Good luck guys!!! I am out. Will be in touch Penny!...
Oh no Willow, are we just supposed to be symptoms and disease without sharing the human side of us? Some times we need to smile about more then having a good day. Sharing stories helps that. UGH...
GEEZ Willow. OUCH! I hope the bleeding stops....
Sorry you are in so much pain. I read about that Hydrofre blue. It has not been tried on Mike. We will be moving to the Kingston area. We are originally from Long Island and all of my family is...
Penny, thank you so much for all the kind words. It helps not to be alone. I have told Mike of all the wonderful support here. He will get on sooner or later to meet you all! I hope sooner...
Penny, the docs want him out on perm disability. We will start that on tues after his colonoscopy. We are also going to put our house up for sale. His parents are selling theres also. We will move to...
Hi everyone. Mike's wound seems to be doing worse today. Lots of tiny pin holes, where it was all closed. They moved his colonoscopy up for Tues. I wish I could make this go away for all of you. It...
Hi Tammy, so sorry for your pain. I would definately go back to a doc again. Hopefully they can stop it or at least slow it down. Even though I do not have it, I know what a struggle it is. I wish...
Hi Guys, Jan I hope you are feeling better today. You also Penny. I did nails for years. I loved it. Then decided I wanted to be a bartender. I did that for many years along with management. Tell her...
Jan I am so sorry you are in so much pain. I honest do not think that these wounds should be rubbed at all. It is open flesh. I feel for you soo much. I hope the pain meds help and you can get some...
Jan, good luck today, my thoughts are with you. Mark, 32 years? Wow How long has everyone else been fighting this battle? Willow, Mike and I have been married for almost 6 years. He have known each...
Jan, Remicade was so good for Mike. He started it about 6 years ago. It helped his Crohns so much. They took him off when he developed PG, said it was no longer working. I asked the docs if he could...
original, Mike was on humira, then double dose. It did not help. Cimzia has slowed it down in my opinion. There is also a co pay plus program with that. I hope this helps...
Kiera, I love fat cats. The insurance battles (disability) are a job in themselves. I know what that is like. That alone is enought to make you sick. He has gone out on STD 3 times this year. The...
Hey Willow, we have mutts. Buck is 2 and Steve (she is a girl) is around 5. The name was decided before we met her. Thank you for the kind words. Cimzia is a new drug they found helps Crohn's. It is...
Thanks for the replies guys. I am glad you all were able to meet each other. It is great not to be alone in this. Mike has had Crohns for over 25 years. He is 45. We do not have kids. Well, sort of....
Now I feel embaressed for saying anything. I have been fighting this battle with pg along with Mike. I do not have it, been living it. He developed pg 2 years ago. Tysabri was the doctors drug of...
I see you all are going through so much with PG. I am surprised by the fact that how rare it is, and how hard it is to find support for, that you all were really not welcoming of a new member. One of...
SERIOUSLY!!!! Im so burned out on this!!!! *sigh* I mean come on ....I just think its a lil odd that my wounds have grown so much in just a couple of months when they were almost scrapping me on a...
Hi everyone. My husband has been fighting PG for nearly 2 years now. He also has Crohn's disease. I hope I can help a bit. A wound care doctor, besides the rest of them, plays a big role in this. If...