I lovvvvve the strawberry ensure, tastes like a strawberry milkshake i used to have one for breakfast every morning - deeeelish...
I see Dr Lloyd Mayer at Mt Sinai. He got me into remission very quickly & is very patient. I believe he is head of immunology & gastro. I know he is very involved with CCFA & their research. Hope...
I definitely gained weight when i was on remicade I had been the same weight prob since college (im 30 now) & with every treatment i would put on a few pounds (im pretty small framed so those few...
ugh - sorry dont give up hope it will happen when the time is right...
I assume this means so far so good with the baby on board!...
Good Luck - Im sure it is just way too early & everything will be fine Try not to think about it & just relax, watch some bad reality tv to take your mind off of it! tomorrow will be here before you...
Yay - Congrats!! Im so excited for you & glad everything is going smoothly!! Keep us posted...:)...
i was on remicade for 6 months. i probably gained about 2 lbs with every treatment. It was used as a temporary treatment for me to get me in remission & it worked fabulously. since being off of it,...
HI Bluize - congrats!! I know you have been trying for a while & have been through a lot. Try not to overthink too much, i know easier said then done, & just enjoy that you are preganant & in 9 mths...
I am with you lilchronie, just wasnt sure how to say it with out sounding like a drunk. We are monitored so closely on these drugs, that if our kidney wasn't behaving properly it would be caught...
absolutely!!!! .........:) when i first got sick (about a year ago) & was unmedicated, didnt know what was going on, i tried to refrain as it definitely did not help my symptoms. But now that im...
I know this has been discussed ad-nauseum but it really is such a hard decision a little background - i was very sick about a year ago. Luckily my crohns diagnosis came a lot quicker then it has for...
Isn't funny how even when you know all the facts, you still second guess everything?? ie, everything you read/hear says healthy mommy = healthy baby, regardless of what meds you are on - yet we still...
HI Bluize - Just wanted to lend my support. I am in NY also, but go to an IBD specialist out of Mt Sinai. I have been on all the heavy meds (remicade, & currently on 6MP only) In order to ease your...
I was on remicade for 6 months to get me into remission & have been off for almost 4 months now. Using 6-MP for my maintenance drug knock on wood - so far so good! :smilewinkgrin:...
Thanks - I have actually been on 6-MP for about 8 months & just had my last remicade treatment about 3 months ago (was only on that for 6 months to get me in remission - which it did amazingle...
Hey all - so i am coming down with my first cold since starting all these drugs...:( i used to overload myself with vitamin C & things like that, but im thinking those kinds of things probably wont...
New York, New York!...
I have been taking remicade for about 6 months & it has been a complete wonder drug for me. The only side effects i have had is weight gain - but nothing extreme. It put me into complete remission...
i made the switch from Asacol to Lialda a few months ago. It was pretty seemless & i havent noticed any side effects Taking it once a day is obviously great as well!! Good Luck with everything...
I cant tell you from personal experience - bur from conversations with my doctors (both Gi & OB) they seem to think that you are better off staying on the meds. Healthy Mommy makes a Healthy Baby!...
I did really well on remicade (i seriously love the stuff!!) after taking entcort - I started weening right when i had my first dose & did it rather quickly - 6mg for 3 days Then 3mg for 3 days then...
i actually just ran a 1/2 marathon this past sunday, unfortunately i hadnt been training much so it was pretty painful. As with everything with this disease, everyone is different. When i was first...
I LOVE Remicade - I just started taking it 4 weeks ago, so i've only had it twice so far........knock on wood & hopefully i wont have any future reactions I felt better almost immediately, within...
I do have chron's (this is chrons site right??...:)) was diagnosed in May & had not gotten under control with my regular GI & GP, so went to a specialist his bed side manner is not the best, but he...
Dr Lloyd Mayer - out of Mt Sinai he is the head of immunology (chrons is an auto immune disease) & Gastro He specializes in chrons if you want the best, this is it........atleast accoording to all...
Hi All, Just wanted to give an update. I had my first remicade treatment yesterday & it went really well. Other then having to sit there for 3 hours it was a painless experience!! i was feeling...
Thanks Aussie Girl - this is the first i've heard of sun sensitivies from 6MP - Im glad im not just crazy!! i am surprised they dont list that on the pharmacy insert or most places i've looked online...
I quit just about 2 years ago & i also did it cold turkey. It is def not easy but totally worth it! i had tried the patch a few times previously & always went back after a few months I think after...
is a pinpoint red spot the same as a blister? i will give my prescribing doctor a call today.......they have def gotten better but are far from being gone...
Hi Happy - Well my derm was pretty useless. My regular dermo wasnt in yesterday, so i saw someone else in the practice She did a biopsy which they said would be able to tell them if it was an...
so i spent the day at the beach sat I wore sunscreen, got tan, a little color, but definitely not burned By sat night, sun morning my arms & chest were covered in blisters. Has this ever happened to...
I too have gained weight & only around my tummy area - While it hasnt been much overall, it is enough for me to notice It looks like my tummy is always bloated Im not on Imuran, but i am on entocort...
You guys are making me excited to try this. If something can help relieve symptoms & feel better its def worth a try!...
I actually just started looking into this & am seriously considering going. can anyone rec an accupunturist in NYC?...
Im sorry you are not doing well on the remicaid pr glo. Hopefully it will turn around soon as it seems a lot of people really swear by this drug. Im going to keep my fingers crossed for now - hope...
I am currently taking Lialda for Chrons - subsituted it for Asacol for the same reasons - only have to take it once a day I havent noticed any differenes in my symptoms since switching so i have to...
Thanks all - i actually started taking the pills with dinner & i think it has definitely helped. I haven't felt as bad as i did after that first day when i didnt have much to eat the night i took the...
Thanks - Its great to hear that this has done the trick for you guys - I hope it works as well for me...:) do u feel like as good as you did before being sick?...
So, I just scheduled my first ever Remicade appointment for next Thursday. I am excited by the thought that I could start feeling really better soon but scared at the same time. How long did it take...
realistically its prob from the medications - but considering my lifestyle/eating habits havent really changed..........its the only explanation i can come up with for the record i am small to begin...
This is a really scary theory for me - I am supposed to be starting remicaid fairly soon & the complete vanity in me would hate to have this side effect I have already gained weight since having this...
My GI wanted to do another scope & i was totally against it. In my opinion if you are feeling good & your blood work doesnt show anything its a pretty safe bet you are in remission. but that doesnt...
SO i took my first pill last night before bed & woke up this morning feeling terribly nauseous anyone know if there is an adjustment period & will this pass eventually? I don't know if i can deal...
i have only had this disease for about 8 months, but have always been rather slender & had a pretty flat tummy. I have noticed that i my tummy now looks constantly bloated & has for a while. So i too...
I agree with LMills - i really like the ensure shakes - strawberry is my fave - they taste like a strawberry milk shake & have tons of fat & calories to help you put on some pounds!...
NOt sure what my calorie intake per day is - I excercise a lot (run, yoga, etc) so i wouldnt be surprised if i meet the 2000 calories a day as i need the extra energy plus i love my sweets! I am 5'4"...
Thanks Guys - I was beginning to think that i had asked something completely taboo & inappropriate To reiterate, I am by no means a heavy drinker, but that doesnt mean i dont like to partake a little...
Couple Questions 1- when u are in remission are you able to handle alcohol & i dont mean getting completely trashed - but a couple of casual social cocktails w/out feeling like u want to die a few...
Hi Petite - I am doing the NYRR 1/2 in queens in Sept - my consoliation for deferring the NYC marathon until next year!! I have looked into Team Challenge & was considering waiting to do the napa...