To all moderators,first I wish to extend a big thank you for allowing folks in particular a place maintain a support system in particular for folks with PG. As I recall a request was made a while...
Penny..great to hear you got some good news with your wounds,hope it continues until they are gone.Now about Venous Insuffiency,it is mostly poor circulation especially of the legs,blood flow is...
Hello everyone..Thinking positive outcome of your doctors visit today Penny,btw I updated my profile page,so you can get my e-mail address if need be,also I think my profile page is on either page 27...
Hi Tammy and welcome to our little family,you'll a find a wealth of information and some good interaction with others who know what you are dealing with.You mentioned beig from Oklahoma,are you near...
Hello everyone..Willow I was a mechanic in the Army,worked on those big trucks(and jeeps too),I went back to school when I was in my 40s and got my degree,had to work under the supervision of a...
Happy grandma..so sorry to hear ypu had to go through that procedure,if the dressing type you described,is what I think it is,maybe I can shed some light.The solution ypur provider used before...
Hello everyone..Kim that was 32 years ago when I was first diagnosed,but it wasn't until earlier this year that I realized what was going on.I would say since then I have had 3-4 reoccurences,the...
Happy grandma..when I was first diagnosed with PG some 32 years ago,I remember(Penny knows this well),the doctor I was seeing at the time would pronouce the disease as 'PYRODERMA"and I recall asking...
Hello all..Kimike no need to be embarassed,you are among friends who what you and your husband are dealing with although even though your spouse has the condition,you are suffering right along with...
Hello All..First of all regarding favorite doctor sayings,I would go with "What the hell is that?"by my dermato;ogist when I first saw him recently(I had not seen a dermatologist in over 30 years),so...
Hello everyone,I finally found you all,sorry haven't been posting but I sort of got lost(didn't have anyone to ask for directions) /community/emoticons/yeah.gif It is funny I kept checking and...
Well I guess you all are ready for PART III..who would have thought we'd get to this point?.Must be some real chatter boxes..that's o.k. a dirty job,but somebody has to do it.What say we keep it...
Hello everyone...Willow I went through whirlpool therapy back in the 70's when I was having the initial outbreaks while I was stationed in Germany,haven't done it since.I believe the the wave action...
Hi Willow..I have been checked for DVT's but so far none have been found,I wear the compression stockings mainly for circulation problems in my legs,I have a condition called "Chronic Venous...
Happy Grandma..what I described is very similar to an Unna boot(just probably different name).Penny what I described is like a compression dressing,usually extends from below the knee to the ankle,so...
Hello Willow...Best way to describe the Acticoat/profore dressing is similar to an Unna boot.The wound clinic mixed together a plaster of paris mixed with silvadeen and it has about 3-4 layers.It is...
Happy Grandma,during early stages of my last bout,my PCP(actually aN NP)referred me to a wound clinic to see about an Unna Boot,but the folks at the wound clinic opted for silvadeen only.In the...
First,I recognized after the fact that I called you "Rosebud" instead of "Redbud" my apologies.Thank you for your prayers,they sure do help!!!....
My,My, Now aren't we beginng to grow a little..welcome Rosebud to our little family.I'm sure you will find some understanding folks here who won't mind having their ears bent a little.Willow, I was...
Willow..your doctor is just about right,as far the scarring goes.The human skin is tough but can only take so much .In fact the older one gets it seems the longer it takes to heal,I have numerous...
It is sooooo good that Penny and Willow can get together and be support for each other.Washington State is very beautiful,travelled through there back in 1992,visited with my sister in Tacoma and...
/community/emoticons/turn.gif /community/emoticons/turn.gif Hey janice,I can remember having these "sores" on most of my body when I was a youngster,especially on my arms and legs.I still have small...
Penny,when I was a youngster(probably 8 or 9 nine years old),I remember having the sores on my legs,was living in Barberton Ohio. now mind you this was back in the early 60's,my mother took me to a...
Hello Willow22...no cyberghosties here..welcome /community/emoticons/shocked.gif ...
Good to hear you are at least making some positive progress Penny,hope the streak continues.As for scrapping,I don't recall ever having the things scrapped.The nearest to it was with the Urea 40%,the...
Hello All,Hope everyone had a nice weekend,good to see you back Penny as far as feeling really fatigued,I've had a couple days like that,just kept wanting to sleep.I want to share something with you...
Hi Emilie, so glad also you found this forum,so sorry what youv'e had to deal with the last 5 months.What you described sounds like PG,however it really is hard to say if it is or isn't.Only your...
Norma3..let me chime in and say welcome to our little group,however as OriginalAreU mentioned it is one noone really wants to be a part of,but it's unfortunate that some have to deal with this little...
Oh Penny...Just in the short period of time,that I've been able to communicate with you and the others I can see you have been on a real roller coaster with PG. I certainly do extend extra prayers...
Hi there Penny,Iv'e been down that road you're facing so allow me to help a liitle.First of all if the need arises you would be applying for SSDI, not necessarily SSI. The latter is a different...
Penny,I know what you are going through as far as the decison to try and hold on to something you love doing, as well as dealing with the pain and everything else that comes with PG (or any other...
Hey Janicea..how is the silver sulfadiazine working for you?. I have been looking at other web -based articles,trying to learn as much as I can about PG, I consider myself a newbie with it (even...
Penny,well you go now girl..sounds like finally you have someone going to bat for you.As one who has worked in hospitals, as well as having the treatments myself,there is no question I.V. type...
This is soooo cool...Part 2,who would have thunked it?. Here is hoping and wishing everyone "a real good week",BTW Penny/Kirei do you have a preference of who you would like to addressed?.When you...
Thanks Ides,just one of those things I was curious about ,I saw the listing.It's nice when the moderators chime in once in awhile,just helps keep this organized. Now on with Part 2...Well Penny at...
OriginalAreU..Thank you for the Info,Just had some labwork done couple of weeks ago,don't think any of those you mentioned was included but will check on it. From the research I've done,I was aware...
Hey Penny, Thanks for the info. I met with my PCP this morning,as he was the one who referred me to the wound clinic,I wanted to keep him up tp speed with what's been going on. When I came across my...
Thanks for the info,now my next question 'Does one's PCP/Provider usually order the tests?. I have a main PCP,but also on occasion see a Nurse Practioner. Iv'e really never had testing of my...
Hello all, Just a couple of questions...First of all, Does anyone know what labwork is usually ordered for Autoimmune conditons?. Also may seem like a dumb question, But who are the moderators of...
Congratulations on your return to the working world!!!!!. I have usually found the hardest part is getting back into the groove of things,especially when being off for any length of time. Another...
Good morning janicea,& all, Thank you so much for the welcome janicea.about the "Urea 40%", it is also under the name of "X-Viate 40%",it comes in a large tube,and I put it on at night before...
Hey Penny, So very sorry to hear of your your experiences today with your providers. I understand where you are coming from about I.V antibiotics, the wounds do heal in less time with that treatment...
Penny, For probably over a year,I couldn't wear my compression stockings either due to the ulcers or the dressings (kerlix type) that were too bulky as I wasn't able to pull the stockings over the...
Penny I was just looking over the previous posts on the 1st page and I noticed you mentioned treatment with something that looked like a thin sponge,that sounds like "Hydrocolloid Dressing-Pansement...
Penny with all my ranting on last post I forgot to answer your question about pain. I have (among other things) osteoarthritis in my left hip,at least the x-ray reported that several years ago,have...
/community/emoticons/smilewinkgrin.gif Good morning Penny and everyone, I got to reflecting last night as to what caused my experiences i. 1976/77 with PG to get to the point that my legs became "so...
Folks I must tell you all,it is such a big reliief to read your experiences, and to know one is not alone in dealing with PG. I have been doing some research and found a couple of great websites....
Good morning everyone, I just registered this site and forum,I had looked over it actually yesterday,and by suggestion of Kirei (Penny) as I had communicated with her on another forum.Now about me,I...