Don't take your meds 2 hours before and after you take Metamucil. It says that on the label....
I def get my vitamins and minerals. The water I drink is filtered by PUR and is in a plastic container with a rating of 7. I think it may be my meds that are giving me cotton-mouth and I just keep on...
So a few weeks ago I started charting how much water I drank and I tried to drink around 72oz a day. For about the past 2 weeks I've been getting thirsty all the time and have started to go to 100oz,...
I think Ensure is terrible for Crohn's. It's full of sugar, low quality (harder to absord, worse bcaa, incomplete) protein, and harder to digest vitamins. I prefer Syntha-6 (available at GNC, etc.),...
Probably a combo of being without food, drugs, and water for hours on end. Lately I have been waking up with my kidneys hurting and having to take a 5 minute pee. That and my tummy/intestines hurt...
If you have bruises on your body because you fell down after realizing your legs were asleep from sitting on the toilet to long (this has happened to me a few times lol) If your reading this post...
I'm not really sure if they really got worse everytime I got them. I would usually catch them early enough before they would get bad and I got used to what they felt like so it really wasn't that bad...
I totally feel you on the Hemmies they are a pain in the butt, I lived with them for years then asked my doc for some prescription cream and he gave me Proctosol and it has worked wonders!!! Ask your...
Just don't push yourself too far and make sure you know where the restrooms are everywhere you go. I say go for it as a vacation can do wonders for your mental health which can be a very vital...
Yea its usually almost always in the exact same area (left side forehead above eyebrow to hairline, one time it was a little higher though) although it may spread a little bit. I have a decent sized...
http://www.advocacyforpatients.org/ try and contact Jennifer Jaff, she know this stuff really well!...
If it makes you feel any better I cried really hard more than a few times in the past month (crohn's related). And I'm one of those men that never ever cries ever (last time I cried was like 5 years...
Crohnspatient go and Google what greatly reduces the risk of prostate cancer in men :devil:...
While I was at the CCFA they showed a medical study of people who had surgery and remmicade vs those who had surgery and a placebo (same type of surgery btw). The results were staggering patients...
I had a really bad Hemmie for over a year straight! I finally asked my G.I for some prescription ointment and he gave me Proctosol and OMG it was gone with the quickness (I feel like an idiot for...
I have crohn's and I have had the Shingles 15+ times in my life....and I'm only 23/male. I first got chickenpox when I was 5 and my first shingles outbreak when I was 7. I was dxed with Crohn's last...
CCFA seminars are great. Sorry about the "controversy" that's really just the person I am, and truth be told I already edited my post before I made this topic as to not start a major political...
I stay away from sugar, as do most people with Crohn's. I heard someone call it the opposite of hyperglycimia sp?. Crohn's and Diabetes would definitely be terrible together, but as far as I know I...
The CCFA stopped by my neck of the woods yesterday so of course I had to go! It was really good the day started off with the latest scientific news about IBD, as we all know IBD is genetic and...
Doc I feel the same way, I added alot of fiber to my diet and its made all the difference in the world. I even put on some weight (I'm skinny)....
spookyhurst check again the PSP has really stepped up to the plate with its game selection plus with cfw you can play ps1 games, emus (neo geo , cps2, snes, genesis, gba, etc.), plus it has internet...
I'm a male that used to lift weights before I got sick. Right now I'm slowly working my way back to weights using push-ups, pull-ups, other calisthenics, and there is always pain in my joints and in...
http://en.wikipedia.org/wiki/PlayStation_Portable , its just a gizmo that plays video games, movies, and music. Has a bigger screen than pretty much anything else portable besides a laptop, it's a...
I was on 3x10mg lortab a day, then went to 2x5mg lortab last infusion visit. It sucks the 10mg were barely doing enough and the 5mg do nothing. I also take bentyl but they kind of make me feel...
I always bring my PSP to the hospital with me for long visits. Movies, musics and games keep me entertained. I used to bring my Ipod till I upgraded my PSP to 32gb. You may like an Ipod touch, they...
I use the powder packets in orange flavor mixed in a glass of water, doesn't taste bad at all but, its only like 4g of fiber so you need to take it more than once per day. I also drink between...
metamucil and syntha-6 (best protein supplement I've taken and has 10g fiber per serving, don't take if your lactose sensitive) everyday for me....
Nanners, very interesting about stricturing type of crohn's just learned something new (thanks google). I usually take fiber supps when I get loose stool (my G.I says this means that there is more...
I know a couple black people that have crohn's. I have read that crohn's is more prevalent in Jews though. I am also the only member in a rather large family (I have no siblings but my dad has 7 and...
I have experienced similar symptoms. If what had happened to you had happened to me last night, then today I would be talking fiber supplements to either a. get me regular again or b. not get regular...
I've had 10+ remi infusions since starting early 09. No bad reactions except the first time I got a fever, just sitting there for hours at a time with a needle in your arm. My advice is to buy a PSP...
I've been there before although to be fair at the time I wasn't dxed with Crohn's yet but, was in full flare up mode. My parents (more story in other thread) told me to get a job in 2 weeks or get...
I know it amazes me what I've gotten meds for (like shingles which I've gotten 10+ times which is weird as its an auto-immune disease like crohn's) which feels like nothing now compared to crohn's. I...
Wow I didn't even know there was general IBD that was hard to dx. And yea I know Docs don't just give out pain meds but, it would just blow my mind that my parents would go to the Dr. and just...
So basically after nearly a year I decided to join a forum (after reading nanner's post I decided that this was a good one). I am a 23yr male and was diagnosed late last year with Crohn's although I...
I think if you didn't feel this way, there might be something really wrong with you....