Wow-- Navy--I sure hope you misspoke when you said "But you do not get special exceptions to the rules and I hope you realize there are a whole bunch of people who suffer severe quality of life...
Hey-- How tragic to witness so many good people being maligned. Not one of them has a malevolent bone in their body:( Sadly and with tears...bye...Willow...
Hey--- Penny thanks for taking such good care of us! This site has been one of the best things that I have encountered this year! The support I feel both in sympathy and empathy is beyond compare....
Hi everyone--- Healing inside out is the way to do it. I hope the Remicade is your miracle drug. I hear you with the prednisone. I've been on between 80-125mg a day for almost three years. It sucks:(...
Hey again-- Penny-- Mark is right about the stockings helping. I was offered them many years ago and though, like him I was able to match them to my outfits, I had a difficult time wearing them. It...
Hey to all-- Jan I'm so glad to hear from you and so sorry about the hospital stay! Is there anything you need or want? OMG....the heat here!!!! do you have a/c? Do you need a unit? It is supposed to...
Hey-- Thanks for the concern Penny but I live just a few miles to the hospital. Mike -- Welcome ! Sorry you have to be here but glad you found us...Thanks to Penny:) It sounds like you have been...
Hey-- Penny I'm glad you are feeling better. Yes, I do possess I form of "grace "that rarely is matched. Sorry we have it in common. I told Penny about a fall from a ladder that hit my leg and now I...
Hey-- Penny and Jan- I sure hope you are doing better this am. Real quick, there are clinical trials going on for folks with PG and Chrons. ClinicalTrial.gov Peace--Willow...
Hey- OH NO...Jan...I'm so sorry you are hurting so much:( Why did they mess with your wound? Did they think it was infected? I don't get why wound clinics keep prolonging pain?! All the literature...
Hey-- Kimike---First I like that...Kim + Mike= Kimike:) Clever and telling! You two are totally emeshed!!! How wonderful! How long have you been married? I admire your dedication to each other. I'm...
Penny-- I forgot to ask...do you still have man legs? Peace---Willow...
Hey to all- Iam so so sorry that I didn't post yesterday! It wasn't for the lack of trying! My computer is having issues and no amount of encouragement or threats have helped. It may also be operator...
Hey Jan and Penny--I will call in the am for directions. I have an appt that should end about 10:45 then I'm on my way!!!:) I might be off by 10 or 15 mins but I'll see you then! A nice lunch...how...
Hey to all-- Penny and Jan--I'm looking forward to lunch. Penny, what time do you want me to pick you up? I'm flexible. Norma- HA! I just told my son what you said about deer hunting in Alaska. He's...
A humble hello again- Kimike-- I feel like crap for making someone feel unwelcome:{ It is hard enough to feel alone...painful beyond belief to feel abandoned! ) Kimike- what is your status today. How...
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Hey- Miss Camper--sounds like you have been through it and then dragged back through it a number of times! I'm so sorry:( Out of curiosity, have you ever had low magnesium or potassium levels? How...
Hi all- Jan-- The mall would be great! I've never been there but am sure I can find it. I have a very competent GPS that I rely on to find my way to my mailbox:) What enterance would you suggest we...
Hey all- Penny- I hope you had a good appt today and that you don't hurt too much. I can do lunch on Monday if that still works for you and Jan. Jan, do you know of a good place to meet? I'm not to...
Hey to all- Penny--so happy to hear about the shrinkage!!! Yippie!!!!!! Take and enjoy all you can get! The Good Lord knows you deserve every little bit you can get! Good on you:) I still hope this...
Hey Penny-- I'm so sorry that you have taken ill again. Sounds like a crappy weekend. I wasn't on cyclsporine that long and don't remember if it made me sick. I do remember the seizure,however. I...
Hey-- I sat in the sun with my wounds fully exposed for about 15 glorious minutes! I love being out in the sun! We moved here from GA and I so miss the extended summers. I swam probably 300 days a...
Hey again /community/emoticons/blush.gif Has anyone had any luck in sitting in the sun for a few minutes a day? I'm going to try that now...we don't get much in the Seattle area. It has been...
Happy Grandma- I can understand why you are so happy!!! My goodness you have been blessed!! Twelve grandchildren?! How wonderful! Do they live near you? about your boot...can you walk on it? Do you...
Hey Mark- What is an acticoat/profore? never heard of it. Willow...
A BIG HELLOW to all the new members-- Penny, I hope you were able to get some rest today. PG is challenging enough rested...impossible without sleep. You told me about how your clinic cleans and...
Ouch.... My leg hurts...I am tired...I feel a bit sad:( I did get a small nap in today and feel a bit better. Thanks Penny:) Sadly, my leg is bleeding through the dressing and oozing Silvedene out of...
Hey to all- I am so looking forward to lunching with Penny on Friday! I wish we all had someone we could go out with and support. Who knows, perhaps, we'll all meet at a convention one day! I took a...
Hey Penny- Want to go out for lunch next week? I live in Redmond!!!!!!!!I can't believe it !!!I'm glad you MRSA infection cleared up. You sure have been through alot. I was reading you post about...
Hi Penny- Thank you so much for having the determination, will and skill to create this space for all of us PGers. I'm sorry that you are suffering with this but am grateful to you for reaching out!...
Hi Thanks for the welcome! I was diagnosed with PG about two years ago. I have tried Humira,cyclosporine(has a seizure),Remicade(had an infusion reaction) and Dapsone. I am currently taking Emrel 2x...
Yeah!!! Thank you thankyou thankyou! I finally found you! I've been floundering in cyberspace. Finally, I connected! First, I've been reading about all of you and am amazed at your strength and...
Hi- I'm new to this forum and am having difficulty connecting. If by chance I hit...wow... I am so hopeful. I have never met anyone else with PG. You are all so amazing,vital and strong. I was...
Hi- I'm new to this forum and have been unsuccessful in connecting. I was diagnosed with PG about two years ago and was thrilled to find this site. Even though I have not been able to make contact I...