It never fails to amaze me that every time I log on to our web site, some one has a question about something that I am going through. I too am having tooth issues. Out of nowhere I had a tooth that...
Hi Guys, I have been on Cimzia and 6MP together for about 5 months. Like you JK, this is the first time in over 30 years that I am not running to the bathroom 20-25 times a day. Finally I am starting...
Thanks everyone. Hey, LBJ, how is the Cimzia working for you? I hope you are feeling so much better. Darilyn...
Hello to my Fellow Crohnies, can anyone help answer this question for me? Since I am on Cimzia is it safe to have a flu vaccine since the flu vaccine contains live material? The warning on the...
Hi LBJ, as my husband always says "try to look on the bright size" and of course that's easy for him to say as he isn't living with Crohn's only with me. However, you did say that your trips to the...
To All My Buddies, I actually have just found out that it is NOT MS. I seem to have developed a rather large and what sounds pretty hideous to me, a persistent abnormal T2 left sphenoid sinus cyst....
Dera Vandy and Nick, thank you both for your input. I am still waiting to hear my test results. The waiting is the worst part of all of this. Your posts are a great help to me as I need to factor in...
Dear Flowery, thank you so much for your reply. You really have helped me. I still haven't gotten an answer back so I don't know yet. To be perfectly honest, I haven't even looked up any information...
Hi, Cimzia has been a life saver for me. It started working almost immediately. I also take it with 6MP. However, there are some serious side effects. I have become anemic and have had a UTI. I'm not...
As I write this, I have just returned from my Rhumri. After asking the usual questions and doing the neurological exam, he looked at me and my husband and said "when was the last time you had a brain...
Good Morning, I am a 30 year Crohnie and a 30 year Colitis diseased woman who coincidentally isn't worried about getting pregnant because I am blessed with a beautiful grandson who tuns 4 years on...
Hi Lei, I hope that you will find us all willing to listen to you and somewhat helpful to you. I am not in any way military but my one suggestion would be to get to a doctor and try to get on some...
My heart is breaking for you. When you are healthy and strong it takes all the strength and energy to cope with a serious breakup; but when you are so incapacitated I really can't imagine how you can...
Hi Gail, I have been on Cipro for the past week for a UTI that may or may not have been caused by the Cimzia and or the 6MP. Nevertheless, the Cipro has completely cleared up the UTI and I have had...
Hi, just started Cimzia 3 weeks ago along with 6MP and so far so good. I haven't noticed the side effects that you are talking about but as I said I only just began so I will be aware for them. I...
Hi Gail, as you can see, you are not alone. It seems as if you are getting a chorus of hugs from your many well wishers. I want to add mine since we have an extra bond. I know exactly how you feel...
Hi, I love Cymbalta. I was originally put on Cymbalta for anxiety and depression etc. that I suffer as a 30 year Crohns and Colitis person. I began with a dose of 30 mgs. Quickly my Ryumi. raised it...
Took Stadol for years for miserable migraines. It's a nasty nasal spray that I took when I was in the throes of a migraine. It is quickly addictive and very difficult to come off of. I had to use it...
I have had Crohns and Colitis for 30 years and as a result of that I am now facing all the side effects as well. I have tried so many meds among them Remicade, Humira and both of them stopped their...
Hi, I never eat out because for one instance I do not eat dairy so that obviously includes butter. So for example, even if I was to order a steak and beg the server to make sure it was not cooked in...
I am about to start 6MP with Cimzia after having been on Remicade and prior to that Humira. I also take daily 24 drops of Opium, 12 Lialda and 2 Pamine as well as Sythroid, Cybalta, Flora Q, Topamax,...
Hi Holly, I'm so glad you're back. I've been really worried about you. Hi Nanners, Gail. I figured out who you were a while ago. I have such bad news and am so depressed. The Remicade stopped...
Hi Holly, every day I check to see if you have come back. I hope that you are ok. I miss talking to you. Please let me know that you are ok and are feeling much better than before. It would appear...
Hi Holly, good luck with your doctor today. I saw my GI yesterday. She was pretty much pleased and we shall stay the course for the time being and keep up the Remicade every 4 weeks for the time...
Has anyone ever done Remicade and Imuran together? I just read a brand new study somewhere that said that the results of the 2 drugs together were getting outstanding results. I have been on Remicade...
Yep, have done both, Probiotics,which I take every day and Pepto Bismol which did nothing. But thanks for the help....
Hi Holly, still waiting the MRI news. I have an appointment with him tomorrow. It seems like it is you and I with the Collageneous Colitis and Crohn's. No one else appears to have joined in but...
Hi Holly, I'm still here. How are you doing? I had another treatment of Remicade yesterday for the Crohn's . I had an MRI on my right hip last Friday. Rhumi thinks it could be a number of things but...
Remicade is the miracle drug for me. It's the first drug in 30 years that has given me any hope. I am beginning to have what I call "little nuggets of hope." And once in a long time they are little...
Holly, a flare is another word for a severe attack of colitis after you have been controlled for a while. I have not been in remission, or in other words had normal bowel movements, since I was 30...
I have Collagenous colitis as well as Crohn's. My GI has told me that there is no cure for it but she treats it with Lialda, Pamine and Opium. I also get Remicade for the Crohn's. When I had the...
Good Morning Ivy Et. Al. I have suffered from both Crohn's and Colitis for 30 long years. I ache for all of us because this is such a devastating illness and on top of all of that it is so lonely....
Yes, I have and it really isn't anything to panic about. I thought it was because of all the tools they use as they do the colonoscopy. If you've seen the actual tool itself, it is pretty long and it...
I never go below 30 or I panic. Double ply. Anyone ever try the baby wipers? I started using them 2 weeks ago when I was prepping for a colonscopy. I had them in the house for when my grandson is...
Dear Allison, my thoughts and prayers are with you. I hope that your surgery is safe and successful. When I read things like what you are going through, I feel guilty complaining about myself. Good...
I had the Cam Pill done last Friday and it took the entire 8 hours till it stopped blinking. I am sure I passed it but I never saw it. When I had to have the upper barium series done and swallow the...
I am on 24 drops daily. I take 6 drops, am; 6 drops noon and then 12 drops at bedtime. I fail to see what good it has done but my GI insists that she wants me to stay on it. My savior is Remicade...
I am experiencing all the same symptoms and also the Crohn's and Colitis have now caused extreme pain in my back, hips, knees and ankles. In addition to all the meds like the Remicade etc. the pain...
Hi Everyone, I started with Humira which never really did much for me. I didn't find it all that difficult to inject myself with the shot. After several months, and tons of other medications, my GI...
Thanks Guys, I guess I will be all right as long as I don't develop any new or different pain. I was thinking that it would pass within 24 hours but maybe that isn't the case. I have such yucky...
Ho Harry, yesterday I had a colonoscopy, an endoscopy and the to top it all off I ran over , not literally of course, and had the cam pill test. The test wasn't too bad after everything else but my...
Hi Harry, I'm having a colonoscopy, an endoscopy and the camera pill all done this Friday. My GI figured it was the easiest way to go since it meant only one prep. However, I thought that once you...
Thank you all for the input. The doctor suggested all three tests in one day so I would need only one prep. I've lost track of how many colonoscopies and endoscopies I've had but I've never had the...
Hi guys, I am having a colonoscopy, an endoscopy and then the doctor wants me to leave the hospital and go to her office and swallow the tiny little, at least she says it's tiny, camera pill that...
Thanks for input. I'm seeing the GI tomorrow. I have been ok since and I sure hope you are wrong. I have watched my husband go through a moving kidney stone and i want no part of that! Thank yo again....
Hi Tony, I am in a similar situation. I feel guilty for having asked for and received a handicapped parking sticker for my car. My Rheumi agreed with me, that with all the back, neck, knee, shoulder,...
Hey, congratulations to you. Any man that can support a Crohn's patient like us is a person of super strength and a super human being. I don't know what I would do without my husband who is my rock....
Yes, I am another Crohn's and Colitis sufferer with hypothyroidism. I take Synthroid 08.8 along with Remicade, Lilalda, Pamine, Opium, migraine meds, Lipitor, Vit B12 monthly shots and a ton of other...
Hi, I need some help from anyone who has been on Remicade. I have had my 4th infusion with no problems until the past few days. I have been experiencing a dull pain on the lower right side of my body...