to acknowledge that there might be multiple things going on and...
thanks ivy! i will keep an eye out...and yes i am...the diarrhea has actually been somewhat better the past several months than it has been in the past...except for all the preps...though i have had...
thanks all! i was somewhat ignorant about the difficulty diagnosing this disease until i found this message board. i figured it was pretty cut and dry and any doc could discover it. i work in the...
It is hard to find support...I recently started seeing a counselor, to rule out psychosomatic pain, and the counselor's childhood best friend has Crohn's, so she has witnessed a lot and is helpful....
Ivy....oh my goodness....how awful :( I don't know exactly where you are located...US or OUS...but I when I worked in the hospital...we had barrier creams that we could use to help keep stool out of...
Although that is not the easiest thing to hear...I appreciate the heartfelt honestly more than you could know! I have experienced much of what you have mentioned and agree I will probably experience...
it does....when this was mentioned as a possibility i promptly began researching...but it was all mostly textbook stuff and cases...which i have learned is almost an oxymoron with Crohn's.... i...
thanks....i agree about diagnostics....i want to make sure i am not missing any other possibilities....and opinions...in this rollercoaster journey which seems to be the norm!...
haha...guilty as charged with the similar replies....i will admit that I am kind of obsessed with B12...lol....probably because its the only definitive thing anyone has come up with...and I suffer so...
and no problem about the deletes! i will just read and think good thoughts there way next time...this is my first message board attempt of any sort....and i am desperate for answers....so i have just...
yes :( constant....very sucky...
oh wow...i don't want to be "that girl"....i think i removed all my replies to ones that were more than a few days old...i just left a few...i would never want to rip the scab off a healing wound by...
i just figured out how to delete and i think that it might move them back? can you confirm?...
is there anyway for me to remove the my posts to fix it? if so...i will...i didn't realize how dated some of them were...oops...
oh....im so so so sorry...just having trouble sleeping and reading...i will stop replying to old ones......
random....but i am kind of obsessed with b12 deficiency....we recently found mine...after some confirmatory tests...it was borderline low on first test...but as i was researching it....it can cause...
HAve you had your b12 checked lately....sometimes it doesn't show up low but is...there are some confirmatory tests...it causes all kinds of bizarre things...itchiness is one...sometimes in bizarre...
ne ne....ditto to some of the above stuff...b12 deficiency can cause macrocytic anemia i think....it can be low without actually being below normal...there are some confirmatory test like an...
i just had it done for hopeful diagnosis on wednesday...haven't passed it yet....my GI begged me to go into some gas stations and a bank cause it looks like you are strapped with explosives....i...
littlelymie...i scanned the posts but not a full read of all of them....so apologies if this is a repeat.. there is a company in san diego called promethius, i think, that does a blood test for...
I feel all of your pain...since december, I have had to do 4 preps...ugh...the last one wasn't near as bad as the others... My second prep was the worst :( I threw up the first 2 glasses and couldn't...
Thank you for your replies...seriously...to be quite honest...at this point I am pretty convinced it is crohn's...but none of my docs are....I'm okay with the diagnosis...I would just like to hear it...
I apologize in advance for the length of this.... I have been through the ringer a bit with tests lately and no one can figure it out. I will give you a brief history...if possible, I'm a detailed...