I've been on both the Humira and Imuran now for a couple of years. The combination has worked well for me for the most part. It's all about finding the right mix. If it works for you without bad side...
My doc refers to it as the uptake dosage. In other words, you get alot of the drug on board so that you don't bottom out before your next dose. After that, you should have a steady amount of the drug...
You are definately not alone. Check with your doctor and local hospitals to see if you can find a local Crohns support group. The Crohns & Colitis Foundation may be able to help you find one...
Highly recommended. Just don't do the mist version. Only the injectable. /community/emoticons/smile.gif ...
It's been awhile since I've visited our forum. I've missed all the great advice and shared experiences. I had surgery 2-weeks ago for an inguinal hernia. I get to have surgery again next week for a...
I too was on Pentasa for several years. Took 16 of them a day. Eventually they quit working. That has seemed to be the trend with all my medications so far. After so long, I have to move onto...
I've had several skin tags removed, some being frozen off and others being cut off. I've never had any problems with any of them. As far as I know, none have been infected at the time of removal but...
No side effects from the flu vaccine. In fact, we fall into the high risk category so it's important for us to get one. There is not "live" virus in the vaccines so the shots, by themselves, should...
I've been on Humira for a couple of years now. Other than the extreme pain at the time of the injection, I haven't had any weird side effects. Are you sure your weird symptoms are from the Humira?...
What is "vsl#3"? I appreciate you sharing your experience. I may have hope after all. It really does suck and I'm flaring with the Crohns too. Not sure which brought on which, if you know what I mean....
I do take acidopholis every day in large quantities. Do you buy "Saccharomyces boulardii" under that name or is it under a different name?...
I had C-Diff, went on Flagyl for 2-weeks, it came back within 5-days of stopping the Flagyl. This time went on Vancomycin for 2-weeks. Finished it 6-days ago. Today I'm showing signs of it returning...
Unfortunately for you, no, I'm not in your area. I'm in the mid-west. Hang in there, you'll find a good one eventually....
Good call "Keeper". I hadn 't thought of that as a possibility and yet I just took my last Vancomycin for my C-Diff today. I got tested twice prior, both times negative. Then I finally tested...
"even though that may make things worse at first.", that's the part I'm afraid of. Thanks for your input - all of you. I now at least know I'm not going crazy although it still irritates me....
It sounds like you've done everything right. Now, as you continue to treat the symptoms, we will all wait and pray for a quick recovery....
It is NOT all in your head. My blood tests always come back "normal" showing no inflammation although I'm in major flare-up mode. My gallbladder tests all came back negative but once I convinced them...
Wow, you've been through an awful lot the past 6-months haven't you? Fortunately, I haven't had to deal with your latest symptom - yet. Since it's been 15 years, maybe I won't. Good luck with finding...
I'm at maximum dose. My last test showed I was below my level, now I'm at maximum level. Go figure!!! ha ha...
I, along with one of the health care providers I work with, did some research on this. We looked at several different sources. My husband and I also watched a program on Discovery Health about...
So my GI doc wants me to increase my Humira injections from every other week to EVERY week. My insurance company doesn't want to pay for that. Evidently every other week is reasonable to them but not...
Wow. I could relate to almost all of those. And as for folding the fitted sheet - I would really love to know if that's even remotely possible. It's such a pain right now. Thanks for the smile to...
Isn't that the truth!! /community/emoticons/rolleyes.gif ...
I just had my Promethius test last week for the same thing - to check my Imuran levels. It's a simple blood test. I hate getting my blood drawn too but unfortunately, it seems to go along with the...
I have high blood pressure. My cardiologist hasn't said anything about it being related to my Crohns. So, that's a good question....
I absolutely LOVE my GI doc. The first one I had was horrible. But then I found my current one who came highly recommended and she has not been a disappointment. She takes the time to listen and...
Ha Ha Ha!...
Maybe because our bowels wake up in the morning. They are usually relaxed and slow to metabolize while we sleep. For me, as soon as I take a drink or eat something, the pain begins....
Watermelon always works for me. I've also heard that apple pie filling works really well too. Just a couple of natural ways that may help. :)...
You don't have your e-mail address listed so this is the only way I can get a hold of you. The crohns support group I go to actually got started by a couple of ladies who live in Ogden. We meet at...
tsitodawg, Wow! as you said, who would have thought? Nice to have a fellow BYU fan on the forum. Thanks for all the good come-backs. I'll be needing them soon. I had season tickets for years, loved...
Zanne: I would love one too and I'm willing to pay you for it. If they haven't all been dubbed yet, let me know and I'll send you some $ and give you my address. tsitodawg: Are you one of the BYU...
When I had that, I tested positive for C-Diff. Have they tested you for that yet?...
It's interesting that you would post this now. Over the past several months I've noticed increasing joint pain in my hand. At first I just thought it was due to me straining it or something but it...
My suggestion would be to try and find a crohns support group in your area. I used to feel like I was alone with my crohns because nobody around me had the disease or even knew that much about it so...
Yes, Vancomyacin is the name brand. I must have gotten a generic or something cause I spelled it exactly the way it was on the little pill bubble thingie I get the pill out of. So far, my only side...
I was on Entocort for several years and then it just stopped working for me. That was when I had to do my first course of Prednisone which didn't end up being as bad as I was expecting....
I routinely get vaginal fissures. I have no uterus either. Evidently it goes along with all the other fun Crohns symptoms. But I do agree with the others, make sure you mention it to your doctor,...
If you have a permanent toilet ring on your bum....
Thank you all for your input. I feel better already. :)...
Fortunately I have what they call Intermittent sick leave. After my first 2-days which I have to use my PTO, I can use the intermittent sick leave when I need to. I've been really fortunate. If I...
I had pain similar to that although mine would flash down and back up the back of my leg at random times. I went to an ortho doc who discovered I had an inflamed disc in my spine. He injected a...
That's a great resource. Thanks for sharing. [img]/community/emoticons/tongue.gif [/2]...
From what I hear, this is a heavy duty antibiotic. Pricey too. My out of pocket cost was $155 for the 2-weeks I'm supposed to be on it. Has anybody else been on this drug and if so, did you have any...
Fortunately, I haven't had a fistula yet (knock on wood). I get recto/vaginal fisures all the time though. I also did pretty well on the Prednisone considering I was expecting the absolute worse. I...
We don't learn. I do the same thing with many of the things I eat. I love food and don't want to give up anything so for the most part, I don't. I just live with the consequences later and when I'm...
I did a little research on this and I've gotta tell you, I still cannot get comfortable with ever doing it. The thought just literally creeps me out. And this comes from someone who isn't afraid of...
First off, that's kind of funny, my 2nd job (part-time) is at Roberts Crafts. Joann's is a competitor of ours. Not sure why that struck me as funny, but it did. Have you ever tried Levsin or Hyomax?...
I would have to call that "mind over matter". Sometimes that happens with me too. I'm glad that you were able to have a nice, successful day and I wish you many, many more....
Well, it does make me feel better to know that you'all have at least heard of it. Reading your various responses and experiences with it will help me to determine IF I really want to try it or not....