Yes! Early on before the formal diagnosis of Crohn's i did a gluten free diet for 6 months. It did help qite a bit. At first I didn't think I'd survive but I found my way around some of the foods I...
Born and raised in Boston/currently living in Woburn. 7 miles away. MGH was a;ways the hospital that I used when I was younger. I stopped going there when they really ramped up their additions(not...
I need assistance. I've been circling through the Boston medical fascilities for 5 years. I have multiple issues. Crohn's, IBS, Chronic inflamation, Epilepsy, Diabetes II, Sleep Apnea, Neuropathy,...
I have been referred to Mayo in Jacksonville. I'm wondering if there is a difference between the two other than location. I would be seen for digestive, neuro and pulmonary. I am getting advice from...
Thanks for the input. I will check with the doctor to be certain. I have had the pneumonia shot(two years ago after my first bought with pneu. I have had the flu shot as well. Waiting on the H1N1...
I concur with Aimee. i started on Pentassa then entocort, asacol, methotrexate then Remicade. I have also been on Pred. 35 mg. Remicade was the first of all the meds that did give me more of a life....
I've been on TNF drugs and prednisone for the past 5 years. I am mostly homebound but I do occaisionally see my neice and nephew. I spent a good deal of time with my neice yesterday and found out...
Probably an injection site reaction. You need to let the nurse know when this happens so that she can log it. Make sure that if it is combined with a fever you need to go to the hospital and don 't...
Always ask for a copy of your lab work. They might grump a bit but it's handy to have. I don't say this so that you can self diagnose but rather so you can be sure when something comes back...
26 not including all of the as needed ones and the injections. Humira, dilantin, neurontin, prednisone, prolosec, zantac, zoloft, amitriptyline, clonazepam, lunesta, percocet etc....
I have had several Laps. Most recent for Gall bladder removal. Everything went well except for the pain meds and anesthesia. I don't respond well to either and it ake a tremendous amount o put me...
I agree whole heartedly. Small bowel follow thru is fairly easy as is the pill cam. I wouldn't let it go because you just don't know what the deal is in there. Good luck!...
I've done the pill cam 3x. Each time it has been very easy to deal with even when I had a stricture.(that is me though) The pill cam is great for getting a quick look at those area in the small bowel...
I was on Remicade for about three months but developed pneumonia(I have many drug allergies) I did feel very bloated and nauseous after an infusion. When I talked to my GI she put me on compazine. I...
I have been on and off pred. for many years. I've had several doctors tell me that anything over 40 is a waste. This was after several weeks at 60 & 80 mil.(PA wrote the script and I was not...
Doctor number 6 was the keeper. I had been to some of the big wigs - known around the world.(just because of location mind you) Number 6 was the one for me. Compassion and respect every time I see...
Keep coming back. I just came back in June. I had forgotten how supportive it is here. In regards to your questions Zanne says it perfectly. Generally scar tissue it the culprit and pred. will not do...
I first heard of ESR when I was undergoing tests for Asthma. CRP cam into play much later when I started having what I refer to as more serious intestinal problems. After many tests and scopes the...
I got taken off of the Cimzia yesterday. I'm back on Humira(which I had been on for 2 years until it stated to loose its effectiveness.) The Cimzia seemed promising at first. After the two loading...
I am so relieved to see these posts. On the ohter hand I am truly sorry for everyones pain and discomfort. I bounce back and forth as well. It is a major job to keep up with what I can and can't eat....
Lean ground beef or turkey and baked potato(skinless) mashed together is my comfort food. It is the one thing that my system will tolerate without issue. It is also one of the best sources of protein...
Can anyone tell me if this is something I should worry about?...
I am not actually turning into the Sesame street character. I have had a blister like rash for years on my back. These little devils hurt if my clothing touches them. They also itch like crazy. I've...
I am always relieved when i log on to this site. I have has the same thing happening for some time now. The pain can be very intense and will throb. When things are real bad I start sweating lke...
Wierd stuff. I would swear I was pregnant and that the baby was kicking. I started Cimzia in late May. I'm not impressed as of yet. I keep hoping that things will change after each shot but nothing...
Humira seemed to provide me with the best results. None of the pills worked. Methotrexate worked for abount 8 weeks then stopped. Switched to Remicade infusions. Not bad but developed pneumonia. Then...
Miss Mouse, I can feel your anxiety. I did most of what you are doing prior to starting Humira. I was pleasantly surprised when I started. Those darn warnings scare the crap out you. I was on Humira...
Please, please, please follow the directions for weaning. If you do not have any ask your doctor to write them down for you. I have Iatrogenic Cushings Syndrome that is cause by the steroids. I have...
I was on Humira for 18 months. Just switched to Cimzia. Headaches didn't start for me until about 8 months ago.(these are the kind of headaches that are very noticible as I would just go to bed and...
When I was on Remicade it was standard procedure to recieve benadryl prior....
Thank for the info. It has been tolerable so far....
I have had chronic thrush for 4 years. I use nystatin when it gets bad. It's prescription liquid that you swish and spit or swish and swallow but remember to follow the directions around when to do...
Just started Cimzia and I am a little anxious. Has anyone had experience with this new med. I have been on most of the others the last being Humira which worked for about 1 1/2 years. Although I...
I also have used it. I save it for those banner days. The taste is vicious. I think I would compare it to crushed up cigs that have been in the ashtray for days. It does work.. Idid get it from my...
Matt I hear your pain and aggrevation. i have posted before and not gotten a response and felt very isolated. But I know that people will. I have not been on here for quite some time and Your post is...
Stick to your plan. Remicade is a good drug for most. You just need to make sure that you stick to the schedule. If you miss appointments your body can begin to build antibodies and your daughter...
thanks to all!...
My CRP has been off the charts for three yrs. Highest 164. When I first started getting sick it was 22. This test alone is a measure of the presecnce of some kind of inflamation. These numbers are...
Hi to all, I had my gall bladder out last week and an exploratory lap. of my intestines. It's been a tough 5 days. Managing the pain is always difficult since the meds are contipating. I am hoping...
I could never tell. After four years of testing and tons of meds my Gi and I made the decision to remove my gall bladder. I had the procedure last wed. I was always walking the line in terms or...
I'm alittle nervous I had to come off of the weekly Humira injection 4 weeks ago and things are pretty tough right now. I;m wondering if alks have had this before particulary the gall bladder emovak...
Thanks to all!. I had my pre op yesterday and and will proceed with the surgery on 6/10. The surgeon will also take a look around. Hugs to SL...
Has anyone had their gall bladder removed as a last resort. i am sced. to have mine removed in June 11th and they will also do a lapareroscopy of my intestines while they are in there. I am hoping...
Congrats and Happy Mom's Day! My heart goes out to you! I wish that there was something that I could offer you to feel better. I do think it's worth asking your GI for another med. 7 years is proof...
Thanks to all your support does help!...
I was exposed over the weekend and I am on Humira and have just finished a course of antibiotics for bronchitis. should I be concerned?...
Hi all, it's been a while since I have been online. I have a question for Humira users. I have been on Humira(40mg. injection)every other week. I am suppossed to increase to once a week but I have...
Congrats! I have just administered my third dose of Humira. The nurse and a friend did the first two. I am completely comfortable with it. I prefer the pen over the syringe(9 weeks on...
Hope, I have had epilepsy for many years now. At firts petit mal and then in 1993 i had my first grand mal. I was put on Dilantin and it seemed to work for awhile. Then out of the blue I started...