I have a problem with milk protein used in most ensure and boost products. But after closely looking I found that Ensure high protein has no parts of milk in them. I was the same as you and they were...
My son had all 4 wisdom teeth pulled last summer. They will give an antibiotic as precaution, especially since she is immune suppressed. My son was on Humira every 2 weeks at the time. One thing to...
Thanks guys for your support! It really does help. Huckleberry, thanks for the reminders to reach out. I am not good at that. Tanya...
My 17 year old son was just diagnosed with Crohn's in January. We started with Humira and Methotrexate trying to get it under control as quickly as possible. He is also on prednisone temporarily. The...
A little update.... My son is still in the hospital...day 7 today. Tests show that he has mostly inflammation. So the meds are not working so great. Though our doc has recent reports that it can take...
My 17 year old son was diagnosed with Crohn's this past January. Started on Methotrexate and Humira right away along with the dreaded prednisone. Well, the first few months are not going so well. He...
Hi Tom, I know exactly where you are talking about... I had the same lump for a couple of weeks while suffering from a sinus infection and ear ache. I also periodically get the same lump and...
I wish this could work for everyone....Sadly not the case....
Tom, Thank you for your reply. :) We have been able to wean down to 30 mg of prednisone and his moods seem to have improved. I am so thankful for that. I was a little nervous at first going all meds...
I have been wondering how your daughter is making out. My worst nightmare came true last month when my 16 year old son was diagnosed with Crohn's. I think I feel almost worse than he does mentally...
I take 1 packet of Questran every morning, then I add two quick dissolve immodium if I find I am going too much or if I feel those pre rumbles of a bad day. If I am having a bad day I can take up to...
Hi Dave, I have found my problems with foods have gotten worse after each resection. (I have had 3) I can eat all white or oatmeal bread products, oats, rice, pasta and lean meats. I can eat steaks,...
I have to agree with NCOT. Diet does not help everyone. I have tried the SCD diet. I suffered through 2 blockages while on it. I also did Enteral nutrition diets, once with liquid drinks, and when...
I grew up eating only what we grew in our garden and meat that was hunted ourselves or bought from the butcher. I do not think I a whole lot of contact with GMOs. I am one of 5 kids and I am the only...
I am so glad you have found some relief with the Metamucil. I tried it quite a few years ago on the advice of my GI. It caused me to go into a severe flare. Doc said it's about 50/50 when it us...
I found Remicade worked much faster than Humira. I felt a bit of difference after first dose of remicade . But when I switched to Humira after failing Remi, it took 4 months before I really felt a...
Hi, I started out with HPV myself. Went from mild dysplasia to severe and had a LEEP done. 6 months later I had mild dysplasia again, and 6 months after that I was severe again. The 2 Gyn said that I...
Tom, I hear ya about our health care system. To make matters worse I am in New Brunswick. You take what you can get. There are little to no second opinions, and wait times are usually long. I have...
For what it is worth. If these drugs were around when I was 19, I may not be 37 and have had 4 surgeries by now..... But on another note, even though your daughter is 19, your GI should still be...
NCOT, I had my 3rd dose of Humira just last week. But I remember my loading dose. It knocked me on my butt for a good week. I find it worse about 4 days after. The good thing is the second dose was a...
73monte, I guess we just have to live without looking too far ahead or we would drive ourselves crazy with possibilities. For me I am willing to do just about anything to avoid another surgery. I...
72monte, I know TNF blockers are scarey. But I have heard of great success stories of people being able to be on them for years. I was on Remicade for 1.5 years. I got relief after my first dose. It...
I suggest getting the vaccine. Everything I have heard about it says it is safe for immune suppressed people. I had HPV, and it is believed by my gyno and gastro docs, that me being on TNF blockers...
My bloodwork is almost always normal. A few years ago I was to the point of needing surgery after 6 months of elemental diet and biologics not working, and my bloodwork only showed minor...
I have two tattoos that are related to Crohn's. I have the CCFC (Crohn's and Colitis Foundation Canada) symbol. What we call the "Crohn's dude" I also have a semi-colon ( ; ) I have had 3 bowel...
I am taking Imuran. I never stopped taking it while on Remi or for surgery in hopes that I would get remission..... Cholestyramine and I don't like each other. It helps with the D but makes me very...
It has been a while since I have posted. I have been lurking though. I have had a lot going on since my surgery back in March. I do have a return of symptoms, but right now the doc isn't sure if it...
Hi Roni, i am low normal as well with my b12. My doc just recently upped me to every 3 weeks instead of 4 because I was having symptoms after the 3 week mark until I got my next injection. I do mine...
A lurker here....My 14 year old son has had epilepsy since he was 18 months old. The doc kept saying he will outgrow them. First it was by 9 years then 12 years then puberty.....on and on. Now it is...
Goodness I am 17 weeks post op with an 8 inch scar from belly button down. I can't even imagine doing any type of ab work right now. My doc told me atleast 6 months for anything vigorous. I am only...
Thoughts and prayers are with her!!!...
I just recently had a hysterectomy due to cervical cancer that returned after having the cancerous area removed by lazer. Likely cause of return was being on high dose remicade (or so doc thinks). My...
Nanners, Big ((HUGS)) I know it is so frustrating when we just are not the textbook patient our doctors want us to be. I wish there was something else they could do for you. Is there no way the doc...
Hi and welcome! I know for me sometimes joint pain is my first symptom that I am going into a flare. With me it is my shoulder and knees for the most part. I hope your flare can get under control...
Hi Roni, Pentasa and I do not get along very well.. It causes me great amounts of nausea!! Asacol does not work for me either.. I do take probiotics everyday... I am really feeling this is a flare....
I apologize up front that this might just be more of a vent of frustration.... As some of you may know I had a resecton back in March. (Now 14 weeks post op) things seemed to be going really well. I...
I have teeth that break or fall out with no cavity problems. Tends to happen more when I am not doing well or after a lengthy spell of a flare. My bone density is great as well. I had this problem...
I got a tatoo while I was on Remicade, Imuran and Entocort together. I had trouble with it healing properly and it toook a little longer than normal. I now have blotchy areas on it that need to be...
I have done the supplement route. It sent me into a 4 year flare and 2 surgeries in less than 3 years. I will not go without preventitive meds again. And really the hairloss is only temporary until...
I cannot Live without my coffee. I drink 2-3 large ones everyday. As long as I eat before my morning coffee all is good. :)...
When I was on remicade my lymph nodes would swell up around the 5 or 6 week mark. I had a bunch of tests done and all was normal. Now that I have been off remicade since March I have no more lymph...
Roni I am still having what I think is muscle pain sometimes too. Some days worse than others. Mine is mostly down near the bottom of the incision. It is a deep pain. I have tenderness on the upper...
Roni, I have been eating raspberries, strawberries, etc everyday for weeks now. No problem at all. I have found that the foods I think are going to cause me trouble end up not a good amount of the...
Roni, This past surgery was my 3rd resection. I had a colorectal surgeon this time around. She ordered high fibre lowfat and low salt diet right from the get go. I was very skeptical because of...
Roni, I was so hoping you would be doing better now. As you know I had the same surgery. I am still having lower tummy pain and some right side pain now. It is a deep pain but you cannot really tell...
I found that my allergies and asthma both improved dramatically while I was on Remicade. I have been off it for 3.5 months now and my asthma is just starting to be more active again. I did not notice...
I do not have any constant pain, but I have a lot of trouble with a lot of gas pain. I did not have that before, and I am hoping the gas problems will get better with time. Who knew gas could cause...
Thanks ladies ..... Roni I do remember you and have been wondering how you have been doing. I am 7.5 weeks post op now, but man it has been a battle!!! Started the day of surgery with up to 8 or 9...
I resently had surgery for hysterectomy and bowel resection. Following this surgery I had 5or 6 days of multiple severe seizures. After consultations with surgeons and neurologists the neuro has an...
Nanners, I wish I could offer you advice. But having troubles with coworkers not understanding is one reason why I now work for myself. it looks like some others have given some good advice. I really...