Thanks for your response. I am going to get some time on the books with the gastro since this pain just keeps happening and now I find myself unable to go to work this morning because it persists. I...
Have you had a hysteroscopy where they look inside your uterus? I have severe endometriosis but what drove me to finally have a lap and hysteroscopy was this constant bleeding I was having that was...
Hi folks! I have been gone for a really long time...like 9 years! So hello and I hope you all have been well. Long story short...I was diagnosed and treated for Crohn's disease in 2007/08 and then...
Hey All, I have been a long time and I just wanted to thank everyone again for all of your support over the past few years. I finally got a diagnosis and it was not crohn's or ulcerative colitis....
Hey Chatter...good luck with your scope tomorrow. Prep is never fun. I just had a scope and upper endo last week and it was a different prep for me than I was used to since I just recently changed...
I should tie some jingle bells to my clothes so I make little fairy sounds as I bounce around the house :)...
So I went for the test and luckily there was NO barium enema involved. For whatever reason they just want you really cleaned out for the test. I also, thankfully, did not have any air blown into my...
I take 2g a day. So 4, 500mg pills twice a day. I think the max is 3 but some go higher....
So I have a small bowel follow through tomorrow morning and I am not quit sure what will be going on. Now I have had 2 of these before and each time I was told to not eat or drink after...
I have been on Sulfasalazine for about 2 years. Side effects have been orange pee, slight headache, and nausea when in the sun for too long. Other than that it has not been a problem for me. Good...
I am overweight as well. Ironically, my first diagnosis was Celiac disease and the reason I went to the doctor in the first place was because of uncontrolled weight gain. I went from 115 to 135 in a...
I have internal hemorrhoids and my "Dr" was pretty sure that my bleeding issues were related to my hemorrhoids. However, its not just fresh blood there are usually clots as well and the water in the...
Yeah I agree that it would be good to give it sometime for me to cool off a bit. But what gets me so upset is that I would not stand for someone to talk to me like that at work or any other place and...
A few months ago my Dr. discussed with me the possibility of going on remicade. I am not so keen on the idea because to be honest I don't think I am sick enough and I don't want to use the strongest...
Argh....I hate pain. I have so much pain so often that now I try to get into a meditative state to get through it. I think about happy places like my husbands arms. I have abdominal pain but also...
Dr. Lichtenstein or Dr. Osterman at University Hospital in Philadelphia. You could also check out the Princeton Healthcare System....
Rice cereal, yogurt, ensure, home made gluten free banana muffins (no nuts), ice pops, baked cheetos, smoothies made of bananas, yogurt, honey and strained strawberries. No meat....
jeanneac I am curious, what kind of enzymes are you taking? I just started taking some pancreatic enzymes this week and they are giving me insane gas :( but I think they are helping b/c BMs have been...
Nanners...I know you said you are not gluten intolerant but bagels have TONS of gluten in them...way more than your standard loaf of bread. Additional gluten is typically added to the flour that used...
So I am wondering if anyone has an suggestions related to gas that occurs about 2-3 hours after I eat dinner and goes on all night and into the morning. I started having this problem in April and I...
I just got an iphone a few weeks ago and my husband send me a funny app called "Coverup". Its a bunch of bathroom noises like water running or hand dryer. The idea is to turn them on when you are...
Every time I go on prednisone the hair on my head gets crazy. Within about a week on the high dose my scalp gets really greasy which means by 2pm my hair is all oily and gross. I have to shampoo...
My docs office recently posted an email form on their website for patients to use. I have not used it yet so I am not sure if they would be responsive or not. They have also never mentioned it or...
Thanks for the replies. I am in the King of Prussia area....
I am looking for a new GI in NE Pennsylvania and was wondering if anyone lives in the general area and has any suggestions? I appreciate your help!...
There is a company that makes a lot of different awareness bracelets. I wanted a custom bracelet celiac/crohn's mix and they were able to make it for me...nice people. Here is the site...
See we are never alone in our fun :). The only time I get a break is when I am on prednisone or heavy doses of pain meds. Other than that I am up at 6 am to allow for extra "special" time and I leave...
Ugh I hate mornings. Within a few minutes of waking the fun starts. I go, take a shower, I go again, do my makeup, eat breakfast, go again, dry my hair, go again, iron my clothes, and if I am lucky...
Hey there....mmm mmm mmm nothing like some barium. Sorry you have to go through this test. The trick I use to help me get through them without gagging is to use a really big wide straw (the kind you...
Well I went for it and had the sucker (or more appropriately "pumper") removed. As expected I am sore but glad they were able to do the surgery with the new single incision procedure. Just one cut in...
Thanks for the replies. I don't have any stones so they suspect I have a chronically inflamed gallbladder or acalculous gallbladder disease. My GI thinks that it explains some of the random non flare...
I am scheduled to have my gallbladder out this Wednesday and I am sitting here worried that it may not be the right choice. A few months ago I started having these sharp cramping pains in my...
I was diagnosed with Celiac in 2005. As a kid I had stomach trouble that a GI chalked up to me being "stressed out". So for years upon years I always thought my stomach issues must be related to...
honestwoman50, Yeast is sometimes a problem for some Celiacs. I believe this can be checked with some testing. Be well....
I also hope that your son comes around to realizing that the gluten free diet is really important. I also have celiac and crohn's disease and stick to a strict gluten free diet. Cheating on the diet...
Bookgal77, I would probably call your GI and let her/him know about the test results. It may be a good idea to get some labs done to make sure everything is ok. The medications we take can cause all...
Hi There, Do you have any trouble with your monthly cycle like irregularity? PCOS (polycystic ovarian syndrome) can cause hairloss in women at any age. I apparently had this condition for years and...
I have this issue all the time...corn, sugar snap peas, lettuce...carrots even. I do know that is pretty common even for people who do not have CD to pass some undigested food in their stool. For me...
Anyone else the only one in their family with these issues? I am really starting to think I am not related to my family. No one in my family has crohn's, celiac, or PCOS. The closest thing is my...
I only took one dose today so far...I see the doc on Wednesday and I have a whole laundry list of stuff for him! LOL. He is ok with my using celebrex from time to time for my arthritis so long as I...
Not sure about the ankles hurting...I would call the doc if that keeps up. I tolerated pred pretty well when I was on it. I took 40mgs and then a taper down to none over a period of 4 months. A big...
Ok so for the past 3 weeks I have had a terrible time in the bathroom. I have been having on average 7 bms a day and tons of rectal pain, some bleeding and mucus. The rectal pain has been so bad the...
Ouch! I am right there with you PinkFlipFlops. I constantly have this issue...in fact last night I could not fall asleep b/c my tush was so sore and throbbing from all the inflammation and hemmies. I...
I would suggest drinks like ensure and boost to make sure you get some nutrition while you are on the liquid diet. I like to freeze my ensures for about 1-2 hours so they are kind of like a slushy...
I'm the same way littlemissmuffet. As soon as I wake up and get out of bed I have to go and it carries on that way for the next 2 hours. By the time I get to work I feel like I have been run over by...
Just curious....does anyone else have a terrible time with BMs in the morning? I go the bathroom an average of 5 times in the morning within a period of 2 hours give or take. I feel so horrible...
Thanks for the replies. I see my GI next week and I am going to ask about c-diff. I was tested for it but that was 2 years ago so it might be wise to have that run again. I know I have bacteria...
I keep having these painful urges to have BM and when I go to do the business nothing happens. My stomach has been off the wall gassy in the morning so as soon as I wake up I have to have a BM. Then...
Hi There dinkydee, I know what you are going through with the weight loss issues. I used to be a normal healthy weight and then I lost about 20lbs and remained there for about 2 years. Then all of...
Thanks for all the info everyone. I am going to talk to my dr. about the injections and the sublingual b12 . I started taking regular supplements last week for both the folic acid and b12 but I am...