I have an ileostomy from Crohn's disease and occasionally I notice strange white blobs in my stool. Anyone ever experience that? I feel fine and I seem to notice them after drinking alot of milk....
Dan, I don't use a vented pouch since I don't have the need for it but I'm sure I remember seeing them available from Cymed....I just rechecked the Cymed site and yes they have appliances with...
esor, I use the one piece system so I cant say how well the two piece system works. Call Cymed and talk to them and they will answer that and they will send you samples to try. They told me because...
@ polishdan, I used convatec convex wafers with paste, rings, powder, and a belt! Even though my stoma is an outy I couldn't stop the leakage because of the contour of the area around my stoma. This...
There is a small chance he could have a reaction to the microskin barrier as well. They asked me to cut a small portion off and stick it to the skin on my abdomen for 24 hours to make sure it was ok....
Google Cymed Microskin products. I just switched and they are amazing!! For me they have been life changing. Best wishes, Tony...
Instead of the hard square barrier that doesnt stretch and move with your skin, the micro skin barrier is as thin as reynolds wrap and conforms to every kind of skin terrain. It feels like you dont...
I'm gonna sound like a salesman for just a minute. Ive been on this site for many years with an ileostomy. I had surgery 2 years ago again! ( third ).... Since then Ive had alot of trouble with...
Once Upon a Time.... by me. Once upon a time I felt different than everybody else. I felt disconnected and alone because of my disease. I watched to world go on without me. I watched people enjoying...
After caring for an ostomy for 23 years, I thought I knew how to fix my probem on my own. I guess I don't know everything after all.......
I think the extra stomahesive barrier prohibits deterioration of the my appliance and adds days of extra protection....
Besides using the steroid cream applied to just the affected area, I use stoma powder then skin prep spray. let that dry. Then she added a stomahesive barrier with the hole cut the same size as my...
great news! No infection or fungus....just leakage. Nurse used steroid cream and a new technique for my appliance and its halfway healed after just 4 days....
I'm not sure if having Crohn's has turned me into a hypochondriac or if being a hypochondriac triggered my Crohn's but one thing is for sure....I act like a hypochondiac. Happy New Year!!!...
I have had a gradual increase in the degree and size of irritation around my ostomy. It's gotten so bad that my appliance wont hold and it's very painful! I have an appointment to see an ostomy nurse...
At this point I take injectable B-12 once monthly, Methotrexate injectable once weekly for arthritis....that about it....
I have about 8 unopened boxes of the Assura #2115 pediatric ostomy pouches for anyone who needs them. I used them for a fistula I had but no longer need them. Contact Tony Phone number deleted for...
I haven't posted in a very long time...maybe a year. The last time I updated I weighed 135lbs and was very sick. I had surgery in March of 2010. They removed 18 of small bowel. I now weigh 185lbs and...
Thanks flchurchlady. I will contact ostogroup.org and donate them there. Im glad to see that everyone on here is financially able to afford thier own needs!!...
I recently had surgery to remove 18 inches of small bowel and had to start using a different kind of ostomy appliance. I have 8 un opened boxes of Assura 1 piece pouches model number 2115 ( these are...
Thank you all for your kind and inspirational responses. I thank God, my awesome gastro, and my gifted surgeon. I truly pray that everyone at Healingwell, no matter what your disease is, enjoys...
No maintenence drugs yet. I go to my Gastro in July and he is going to start some....
It's been awhile since Ive posted but I wanted to update my status. I've been dealing with a severe flair for the last 2 years until last April. I had gotten down to 113lbs. I was so weak and sick I...
After 2 years of almost constant flares, weight loss, nausea, pain, bloating, and depression from Crohn's disease my docs finally decided surgery was my best next option. Last week in preparation for...
I had my last surgery in 1995. Been perfectly healthy until 2 years ago and out of nowhere my crohn's came back. Its been a very rough 2 years. after beeing hospitalized 3 times in the last year from...
I started Methotrexate about 4 months ago. recently and currently I have developed very painful canker sores in my mouth. Its almost impossible to eat or drink. Could this be from the Metho?? *added...
Many people, me included, have a fear of going to the doctor for fear they will hear bad news. I decided one day that I was going even if I found out I was going to die. Its very liberating to go in...
anxiety causes breathing problems because it causes tension in your muscles including the lung muscles. your getting enough air, it just doesnt feel like it. once the anxiety passes so does the...
I developed somewhat of a phobia several years ago to cardio exercise. When my respitory and heart beat increased it would set off a panic attack. I have always been very athletic and when this...
It varies from person to person. Usually by the 3rd or 4th dose you will feel a difference if it works for you at all. It doesnt work for everyone. I had wonderful results right away but after 8...
Yes, oreos tear my guts up. Dont know why and its one of my favorite cookies. My cousin had IBD and says the same thing. Weird huh....
I recently started taking Methotrexate along with prednisone to control my Crohn's and it seems to be working very well. My arthritis is almost non-existant and I have felt terrific for weeks but now...
I miss: 1. weighing 170lbs I'm 140 right now 2. fresh salads with all the veggies 3. not taking meds 4. not having an ostomy 5. being flirted with 6. not having Crohn's and all that goes with it...
I started taking Klonopin 3 weeks ago to counteract the jitters from Prednisone. It not only worked for that but puts me in a great mood. I feel like socializing and doing things again. It's been a...
Being a guy, I wear a wide elastic back belt when I swim. I sometimes even wear it under my clothes if I have on a tight fittting shirt like a Polo. Its thin and comfortable and works very well....
Hi everyone, Im a 50 year old guy with Crohn's and arthritis. Ive been in a flare for over a year with some good days but mostly rough ones. I have noticed that friends and family seem to be...
Just got back from the doc. Been losing weight again. I am soo skinny. He gave me prednisone for a 10 week burst. Im not sure if I ever hated anything as much as prednisone but looks like its the...
I drink it mostly for the calories. I drink the Plus version with 350 calories per can just to try to maintain my weight and maintain a soft diet during flares....
never heard of it. I will google it then ask my GI...
I was on Remicade from August of 08 till April of 09. It worked wonderfully at first but quickly lost its punch so I was taken off of it and told to try to get an approval for Humira. I went through...
One large cucumber and One medium onion. Even if your not trying to reduce swelling anywhere, they are delicious!!...
This may not be for everyone but someone else has to try this and let me know if it is just me....here goes. I have heard for a long time that Apple Cider vinegar and honey is good for arthritis. I...
I guess for me its sort of like finding out you have an arm growing out of your back. At first your shocked and bewildered maybe even embarrassed. then as time goes on you slowly start realizing its...
Thanks for all of your responses. I wish I could meet some of you face to face. This forum is so helpful but since I personally dont know anyone else with arthritis like mine it would be nice to meet...
Sorry about you dad. Your arm will heal......not too sure about him....
Dear Ivy6, I agree with you that all of us need to vent our fears. Ive done it, you've done it....we all have at some point and I think its great to have a place to do that where others understand...
Yeah, I noticed the funky taste from the Venofer too. It didnt really bother me that bad but enough so that I mentioned it to the nurse. I go back for labs again in about 2 weeks and I'll find out...
I was hoping for alittle more feedback than I got from this question but maybe my situation was more unique than I thought it was. I had my transfusion this morning. 2 units of packed red blood...