Hey! The pico silax is pretty gross stuff. If you can find it, try to get it in cranberry flavour, the orange is not as good. I am pretty sure they want you to mix it with water. You can always chase...
When I was at my worst and not responding to any mediacation including humeria, my doc upped my dosage to 2 shots weekly. I did that for about 8 months and it put me in remission. I am currently on 1...
I have been on humira for a couple years and I have had some weird side effects as well. The burning or pain of the shot has never lessoned for me. But I tolerate it because I do feel better. I don't...
I did that and it worked for a bit. Then it just stopped working and I had to go on Humira. It has now been a couple years. I do not miss going to those infusion centers that is for sure.......
I agree. You cannot drive, as far as I know it is actually driving under the influence. Call a cab, or find someone else to take you home....
I have been on H for about 4 years I think. I had unexplained high blood pressure for about two years, then it went back to normal. Never figured out why. GI was convienced it had nothing to do with...
Hey, I experience pain and discomfort when flying. Almost everytime. It is almost like a a bunch of air and gas gets stuck in my guts and it is apinful for a few days. I don't think it happens to...
Hey! I got psoriasis as well from Humir, but not nearly as bad as you! I have some stinky ointment called Bioterm? Or something like that, which as helped, but found not long term solution. I hope...
Hey, I have only ever had one thank goodness becuase they are quite painful! My doctor also told me to avoid calcium suppliments as well as too much vitamin C....
Hey! I am on humira and have not experienced the hair loss so I hope someone else can answer that for you. As for the pred, in my experience it will go away. I know it is hard to look in the mirror...
Thanks for the info!...
Did you ever find something that helped get rid of the pink we or did it just go away on it's own?...
Hey, So I have been on Humira for several years now. Since December I have had a sinus infection with no relief. I have been on antibiotics twice and it hasn't helped. Also I have had pink eye on and...
At the beginning I used the pen. Which auto-injects. I found that the actual med (which does sting by the way), hurt more. Now I used the pre-filled and I find it hurts a little less as he injects it...
If I remmember the first time, I recieved 4 shots as a loading dose. The nurse did 2, my hubby did one and I did one. She showed me where to do them and how. I personally can't do them (I am such a...
Hey, I have been on 80 mg for over a year now. Only way to keep the desease at bay.......
Hey JavaJay, I am having the same issues as you and have taken the same meds. The only way that humira has worked for me is to take 2 shots weekly. And I feel good tummy wise. Yes my skin hurts and I...
Hi Randi, It is def not an easy choice. I was having a lot of problems with my stricture, and my GI had pretty much given up hope that meds would work for me. She reffered me to another GI. He...
Hi JavaJay , I have been having a lot of problems with my skin sinch being on Humira. Last year at about this time I developed a weird rash that covered about 95% of my body. Kind of made me think of...
Hey. I don't know anything about the payment card or anything. But I have been on 2 shots of humira once a week and I am feeling really great. I am acually about to decrease to one. I hope it works...
I am actually on 2 shots weekly. Its a lot, and I hate having to take that much, but that is thr only way it works for me ;o)...
No, I have not experienced that pleasure yet lol. I am seeing my doc on Wednesday. Is there any signs that I should look for if it is kidney stones?...
Hey, Just wanted to know if anyone else has experienced this. I have blood in my urine and constant bladder pressure, but no UTI. It has been a couple days, and this has been the worse. That being...
I am on 80 a week, and have been for several months. 40 was not cutting it. And I pretty much noticed a difference right away. I am feeling quite good now. I don't know about ever second week....
Well for the moonface, it wil go away. I can't remember how long it took, but don't be discouraged! As for the Humira, I got a rash and it was all over my body. It lasted about 1.5 months and then...
No onions for me cooked or not. Otherwise I will have pain and be able to clear the room, if you know what I am saying lol /community/emoticons/smilewinkgrin.gif ...
I have been on Humira for a little over a year. In September I started getting a really bad rash in my butt crack (they think it is inverse Psorisis), and I am still waiting to hear from my GI. I am...
About six months ago I was really not doing well, as I am pretty unresponsive to any drug they give me, or they would work for like six months then stop working. I was refered to a doc that was doing...
Good day! I am actually doing 2 does once a week now and finally have it under control. I am seeing my GI in about a week and a half and hoping to lower the dose, but this is what has gotten me into...
That is so weird. In December 2008 I got a fungul pnemonia and liver infection. My Crohn's disappeared for almost 2 months, and I was taking no meds for it. It was such a blessing as I was so sick...
Wehn I was super flairing last spring/winter that happened to me. I was not on any meds as we were trying to clean out my system. And basically my doc told me that I was having a protien deficiency...
So far nothing has worked for me. Going on some sort of trail drug (no idea of name) in January. ;o(...
white rice, white bread, mashed potatoes, chicken, fish, crackers, chamomille tea, Ensure, Gatorade, canned green beans...
I find that the shot does burn, while the fluid is going in. Once it is in it does not hurt. So you just need to be ready for the burning sensation. For my first time with the 4 shots a humira nurse...
Diet is so individual. I also eat a ton of carbs, chicken and fish. Boring! I aso cramp up every night, I am up at least every 2 hours so I also try not to eat too late or in the evening. I find it...
I have no suggestions or anything like that. But congatulations!...
Hi, I just posted about this very same thing a couple weeks ago. I had been in a bad flare for about 3 months at that point and my feet and ankles were like wpainful water balloons. Say my GI, got...
I had both of my scopes done while I had my period. Never an issue, I just wore a tampon both times. I was a bit embarrassed, but no one else thought it was an issue......
The feet swelling did start before I went back on the Remicade, so I am pretty sure it is not that. That would be horrible as it is the only thing that works! I think my doc is more just exasperated...
Wow I am going to have to search Crohn's arthritis. I did not even know it existed. Thanks for all the info guys! I was starting to think that I was going crazy......
I was off Remi for 4 months, I have only had one treatment again so far (my next is in a week), so I am sure that did not help. No steriods though, haven't been on those in years. I might go check...
Hum interesting. Maybe I can do some protien drinks. I am just coming off of a bad flare and was really not getting much nurishment....
I am hoping someone can help me as my docs seem to be brushing it off. I am just coming out of a super bad flare, and I just started Remicade again. Just before I started my treatments again, I...
It can be hard sometimes. I feel like that a lot of the time too. I think for me a big part of it is feeling like I am not in control of my body. I also always found that I was worse emotionally when...
Hi guys, I have not posted in a while, but I definetly visit. I have a questions and I could not find anything with the search so I am hoping someone can help me. I was on Remicade up until November....
I always felt the same way when I was on pred. I thought it was even worse with the moon face. But that being said, I also felt a lot more hyper and I would also feel my heart beating stongly. So...
Thank you everyone for your responses. My tests did come back negative, but there is a doubt which is why I was asking these questions. So I will mention it at the clinic and load up on cranberry...
Hello, I have not posted in a while, but I usually drop in a couple times a week to see what is happening with everyone. I have a question, I am going for Remicade in about a week. I think I may have...
I like to eat and enjoy seafood all the time. Never had a problem with it at all! Karine...
I am sorry to hear about youur brother. I have never had an obstruction so I hope that someone come along and let you know soon. Karine...