My worst flares have been in July during extended periods of hot weather....
Hi Joe, I really like these affirmations. I copied and saved them. Stress has always been a major element in the onset of my flares. I have always been very sensitive physically to my emotions. I...
I had 1 foot of TI removed about a year ago. I haven't had a formed stool since....
I filed for disability through a free local disability advocate. It only took about an hour and she guided me through the online forms at the social security.gov website. I needed all my doctors...
Hi 4rene I have read another book by Jini Patel Thompson called the IBD Remission Diet. In this book she recommends supplements and liquid elemental nutritional shakes. Most of these things she sells...
I found this interesting. Anyone else? I haven’t heard of this. Scientists speculate that Bt-toxin produced in GM corn may lead to autoimmune diseases and food allergies and may be damaging the...
Actually when I am on prednisone my memory seems sharper. It seems after I taper down I get bad memory problems. The time I tapered down from pred and went on remicade I had horrible memory problems....
Me too. I will be feeling OK thinking, I can do this and after 5-10 minutes of grabbing a cart and walking through my local walmart I suddenly don't feel so good. Dizzy and rolling guts and its...
Hi I am in the process of finding a surgeon. Although in my case I have a bladder fistula which makes the surgery more complicated. I don't have a colorectal surgeon available to me as I am on...
Hi Tookie I don't have any advice for you. Just to say I am facing my first resection too. I just talked to the nurse a few minutes ago and she asked if I would like to schedule for May 27th or 31st....
Hi Clonehead I have had this from prednisone withdrawal several times and am currently. It usually lasts for a few months for me. Some days are better than others. I have noticed when I drink more...
I have gotten that flutter feeling in the pelvis area. Mine only lasts for a few minutes daily, usually when I am lying down and is usually when I am flaring or at the beginning of a flare....
The article says it is the soluble fibers in broccoli that help. Soluble fiber stays with the juice I think. It is the insoluble fiber that most people have trouble with and that is eliminated when...
I was very healthy all my life, had a child at 19, still fine, second child at age 35 and a week or so after giving birth my health changed dramatically diarrhea, stomach pain ect. I remember...
I find this very interesting. I have Crohns and none of the treatments even biologics work for me. Antibiotics with prednisone seem to put me in remission for a short time maybe 3 or 4 months. Then I...
I had remicade for my 2 week, 4 week, 6 week loading dose and had no relief. My GI said to stop because I actually felt worse. Every GI is different and it would depend on your exact symptoms. My GI...
Yes I hope for a cure but I think it will be a little ways off. I like hearing about pioneers in medicine that are willing to try new things. Such as how how the Map studies got started, or the worm...
I am so sorry this has happened to you. I am trying to decide myself wheather I should finish college at 52 years old now knowing I may not be able to work full time anyway. I am sick all the time,...
I enjoy reading about alternative remedies. I believe doctors don't know everything. I have tried many prescribed drugs and alternative remedies over the years for my crohn's. I believe alternative...
Thanks for posting I am thinking about applying for ssdi. My understanding is there are 2 different programs and ssdi is based on what you paid in vs ssi that is not the one you pay into. I worked...
Thanks for the reply. Do you know if this side effect is temporary after an infusion or does this persist?...
Have any of you experienced low blood pressure from remicade? I had my second infusion on monday. Today 2 days later I had a physical. They took my blood pressure 3 times and it was about 75/ 55. The...
This is interesting. I had very mild symptoms starting about the age of 40. D maybe 1-2 days per week, no pain or other symptoms. I started skipping periods and going into perimenopause at age 45...
It looks like the latin name for it is [color=#1c1c1c>Boswelia] This is an inti inflammatory. I take a similar supplement called boswellin it seems to help. I think there have been studies done on...
I started LDN in february of 07 so it has almost been 2 years. I purchased from an online pharmacy and mixed it up myself by taking 50 mg naltrexone tablets quartering them and mixing with 12.5 mg...
I was prescribed pentasa for crohns in the small intestine. I took it for a year and felt no difference. It just made my hair very thin....
My vote is for blockages also I had 2 children naturally no drugs. During a blockage I have used a lamaze type breathing to get me through. The pain is very similar but with added vomiting and the...
I was 46 but I had symptoms for 10 years before I was diagnosed...
There are a number of cases on pub med of misdiagnosis of crohns due to ileal endometriosis. It says at the conclusion of several of the articles endometriosis of the small bowel should be considered...
Has any one ever heard or been diagnosed with this. Interesting reading. Apparently endometrial tissue can become wrapped around the colon or the small bowel causing narrowing, blockages, pain,...
I'm going to call my sons nurologist today. The school has a letter from his regular doctor but they don't feel that is good enough. They asked me if I would bring him to a psycologist for an...
My son is 14 and has been haveing a terrible time we've had him on verapamil, depakote, topamax and now wellbutrin for preventatives and nothing seems to be working. Not imitrex, relpax, or exedrin...