Thanks for the responses everyone, I really appreciate it. I've been speaking with my specialist's nurse and I have asked a few times if they know what is causing it - at this stage they don't, which...
Hi all, I am wondering whether anyone here has experienced low phosphorous? I am currently on infliximab alone as my therapy for CD, and my doctors had noticed by phosphorous was low. They then...
Hi Ivy, so lovely to hear from you!!! Covermmore insurance is the best bet... somebody from the Crohn's & Colitis Association Australia gave me a friendly phonecall and then email. For future...
Hi everyone, I hope you are all well. I thought it was about time I posted, since I haven’t been on the forums for such a long time! Things with me are good… I’m working way too much, to the point...
Hi everyone, I hope you are all well. I am writing out of desperation after applying for travel insurance with some Australian companies and being knocked back due to my Crohn’s (even though it is...
Ahh it is just so lovely to hear from you all. I am in love, and the first time I’ve been in love like this! I now know more what everybody’s talking about. I looked back through my old posts...
Hello everyone, This is just me, saying hello, because you have all made such a positive impact on my life. I want to know how you’re all doing – I need to come here more often to just ‘hang out’! At...
Sooper, thanks for your lovely reply. I hope you don't have to have a bag, it sounds like you've been through a lot with trying to find a med that will work for you. My disease didn't respond to the...
Hi sooper, Its nice to hear from someone else who has a similar problem. I never had an issue with this until a year or so after being on Remicade. I did have two surgeries in one year to treat an...
C definintely makes you feel uncomfortable... I hate that full feeling. And then I get criticised from people around me for not eating enough, when I'm trying to give my digestion a rest!...
Hi Sooper, I'm the same! I have heaps of scar tissue, so it makes things even harder... do you have a surgery wound? I have a fistula surgery wound and constipation, I've often wondered if the two...
I think the thing that’s difficult with C as a symptom, is (for me anyway), it seems so ‘on again, off again’ – one week its ok, the next week suddenly I’m impacted. There is no regularity (just...
agreed!...
Once, when I had potassium going into an IV and it was extremely painful, I ended up in tears. The IV was in my hand, and one of the nurses had an idea – he grabbed a bandage/glove type dressing,...
Are you in remission, Doormouse? I know when I went into remission with Remicade, about 6 months later the skin tags bled and were extremely sore - turns out they were just 'dying' (now how's THAT...
Hi MV4700, welcome to healingwell. I am 25 and have been on remicade for about 18 months. It has completely changed my life. Before remicade I was in a 4 year flare, had two surgeries, an abscess...
Just wanted to say thanks for sharing Natwell - I'm on remicade at the moment but really interested in worm therapy....
Diagnosed at 19 while living alone 5 hours from my parents and in my first semester of university. This illness is often diagnosed in people aged in their late teens, early twenties. My best advice...
I’ve had 2 colonoscopies. The first I was completely ‘knocked out’ for and didn’t know what was what until I woke up. My last was a few months ago, and I was semi-conscious. I admit I was scared,...
What?? Oh my goodness; what on earth could people have been abusing you about? Your love and support for those affected by devastating, life-changing situations? I don't understand......
Hi nelsyd, why were you horrified? Was it because of my previous posts about the abscess and fistula surgeries, mushroom drains and setons? Pretty horrible times were had, that's for sure!...
Ivy is my favourite :) That's favourite with a u! :tongue:...
I’m doing really well; its amazing what 2 ½ weeks of rest and happiness can do for your health. Makes me realise how much stress does affect my body, even when I’m in clinical remission. A week into...
I'm so sorry Ivy! I feel terrible you've all been so worried!!! Feel free to be mad :(...
Hello everyone!! I can't describe how moving it is to see all of these posts, I am only sorry I didn't come on earlier to assure everyone I am ok. Honestly, you are all so wonderful for your concern!...
Hi everyone, Well I’m sitting on my bed with the air conditioner on full-blast, it’s so muggy up here because it’s been raining constantly. Yesterday after my skin-check appointment I took myself to...
Sorry for not writing back earlier, I left work at 5:30 and didn't have energy to turn on the computer at home after an exhausting week. I do appreciate the replies. Currently waiting in emergency...
I told the nurse I've been eating a diet of yoghurt and cheese for over a month. She was shocked and asked me how much weight I've lost.. but I haven't lost weight, I've just eaten 1 kilo+ of yoghurt...
hehe. I'm doing ok, today has just been yoghurt and tea and one coffee, oh and a milkybar chocolate because i needed something bad. 1.5 hours till I can go home, grab a movie, go to the shops and get...
If I had a tumour surely they would have seen it in the scope? Or do you mean higher up?...
Thank you so much for sharing all of this Ivy; I so appreciate it… I said almost that exact same thing to my nurse yesterday ‘I’m sorry but I feel like something is just really wrong and I don’t know...
yes, crying to the nurse was embarrasing.. she was very lovely and I think she felt very sorry for me. 7am crying is not a good sign! ha!...
You were? When did that happen? What were your symptoms beforehand? When did you decide to go to hospital? Did the pain get so bad you were really uncomfortable and took yourself in? Or did you start...
Hi Ivy, sorry it’s taken me so long to get back to this thread, I just saw it yesterday… I’m having impaction problems again. I called the nurse yesterday and she said take movicol / coloxyl… so...
This is a really interesting thread. I think I have done a lot of growing up this year, my 24th of life. I have always been driven and motivated, and wondered how much of it is good and how much bad....
thanks so much for the replies everyone, sometimes I don't know what I'd do without this place. :)...
Oh RiddleMeThis, I'm so sorry to hear that. What kind of cancer is it? Do you think the 6MP could have any correlation to the cancer?...
Hi everyone, I hope you are all welll and happy and looking forward to Christmas! Ok, so here’s the thing. I’m on remicade; and have been since October of 2009. I have had a really good response to...
ewww fungal infection!?!?! ahhhhh!! You're right though; I do need to find a decent Dr for all of those things, its just hard because I work full-time; guess I should just look for someone in the CBD...
Yes, most of the time I call the nurse and she jots down symptoms but doesn't really know what to suggest, which is fair enough, that's not her job afterall... She then relays it to the specialist......
Nicecupoftea and Kazbern, thanks so much for your responses, its nice to know the background of others in a similar situation. I'm at work at the moment but I've left a voicemail message with my...
Ahh thanks guys. Funny thing is, with crohn's colitis, my main symptom was D - for four years, constantly, getting up five times a night etc, which lead to abscess problems and all kinds of...
Debbikay, I'm curious because you say your symptoms sound just like mine; did you receive a diagnosis of what was causing those symptoms? My crohn's symptoms have been pretty good this week. Just...
The only thing I've heard in this respect is that 'the first flare you have with Crohn's will always be your worst'. I hope that's true because mine was horrific!...
I'm not due to see my doc until the end of January... I wonder though, could I have a stricture if my scope came out 'all clear, no stricture?' - could it be higher up? My GI seemed unconcerned about...
Hi nanners, I've tried the stool softeners, but maybe I'm taking too much because they just seem to bloat me and make me uncomfortable, and then I go to the bathroom too many times!! I think I'm...
Hi Ivy! Lovely to hear from you… I’m doing ok; work is getting very busy, and I do wonder whether my latest health issues are attributed to the fact that I have been very stressed out and exhausted...
Artist guy has summed it up! I also had some weird symptoms - 2 days after my infusion I would get sore skin on my left arm - sore to touch, like hives, it felt like nerve pain on the skin... It also...
Not a worry - fear of the unknown is one of the worst things about this illness. Let us know how you go with the headaches - have you raised your concern with your specialist?...
Hi redsoxgirl, I’m going through pretty much exactly what you describe, started about 6 weeks ago for me and hasn’t stopped. I’m either a) extremely bloated and sore, and feel so full from not going...