I've been on it for about 4 years. Drink plenty the day before so that your veins are easier to access. Mine are small and they roll so I ended up getting a port-a-cath, but most people don't need to...
I have had a port for a little over 2 years. I had been getting Remicade for a little over a year when I got the port at the suggestion of my infusion nurses. My veins are small and they roll. Mine...
My stomach was so bad several years ago that I had ulcerations inside of ulcerations. Also I had ulcerations covering the entire inside of my stomach, even areas where you don't usually get them....
I wonder why your doctor is reluctant to move you up to every 4 weeks with remicade? I'm still on the starter dose but have just had to move up to every 4 weeks after a year at 6 weeks and 2 years at...
I used to wait a while (2-3 days) but I have started going sooner. It seems that when I start up with any kind of cramping or abdominal pain it won't stop on its own any more, so I need pain meds....
My problem area where i get blockages is also in my small intestine, out of reach of both a colonoscopy and a traditional upper endoscopy. Like you, the double balloon endoscopy is the only hope for...
The colder the better. Drink it with a straw. If you sip it going in it will exit in small frequent amounts, but if you you chug it it will exit in larger amounts with fewer trips to the bathroom....
It sounds like how a blockage is sometimes for me. I hope that you don't have another episode....
Welcome and thanks for sharing your story. Sorry you've been through so much and I hope the rest of your recovery will be nice and boring!...
I think I would be looking for a new GI....
I tolerated entocort very well whe I was first diagnosed and was on it for around 9 months. I sort of go back and forth between constipation and diarrhea and don't know that entocort affected it one...
Good luck with restarting remicade. It brought me 2 years of remission before I had to increase the frequency of my infusions. I hope you will be feeling better and can avoid surgery....
No experience, but good luck!...
Does anyone have experience (good or bad) with metformin use as a Crohnie? I'm a Type 2 Diabetic as well as a Crohnie. I recently started a new medication (Victoza) for diabetes. It has helped a lot,...
I've been on remicade for over 2 years and have only been sick once with a cold that I recovered easily from. I have 2 kids (1st grade and 10th grade) which means ample opportunities for germs in my...
I've been on it for a little over 2 years with no side effects. I get Tylenol, solumedrol, and benadryl prior to the remicade. The benadryl puts me to sleep quickly and I nap for most of the 2-3...
No advice, but good luck!...
I never got a flu shot prior to my CD diagnosis and starting Remicade. My primary care doctor insisted last year and this year they were offered for free through my employer. I don't mind so much,...
Sorry for your diagnosis. I mostly feel grateful that I don't have something more serious, but the anger and depression are normal parts of all of this. What treatment options did your Dr give you to...
The bendaryl knocks me out quickly, so I don't even bother bringing a book or anything with me. Sorry that you had trouble with your veins. Mine are so bad that I had a port put in back in August. I...
Best of luck to you!...
No, but I have a friend who conceived not long after having a resection. She is enjoying some pregnancy remission right now and I hope it will last after her baby is born. Good luck to you in getting...
I never knew I had Crohn's until there was enough damage in my small intestines that I started getting blockages. Once diagnosed, some other symptoms made sense as being connected, like unexpected...
I've been on it for almost 1.5 years with no side effects. My infusions are billed to my insurance company at a little over $15,000 each. The insurance company pays the infusion clinic around...
If your primary care doctor is familiar enough with Crohn's to be able to tell when random things are related to it I would start there. Otherwise you could bring it up to your GI doctor and see what...
I work for a small custom home builder and have been there for over 11 years. I have no problem getting to the bathroom and the only issue with time off for being sick or doctor appointments is that...
Sorry that you're struggling so much right now. I hope that your kidney stones and acne can be dealt with....
I hope that tomorrow brings you less pain in many ways....
I'm glad that it went pretty well today, and extra glad that you could come home and take a good long nap. edited to add runaway letter...
Glad it went well, other than the smelly-toilet comment. I'm currently working my way through a batch of movi-prep. It's much better than Go-Lytely, I have to say. I have some lemonade flavored...
Has she had an upper endoscopy? I had one about 1.5 years ago that showed my entire stomach was lined with erosions. A stricture can also cause ongoing nausea. When I was feeling as lousy as it...
I got my flu shot on Thursday night and my arm hasn't even been sore....
I have one spot in my upper small intestine and one spot in the lower small intestine where I had active Crohn's prior to Remicade. I don't know about different contrasts for CT scans and a quick...
Hang in there. Do your friends know about your Crohn's? If so they may be willing to keep an eye on your daughter if you have to rush off to the bathroom and they might be willing to have the play...
I have been on remicade for almost 18 months. I haven't had any adverse reactions. My Crohn's is in remission, but I do have strictures from when it was active. The only time they bother me is if I...
If you aren't sure I would suggest calling your gastroenterologist for guidance. I don't think there are any hard and fast rules about what needs a trip to the ER since we all have different symptoms....
I have moderate to severe Crohn's and rarely have prolonged diarrhea unless I have a blockage. I don't think severe diarrhea is the only criteria used for figuring out the severity of Crohn's. I am...
I didn't have any negative side effects from Entocort during the 9 months I was on it. Finding a med that can get you into remission will help prevent or at least lessen permanent damage....
I was sedated but awake and watching for my first complete colonoscopy. While I would have preferred to be completely out, there was little discomfort other than an occasional nudge and it was kind...
I'm glad that it went well and hope that you get some relief....
My vitamin D levels were extremely low last year when my Crohn's was active and I also went on prescription meds for it. Now I take daily D supplements. The anemia could explain the fatigue, but it...
This should be interesting!...
While it does sound like discrimination to me, you may not be protected under FMLA without all of the proper paperwork in place....
So good to hear that you got a good report!...
Great news!...
I've been on remicade since May 2009 for moderate to severe fibrosing Crohn's of the small intestine. I have a couple of strictures caused by scar tissue from when my Crohn's was active. The remicade...
Ha!...
The blood could be nothing serious, but combined with the pain I think a call to your doctor is in order....
Congratulations!...
I was on it for 9 months of last year and had no side effects....