I am due for my reversal surgery, but I am dehydrated. Will the ER perform my ileostomy reversal, instead of my doctor doing it?...
Thank you!...
My AETNA coverage will run out tommorrow, and I need a colonoscopy. Any options. I try not to panic....
Words of wisdom from a very kind group of individuals. Thanks to you all, and wish you the very best. Thank you very much....
Thanks Rosemary I needed that. Mine was to save my life too. I tell people who ask me how does it feel, and I tell them try wearing a bag for 24/7 and empty it out every 2 hours. My sentiments goes...
I was dismayed of that. The doc said the scar tissue needed to heal. I feel I don't need all that time. So I've compromised with him and he will evaluate me in 3 months. If he decides to prolong it....
I am 3 weeks out of the hospital with an ileostomy and I've been putting out between 1300 and 1900 cc's of stool. I wondered what an high output means. Is it a bad thing since I nosh out on food...
No FMLA. I work in Florida a right to work state. No short term medical and I given them no reason to fire me....
Thank you all. I filed for unemployment that my employer said they won't contest, but if my unemployment is contested then I'll contact a lawyer, (Morgan & Morgan), for the people. Warmest...
I have crohn's and prior to going in the hospital I had a 6 month flare up which left me malnourished. While having this flare up I continued to work. Well I contacted my doctor and he suggested...
Hey Heatther I'm Ben, and I am a 48 yo, but I had crohn's since I was a 18 yo. Recently I've a made decision to have an ilieostomy(reversible), plus reconstrutive small and large bowel resection....
Yes, not just the bruising, but blood pooling on the surface of my skin. Like it was going through a necrotic state of breakdown. It heals up though, however when I bump against something this...
Honestly prednisone had saved my life numerously. Now that I stopped my remicade I use it to mitigate inflammation. I've been on Prednisone off and on for 35 years, and consistantly for the last 6...
Hello my fellow crohnsters. I'll make this brief and to the point. I been on Remicade for about 8 months and in that treatment phase I would get infections inide mouth and all around my tongue (part...
I got hired with this company, and in a year and a half of working my crohn's flared up to the point that it landed me in the hospital for 27 days. I told the medical staff about my 30 year history...
I had this a week ago and I am on cimzia, I've taken cipro and flushed out with a gallon of water. What his does is to dialate the kidneys and open them up to move a possible kidney stone you might...
I am a former marine, I had crohns since I was 18. I've joined the marines when I was 23, I told my recruiting officer that I had this disease and he suggested not mentioning it on the apps. Low and...
I have been maintenancing on Cimzia for 3 months, and felt great, but when it gets to a day to 2 days within the next dose I feel distended. Cimzia works very timely and when the new dose is...
Cimzia has been working, but here are some concerns; initial muscle fatique, shortness of breath. All in all I am happy, I take it along with aloe vera and I am eating normally. It has a time limit,...
Prednisone saved my life. I was on 1.2 grams for 5 days, then tapered to 10 mg's every 2 days until I got to 20 mg's. When I got to 20 mg's I stopped completly, and by that time the cimzia kicked in,...
I just received my first maintenance dose 3 weeks ago, and I experienced some side effects which diminished in time. They were; muscle weakness, chest cold, puffy eyes, and loss of appetite, but I am...
Since my first maintenance dose I've experiencing a musclo-sclerosis type sensation throughout my muscles of my body, for instance I've tried sprinting up the stairs and it felt like the more I put...
Subcutaneously, laterally both sides of the stomach....
I have been on high levels of prednisone like 1.2 grams for 1 week, and I noticed these factors to the point that I felt my muscles were going through a "musclosclerosis" feeling, frankly I was very...
Acid reflux sometimes will do me in, so sugar free candy may be suitable for me, but I can tolerate sweets when I can....
Thanks to you all, and a speedy recovery, Ben...
My bruises are the result of accidental bumping, which usaully don't occurr considering the lightness of the bump......
Just received my first maintenance dose and I have been noticing my body undergoing some strange occurances, which has got me worried. Here's what I have been going through; lack of energy(muscle...
I' ve just had my first maintenance dose 3 days ago, prior to that my loading phase was accompanied with prednisone. I had flares, I was frustrated, until I realized it was my fistulas that was...
I finished up my loading two weeks ago and my doctor wants me to be off the prednizone, hoping the cimzia will supercede the prednizone. Also I am on flagyl to cut down the bacteria growing in the...
I feel your pain. I have been on prednisone continously since August. I felt frustrated and flared when I tapered down 20mg, so I took evasive action. I got started on cimzia, finished up my 3rd...
Luckly I have a job that allows me to plan my schedule with the exception of a timed appointment, which is set by my boss, and with that in mind this last appointment was unavoidable and I had a...
...For lunch I had 2 hot dogs (sabrett) wrapped in whole wheat bread with mustard...no ill effect yet....
I am starting Cimzia next week, I have a few concerns with the side effects. The manufacture made a lot precautions about cancer like developements. This has me worried to some degree. Can side...
I am currently on prednizone(tapering down) and lialda, the lialda is not working well and the prednizone I am trying to taper off from. Now I have distention and pain and the inflammation is coming,...
Peristalsis and gurgling is what appears to be emananting from this region. Is this the sound of bowel tract that is trying to become healthy? There's no pain....
I know someone who swears on aloe-cure, can anyone give me a opinion about this homeo-pathic treatment?...
I want to start remicade. Has the cost been a factor for you? I have insurance. Can I take it for a while and discontinue and have results stay effecive? [/quote]...
I often have ribbonized fecal, but I know when things look fine is when it is rounded eliptical in cross section. It will never get back to normal due to the intestinal scarring......
I flare up from early november to late december...why is probably the holidays eating, stress. Lack of hydration due to the cold weather. All these contributing factors have me increase my meds, but...
...I am glad some these procedures are taken place, now whether they become main stream in 5 to 10 years is to be speculated. I'll keep the creative thoughts coming it helps with the sometimes...
In my lifetime, cures for this disease should be considered. Since having crohn's back in 81'. I ve had no surgeries, and been on prednisone, but I like to see a cure over the horizon. I have a few...
A month the most, if I needed to stay on it longer I would'nt stopped, but how can I tranfer my wellness that prednisone established and start pentasa, almost impossible, need to take them both until...
No...but I will now, back on 60, but I need to control my crohn's so I will try everything it takes. I worried about my osteo depletion, have some cracked teeth to show for it. I am 46 years old been...
There's my problem I try to taper to rapid, ie; 1 week 60, 2 week 50, 3 week 40 etc. My body responds accordingly and I usally end up on high dosage...pentasa did not do it for me. I ts mode of...
Thank you all for your kind replies. I am only on preds, now at 60mg. I can't ween to 30mg or I'll have a flare up. So I am trying inquire about remicade so I can ween myself off of preds. I am...
Thanks patientspider, I am looking forward for helpful responses from the crohn's community, regards...Ben. p.s. It's good to be aboard. ...
I have crohn's, and I've been on prednizone continously since august. I have violent flare ups which causes me to increase my dosage to 60 mg per day. Now my crohn's don't respond to it effectively....