TL;DR- looks like I developed nasal Crohn’s after years of Crohn’s remission. Looking for treatment options and support. I understand Nasal Crohn’s to be pretty rare, but also underreported. I was...
So, due to my recurrent staph infection, I have been advised not to take my 6MP and Simponi until the infection is gone and doesn’t come back. My GI said it could make me worse if I took it. I am...
Yep, totally a thing. It feels very weird if it moves. Good luck with it!...
Hi All. Long time, no post. I had been doing relatively well with the Crohn’s for a long time. In fact it’s been the Fibromyalgia which has given me the most trouble of late. This new issue started...
I have recently discovered that I probably have hypertonic (too tight) pelvic floor muscles. This seems to have lead to pain with sex and even tampon insertion, difficulty voiding my bladder, and...
My good friend was recently (within the last two years) diagnosed with EDS Type III after YEARS of not knowing what was wrong with her. She was told she had EVERYTHING under the sun. Of course, it...
I don't read any blogs- except some on Patheos, which is not health related- with any regularity, but I do search for specific topics from time to time and blog posts usually come up as part of the...
I use Stevia or Splenda in things like coffee/tea, always have. I have never seen a correlation between artificial sweetners and my own FM....
@pb4: I can't believe that the fistula tract doesn't heal! It's got to heal all the way through, or it could come back really easily, right? Maybe they are that prone to come back and I just didn't...
I bet the "lemon" flavor is not the part that improves well being. :/...
Interesting, I didn't think about that still being colon. Maybe near my TI? Either way, it's new pain and I'm a bit bummed. I just hope the Simponi keeps on keepin' on here 'cause I there's not much...
So, I had what my docs thought was a galbladder attack at first. Some hallmarks of GB issues were present, but ultrasound showed no issues. The pain felt exactly like my regular Crohn's cramping, but...
I think the main thing is that there's nothing in your stomach so you don't vomit, for that they do liquid diet prior. I don't remember having to do a bowel prep either-often they are removing things...
Latuda has a patient assistance program with cost. My copay would normally be $50 for non-formulary brand name and the assistance card brings it down to $25. Sunovion is the company I believe. Just...
I have a colostomy, so I can't really answer your pouch questions, but I would like to echo what's been said about cognitive state. Stress- both emotional and physical, as well as depression can...
Yeah, I do feel like I am gaining some weight. I had started exercising and eating better and lost 5lbs and then upped the Latuda and now feel like going backwards. So lame. Just another thing to...
I don't think people with BP are any more or less likely to get a headache than anyone else....
Latuda is working fine, though the 350 calories thing is annoying. It makes me tired/loopy/forgetful a couple hours after taking it so I have to take it at bed time, but that also means I have to eat...
I'm 5 years PO, I don't avoid anything because I'm afraid of it blocking or affecting my ostomy. I don't eat Crohn's trigger foods, since the colostomy wasn't a cure, but I eat veggies, popcorn is my...
I'm so sorry! My kitty is 17 and I'm worried about her health failing. I would also like to throw in some support for thinking about putting him down. It's totally your choice, and no one could ever...
@ phixgrrrl: NDs are NOT always MDs- it’s not required in every state that a person be an MD to call themselves a doctor. I was only noting that for anyone who didn’t know. Just because the word...
I am not about herbal meds at all, so hopefully someone else might have a suggestion. I would suggest you look into stress relief tho. For myself, I use meditation, journaling, therapy, and deep...
Well, to me it sounds like you have a stricture- this is a narrowing of the space through which watse travels. It's caused by recurrent inflammation. Your disease is severe and a stricture can be a...
Make sure you have some liquid in there too! You can avoid using ice if you use frozen fruit- don't thaw, just put the frozen fruit right in. I do- whey protein, frozen fruit, flax/chia seeds, light...
Transit time varies from person to person. Obviously, there is a "normal" range which people fall around and slow is based on that. It really is whatever is normal for you. If your mom has always had...
Technically, it took 7 years to get my dx. I first had crohn's pain/symptoms when I was 10. They were transient and multiple peds said it was just a thing that happened and to avoid trigger foods...
IBD can take some time and sometimes a lot of frustration to diagnose. Did they take a biopsy when they did the colonoscopy? If so, what were those results?...
Just wanted to introduce myself since I may be responding to threads. I am new to this board, but not new to HW. I have previously spent most of my HW time on the Crohn's disease and ostomy boards....
When I was 17 and diagnosed with Crohn's and a pancreatic tumor, I grieved the idea of who I thought I would be when I "grew up." It was hard. When I was diagnosed with FM last year, I had to grieve...
My understanding is the myofascial pain is a symptom of FM. That "myofascial" is the descriptor for the type of pain one feels when they experience FM body pain. For example, when you work out hard,...
Lamictal, as I mentioned in another comment, made me feel terrible. It messed with my brain functions a lot. Memory, my ability to speak clearly and remember words, concentration, focus...all were...
I have experienced severe memory loss with some of the meds I've tried. Lamictal made me feel literally insane. I couldn't remember anything. That's why I had to stop taking it....
When I looked into disability last year, I went to the Social Security Admin website (I'm in the US) and Crohn's disease is listed as a condition which is considered a disability. I was able to get...
I have Crohn's colitis, or I did until they removed my anus, rectum, and the latter portion of my colon. I have a colostomy. I got three years of full remission out of the surgery and then the...
I have been on Prednisone several times, two times for long enough to get moon face. In my experience, both in myself and others I have known, it will go away on its own. It is likely to be super...
I have rls like symptoms which I'm pretty sure are FM related. I also have Rosacea on my nose and cheeks which gets worse when I'm flaring. You might look into Rosacea....
I use Cymbalta and Gabapentin with tylenol three times a day and Percocet for my period cramps. The cymbalta is doing more my mood than pain I think but the gaba is working so far....
I just saw my GI the other day and he said that Entyvio is not so great for CD. He said because it blocks production of some type of white blood cells that cause bowel surface inflammation, it's...
I cannot speak to Remicade specifically, because I wasn’t on it very long - though, come to think of it, I was never told not to be around mold. I am currently on a biologic- and have been for almost...
I have had PG. I have Crohn's and had a colostomy installed in 2010. After the surgery, i developed a large PG sore around my stoma. It was absolutely one of the worst things ever in my history with...
Hello, everyone. I have been a HW member for several years, but have always been on the Ostomy and Crohn's Disease boards. I thought I would introduce myself here, too, since I will be lurking on...
When I am super stressed and/or anxious, I tend to dissociate. I have gotten to a point where I do this automatically and now have to work towards remaining attached. When I am dissociated, I feel...
I have spoken with many docs over the last year in my preparation for getting preg and TTC (high-risk OB, CR Surgeon, fertility doc, psych, and GI). My GIs (I've seen three: one retired, one at UCSF...
Maybe you should go to the ER. Sounds like you had a pretty rough night with pain and vomiting plus, if I hadn't heard back from my doc in several hours, I would prob go to the ER. Or at least and...
I don't think there are many people here w BCIR/K. My understanding is that they aren't done very often? I know one of the surgeries is proprietary and only done in one place, you might look up that...
They decided last minute to give me epidural. I had had one for a previous surgery and was all about it. You really won't remember when they put it in- you'll be pre-medicated and will be able to...
I used for a couple months to get through a fibromyalgia flare and it helped tremendously. I think there are plenty of people who are able to use responsibly; I also never drove or worked high and...
In short: yes, the insurance can do that. A lot of times the newer med will only be approved for coverage by the Plan if a different med has been tried and failed. Unless they are denying the...