With an Autologous "transplant" they do not graft another persons bone marrow, just kill off the patients Bone Marrow and stimulate it to re-generate. Sometimes the immune function does not come back...
Severcrohnsmom, I wanted to offer my support and say that I have a son w/ Crohn's who was in a similar desperate situation living in the hospital getting multiple blood transfusions a week from blood...
Congratulations Samsmom, it sounds like Remicade has really been working for you. It is so terrifying giving these drugs to our kids, and it is pretty easy for the worst-case scenarios to overwhelm...
My 3 year old son tried Methotrexate for a while. Didn't work for him, but it was well tolerated and if it does help your condition it is one of the better drugs to be on it seems as it actually...
Sorry to have brought this thread to a halt. I must have needed to vent the other night. Thank you Beth for your kind words. Here is my son when he was a little chubby while on Prednisolone. ...
Oddly my son used to have horrible breath when in a bad flair. One day I gave him a pro-biotic caplet to chew up and after chewing the caplet his horrid breath turned normal, almost slightly sweet...
My understanding of what might be called the "overdrive theory" is that there is a problem with the regulatory T cells, which means that the immune function is not able to turn itself off and...
My son exhibited symptoms at 9 months and was diagnosed at 2 years. In and out of hospital a lot and it has been very tough, but he is now almost three and is still here and doing pretty good. We...
I have a two year old with very severe Crohn's. The blood started for him at 9 months and we have been through he11 with this disease. The doctors won't want to settle on Crohn's as a definitive...
I don't know how bad your Crohn's is, but we took my son off of his Imuran (which wasn't working) and used LDN solely, and it is probably the biggest regret of my life. Did not work one bit and once...
My two year old son has severe crohn's. He was having the most horrendous diaper rash and we tried everything. All the creams etc. I finally got fed up and based on my reading of the Vit E enema...
Good advice so far. With all that pain it seems like you would be motivated to do a food elimination test. (http://www.webmd.com/allergies/allergies-elimination-diet) Common allergy-causing foods...
I have a 3 year old son with severe Crohn's, they think. We are at the point that the only thing that stops the severe bleeding is Prednisolone. The next drug to try for us through our regular docs...
Thanks everyone for your support. I will post when we get started on the LDN. It is very nerve-wracking because my son has been on prednisolone for close to a year now. We are always weaning of...
janicea, your post recommending Dr. McCandless' work prompted me to email her and she emailed back quickly and with lots of extremely helpful information. She helped formulate the cream and has...
Thank you for your kind words and for relaying your experience with LDN, LarryLu. It is helpful. Thanks for the added info janicea. I will update our experiences as we begin ldn for anyone interested....
Thank you janicea for that very useful info. The potential absorption problem in the intestines and Candida issues make sense in support of the cream. My son has been on Pred. most of the past year...
Thanks for the quick reply Janicea! My doc said he didn't trust the cream as much as the pills. You seem to have found the cream to work well. Right? Also, he has suggested we give my son (30 lbs.)...
After a flurry of posts about ldn and people relating how it was helping them, the topic seems to have disappeared from these boards. Is anyone out there currently in remission with the aid of this...
Thanks for the kind words everyone. He just had a stool culture which found nothing. We're always looking for c diff with the amount that he's in the hospital. We have been tested for all allergies...
Hi, My son is two years old and is in a major flare again. He just got out of the hospital in December. Was in for over a month on a corticosteroid pict line last time. He's had to be hospitalized...
So sorry about the tough time you've had. I'd say that the discipline you've developed, insight and ability to overcome such a maddening obstacle will serve you very well in the future. Hope you stay...
enen, Thanks so much for that information. We have met Dr. Heyman and he seems to be about as good as they get in terms of pediatric IBD. During my sons endoscopy his doctors were so shocked to see...
Thank you for your kind words of support. My wife and I are very frustrated with the difficulty of finding a diagnosis. We even talked to a hematologist today who was looking possibly for...
I was wondering if there have been any case reports on the boards or elsewhere of a seven-month old baby having UC. My son who is now thirteen months has a colon and stomach that is completely...