So my daughter just received her second loading dose of Remicade. Both times she received Remicade she suffered bloating the next few days after. Is this normal? Both times she has vomited because of...
http://www.annalsgastro.gr/index.php/annalsgastro/article/view/639/476 "Mastic gum is a natural product produced by trees growing exclusively in the Greek island of Chios. Its aromatic and...
Daniel...You might be in a bit of denial ;) I think the biggest reason why so many doctors are now looking at Remicade, Humira, and Cimzia is because there is research showing that being aggressive...
We started my daughter on Remicade last Friday the 26th. She woke up on Saturday and said her stomach felt different. Our big problem now is that she is bloated and burping with sour taste and...
If the inflammation is controlled by the Remicade, will nutrient absorption still be a problem?...
My daughter has an appointment with her GI Friday along with her first Remicade treatment. One of my greatest concerns is nutrient intake. I have mentioned to the GI doc that I want these tested. My...
We had the scope done this morning and unfortunately the inflammation is still there and possibly worse. The dilation still is holding up though. Again, after much research and listening to webcasts...
My daughter doesn't seem to want to be heavily involved in any of the decisions right now. I think there are two things going on here. One is that since she is young (14) she is in a bit of denial...
Well, I suppose it's possible EMom. Where her Crohn's is located is so different than most, her symptoms are not typical of Crohn's, more like GERD. We will find out if she has inflammation on Friday...
I guess I am worried about things that are posted here, lupus symptoms, lymphoma, and such. I feel much better after really assessing the statistical risks and listening to the webcast this...
You can say that again gachrons!...
Thank you all. the nice thing is that her GI called and wants to do another upper scope this Friday to make sure the Candida has disappeared. I think it will at least let us see if her inflammation...
Yes she is. It hasn't done anything for her, it seems. Now we are taking it out of the capsule because she is on Prevacid....
My daughter's GI has recommended that she start Remicade. As I have mentioned in the past, she has just had her pyloric stricture ballooned successfully and feels really well. We have not done any...
Thanks again for the information. BeeSting it is nice to hear of someone who has the type of Crohn's she has because the symptoms are so different than those of others. It makes it difficult to find...
We had a successful dilation yesterday. This was the first time ever that her stomach was empty going into the scope so it is working. After no real answer again from the doc about Flagyl I was...
Her symptoms at the beginning were very similar to GERD. We had a scope done and there were two ulcers, one in her stomach and one in her duodenum. She was thought to just have h. pylori. When that...
Thanks to all for the responses. I have read there are some natural ways of controlling Candida and hope to use them. Our GI doc has never mentioned that she has C. Diff. when I previously asked him....
When I asked the GI doc why he put her on Flagyl, he said it was just standard for her area of crohn's (in the duodenum). I have never seen this in any research I have done however. Right now the...
Our GI doctor put my daughter on Flagyl (still not sure why he did this in the first place) and now she has candida in her digestive tract. He has started her on diflucan. She was supposed to have...
Monte, I can certainly understand where you are coming from in your posts. It has only been just a little over 3 months since my daughter's Crohn's diagnosis and I face some of the same concerns and...
My daughter just had a pyloric stricture dilation done and I was wondering the same thing today. I didn't have an opportunity to ask the GI doctor. It's good to see that you are getting relief....
Thanks Nanners. We have had two scopes started and they were unable to do anything because her stomach wasn't emptying. That was frustrating. So sitting there watching and praying they can do...
Today my daughter was able to have her pyloric stricture dilated to 10mm. He was also able to get past her stricture and look at her duodenum. It has been quite awhile since he was able to do this....
Nice! Thanks for sharing....
My daughter mixes her miralax with cold drinks like juice once in awhile, but it takes slightly longer to dissolve. It doesn't seem to alter the miralax and since it has no taste, it doesn't affect...
My teenage daughter just had one last week. She also said the taste was better than the other. As lamb61 said, it does not take long for the actual scan. It takes awhile to drink the liquid and get...
Thanks Ides and crohnielass. I have seen some say they still take other drugs with Remicade. Why is that? Her GI has said she should be able to go off the other two drugs she is on once she starts...
My 14 yr olddaughter has a pyloric stricture and her flare up hasn't died down with other meds so we now go to Remicade. At first I wasn't happy to go to this without trying 6MP, but I happened to...
The GI just called me and said he consulted with several other GIs and they have concluded she should start Remicade. When she was first tested, her ASCA numbers were the highest he has ever seen. So...
Thanks pb4. I have read that article, which is why I was curious as to why she was placed on Pentasa and now Flagyl. I am about two hours away from two very good medical hospitals. Yesterday I...
What would be the purpose of Flagyl in this case? I don't quite understand why it is being prescribed. (Of course that will be a question I ask next week)...
So my 14 yr old daughter was diagnosed with gastroduodenal Crohn's this past Feb. She was on pred. and Pentasa and seemed to be doing much better. Last Sat. we did a scope one week after her final...
Thanks EMom. I found a store that carries some ultra-enzymes and I will try that for my daughter. They also carry some refrigerated probiotics and she is willing to order any I would like....
If I remember correctly, she was on protonix in the hospital. Yesterday evening she started feeling better and this morning she said she had no pain. We looked at her food diary and she said the...
Emom, what probiotic and enzyme do you have your son on?...
Sorry Nanners, I forgot to mention she has been on Prevacid for a few months now....
Myralax is now over the counter. My daughter uses it. It is a natural laxative that is made up of Polyethylene Glycol 3350. It is supposed to be gentler and nonaddictive....
Are you taking anything for the constipation, like Myralax?...
My 14 yr old daughter has been stepping down on prednisone and just recently went from 10 to 5mg. Her location of Crohn's right now is in her duodenum. After a few days (Sunday) she was bloated and...
One more question I have. I forgot to mention she is taking MiraLAX. She has never had any problems with her bowel movements, but he has her taking it once a day. Does this cause any problems?...
I talked with her GI and he suggested another Prevacid daily for a few days to see if it helps. Crossing my fingers and hope it helps....
So according to what you are saying pb4, she should not be on Pentasa since it is pH dependent?...
My 14 yr old daughter was diagnosed with gastroduodenal Crohn's about a month ago. She has been stepping down from 40 mg of prednisone and is on 20 mg now. She is also taking pentasa and one prevacid...