Does Dr. Chamberlain treat people from out of state? I'm considering this therapy. Also, how long will he keep you on the antibiotics?...
You can buy pig whipworms from ovamed.org and they will ship to your door, even in the US, but you have to drink them every 2-3 weeks so they are expensive. They currently have IND status since they...
Well, the fecal tranfusion failed to keep me in remission. Last week's CRP was 16, and symptoms are beginning to regress. Damn it! I was going to try Prochymal, but they just changed the...
Here's a brand new article on fecal transfusion and the microbiome: http://www.nature.com/mi/journal/v4/n1/full/mi201079a.html...
@aussie8765, I don't think so. My daughter had a bad headache for a day and my husband feels kind of sick. Fever was only that one night, but I still feel a little sick. So I'm thinking it's just a...
One had his wife's stool tested and it came back fine. No, I don't think he did the Borody protocol. The other person...I don't remember, sorry. I *think* he had his donor's stool tested. Whether or...
I tried e. coli Nissile and it didn't work. I never tried it from the bottom up though. I'm almost done with the 10 fecal transplants. Can't tell if they're doing anything, but I have a very sore...
Wow,Georgie girl, you've gone through hell. As many of us here have. You're so lucky to be in Australia with the guru of Fecal transplants, Dr. Borody. I really hope for those of us doing this at...
I can't tell what it's doing yet. I went into this pretty close to remission, with solid stools, so I would be more looking whether this helps me stay in remission. Had a little mucus yesterday. I'm...
I'm currently about 5 days in to fecal transplants for Crohn's colitis. I wonder if we can change the microbiome from one type to another this way?...
I was on IV Flagyl Cipro for 10 days, then oral for another 4, then I switched to Augmentin for 2 more months. My daughter is the only one in the family who never had antibiotics. Both my husband and...
My daughter didn't poop yesterday! I'm taking advantage of having just got off a long course of antibiotics. But I'm thinking after 10 infusions, I will do them twice weekly, then weekly as...
But this study in mice showed the bacteria actually implanted better NOT on antibiotics. Don't know if it applies to the human....
What's the reason for no curcumin? I didn't know it was antibiotic. Also, the 5 ASAs including sulfasalazine are not included, but would you resume them right afterwards? I don't feel comfortable...
I did take Immodium a few hours before the enema, but not yesterday, and I had no problem containing it. But I'm going into this with solid stools (albeit skinny) and a little bit of mucus, so I'm...
Stewiegrif33, make the mixture as thick as you can without it getting plugged in the tube. I also eliminated the salt and boiled distilled water instead (it was kind of old). I've been able to hold...
This study was interesting: http://www.genomeweb.com/sequencing/fecal-transplantation-alters-rat-gut-microbiomes It showed the rats who DIDN'T receive antibiotics had better success implanting the...
I'm trying this for Crohn's colitis. I've done 4 so far using my 10 year old's daughter's stool. (I breastfed her for 2.5 years, delivered her vaginally, and she's never had antibiotics, so I was...
Saladshooter, the worms are still available. Your GI is wrong. You can order TSO (the pig whipworms that you have to drink every 2-3 weeks) from ovamed.org (Which directs you to the Thai website, and...
There's a long thread on this at: http://www.healingwell.com/community/default.aspx?f=38&m=1865200 I'm trying this for Crohn's colitis. I've done 4, but only 1 was done right. I just posted the...
How often are you going to repeat the enemas? I wonder if we need to do this every so often just to keep things in check? I'm finding it very inconvenient to stop everything and lay down for several...
OK, third time's the charm. Yesterday, my daughter pooped around 11:30. Unfortunately, I couldn't do the infusion until 2, so it was a few hours old. ;( We mixed it with boiled and cooled to room...
idkwia, could you send the Borody instructions to [email protected]? How do we get the fecal infusion any farther then the sigmoid colon? Would the new bacteria make it over to the cecum? One...
MomUC, what did her doctor think of this? Because before and after colonoscopy is pretty good proof that this worked! How long has this been effective for her?...
So I tried last night with an enema bag. At first I didn't get the tip high enough in my rectum, so although I felt a trickle, when we looked at what was left in the bag, barely any had gone in. So...
idkwa, I did not do the colonic lavage. I'm afraid it will irritate things too much, but I may try it. I just bought a blender. I don't have UC, I have colonic CD, isolated to the rectum and sigmoid...
A great podcast to listen to. Apparently doctors are having success with fecal transplants for such obscure conditions like MS, Parkinsons, and obesity is being studied:...
I'm trying this for colonic CD. Last night I took my 9 year old's daughter's stool, added salt water, and tried to mix it up in a ziploc bag. I emptied a saline rectal bottle I got from CVS and...
How quick did you come to the full dose of Wellbutrin? I'm trying to be conscious of eating on time; already don't have a lot of an appetite since I started the GAPS diet 2 weeks ago. Still craving...
Gumart, how's it going now? I'm considering trying Wellbutrin for Crohn's as well. Going to start with 100 mg. today. I'm on 1/2 a dose of Celexa (started a year ago for depression/anxiety) but it...
I'll post on the forum for you and see if the LDN and worm person replies, and encourage them to reply here. I'll ask about the Questran too. I doubt the LDN would help with the side effects, though...
I know of a few people on LDN and worms. I don't know about the binding salts? I would ask on the Yahoo forum: http://health.groups.yahoo.com/group/helminthictherapy/ Maybe someone who's done both...
Would this work for colonic CD?...
Side effects that I experienced with the first dose: fever , increased diarrhea, gas, abdominal pain...reactive arthritis, edema, intense fatigue, fatigued muscles from not much exercise. Side...
Jojanna, how many hookworms did you take? Did you do whipworms as well or just hookworms? How are you doing now? Are you planning on seeing how long you go before you redose? I had horrible side...
jfgrout, you need human feces from someone infected with hookworms. The dog hookworm is bad for the human, and causes inflammation. Also, those with UC haven't done very well on hookworms; they tend...
I do want to add that I believe this therapy is totally worthwhile, safer than most drugs, and supported by overwhelming research. I think my case is a difficult one; 22 years with Crohns, only...
Oh, and it was wildly successful at first, with only 10 hookworms! Last year I'd say I'd reached about 80% and maintained efficacy with reinfection. The question is, why is it not working now?...
I was AIT's 3rd Crohn's patient, I think, and their most reactive one. We decided to experiment on me, but it backfired. How do you know that the patients are in remission and move on? Have you...
BTW, the MRI endoscopy, with oral and IV contrast, seemed to reduce my population of hookworms. So did dental anasthesia. I also was taking curcumin supplements earlier in the year as well as some...
The problem is; do we know if it works longterm? Helminthictherapy is in the first rush of efficacy, but will it last? I tried hookworms in late 2007. I started with 10 and had bad side effects,...
I'm still relying on hookworms for Crohn's, no other medication. I'm in my third year using them now. I got infected with 10 Necator Americanus last February 2009, then added 10 more in September. I...
Patientspiders, How's it going with the hookworms and whipworms? Any updates?...
Ovamed.org sells TSO (trichuris suis, or pig whipworm eggs) that they used in the U. of Iowa trials with Dr. Weinstock. They ship them to your door, and are manufactured in Germany or Thailand by...
Your GI is probably talking about TSO, (trichuris suis ova), which is pig whipworms and available from this site: www.ovamed.org This is what they used for the two U. of Iowa studies that are cited...
patientspiders, I didn't know you tried whipworms too! How was that? How many eggs did you get? What did it taste like? I think you're one of the first patients with Crohn's to try hookworms and...
You can figure out if you have a successful infection by taking a parisitology stool test that your GI can order (though they don't always catch light infections), and if you have hookworms, a...
You can also get TSO (pig whipworms) from ovamed.org They cost 150-350 Euro depending on the dose, and you have to take them every two weeks: http://www.biomonde-asia.com/english/home/home.html or...
Tysabri scared me more. I hate to tell you, but you're already crawling with parasites. You've got mites on your skin and eyelashes, your intestines are filled with bacteria. They're all microscopic,...
There was a good article in the New York Times last summer that explains it better: http://query.nytimes.com/gst/fullpage.html?res=9400EEDB1739F93AA15755C0A96E9C8B63 IDEA LAB; The Worm Turns By...