I was on enteral nutrition exclusively in the past. I used Nutren 1.5. My doc had me meet with a nutritionist to talk about calorie intake I would need. At the time my symptoms were pretty mild but...
For me I find that drinking A LOT of water helps. As does oatmeal in the morning. If you are having trouble passing stool, try squatting on the toilet rather than sitting. Not joking, it may help....
I was diagnosed later in my PhD studies, by that time I was only working in the lab and no longer taking classes. I recently completed my PhD "on-time" relative to the other students in my group. My...
May or may not be relevant but I will mention that Cbir1 antigen is also present in uropathogenic E. coli bacteria. If you have ever had a urinary tract infection / bladder infection / or any other...
I would recommend that you buy a DAILY planner and keep a detailed food diary (want a daily planner so you can write things in hour-by-hour). Write down what you ate, how you are feeling, when you...
I second above suggestion. Contact the company again and speak to someone higher up. And keep trying. I personally don't have any kind of coverage for prescriptions so I buy EN diets off E-bay...
I also have the stricturing type at the terminal ileum. I never experienced diarrhea. If anything I tended towards the opposite. My symptoms were occasional abdominal pain and fevers, and I was...
Best of luck with your surgery! Hope you feel better soon....
Hi CrohnieMan, I always have taken them together. At times when I have run out of one or the other and been on only one at a time, I tend to get more "rumbling" noise coming from my intestines. I...
Not sure about "too much bacteria" because honestly what's in those pills is a drop in the bucket compared to what's in your guts already :smile: I agree that you could experience some discomfort...
I have gotten sporadic fevers in the past, as high as 103+ with chills, night sweats...the works. For me, they tended to happen shortly before or during "that" time of the month, when I was stressed...
To give proper advice, I think it might be helpful to know where your active CD is located (colon, ileum, etc.), what kind of symptoms you are having, and if your doc thinks you are at risk for...
It has not been proven wrong or right--remains a theory, and that's it. It is definitely on the dairy industry's radar as a potential problem. You can buy milk ultra-pasteurized, which I don't think...
Modulen has not been available in the USA for a long time, I think at least two years because I was looking for it in 2008 back when I was diagnosed. People often use Peptamen instead and it comes in...
Thank you for all the info! I am still in the middle of unpacking and prepping for job interviews, but I am going to look into your recommendations as soon as I can....
Hi all, In the next few weeks I will finally leave Illinois. I will be moving to central New Jersey and am looking for gastro recommendations. I am willing to travel across NJ, and Philadelphia / NYC...
Thank you for sharing your story....
If you go on an exclusive liquid diet using a meal replacement drink (Ensure, Nutren, etc.) you could feel improvement within a week, if not faster. I used Nutren 1.5 during an 8-week exclusive...
There is no assistance program. I bought it from Sam's Club pharmacy I think it was a little less than $500 for 90 pills. Sam's is cheaper than Wal-Mart. I don't think you will find it for less...
Thanks for sharing, I'm very interested in this therapy so it's great to hear updates. I am curious--when doing the helminthic therapy, do you have to limit what you eat and what other drugs you are...
I understand where you are coming from. There is a risk/benefit analysis that we all have to make... If you don't feel "sick enough" it's hard to justify taking the drugs that have the more serious...
I buy something called "Nutren" made by Nestle. It can be purchased from some pharmacies. I buy it online. It comes in 1.5x and 2x calorie formulas so you don't have to drink as many. It has less...
Graduate student in chemical engineering. Defending my thesis next month (fingers crossed) and FINALLY getting outta here....
Does one attain remission because the meds are working, or does the disease itself choose it's own course? That would make quite a study. The disease does choose its own course, to a degree. That is...
Great news! Congrats! :-D...
Received this article today in my inbox. Evidence in this article is very shaky. But still interesting to learn that chlorination does not kill mycobacteria, so municipal water may actually...
People who donate fill out a form with questions that help to identify if they take part in high-risk behavior and if so, how recently. In terms of blood donation, "high risk" means anything from...
I did not develop Crohn's until grad school, so I can't really give specific advice to get you through undergrad. But I do think that you are being a bit hard on yourself. It is difficult, if not...
There is no "perfect" diet for Crohn's. Everyone is different so diet is very personal. You are much better off finding out for yourself by trial and error what works and what does not. Otherwise you...
Hi SnowCrystal, In my case the CT-E showed inflammation in the area where they could not get the scope past, about 5-6 cm at the junction of the small and large intestine. I also get discomfort and...
Signed up for one - thanks! I previously received a different free book from them (Abbott). So now I get stuff about Humira in the mail, too....
Interesting read, thank for posting. I'm not sure I follow how this fits in with Crohn's, other than gut permeability? The dairy industry definitely does think about Crohn's, at least in terms of MAP...
Other than Pentasa, common maintenance meds are Imuran and 6-MP. Those take a while to kick in. If you are currently taking two or three pills a day, you have to taper the Entocort. So no matter...
Hi SnowCrystal, The bariatric surgeon is less likely to give you a WLS that would lead to malabsorbtion, when a diagnosis of Crohn's rather than UC means that inflammation could occur in the small...
My doctor was also not supportive of enteral nutrition (EN). I learned about from another member of the forum, Writer. If you have any specific questions she can answer them. She also wrote a book on...
Since you mentioned eosinophils in the biopsy--have his doctors considered that he might have eosinophilic colitis/enteritis? It is a distinct disease, separate from Crohn's/UC. Just mentioning. Is...
Could be stress or something she ate. I think you should try not to be alarmed by one bad day--it may raise the stress level unnecessarily. If she continues like this for a few days, then it would be...
I take the probiotics VSL#3 and Primadophilus Reuteri every day. I think VSL#3 has enough clinical evidence to support the cost. I also saw a few papers on reuterin, which is the chemical made by L....
My insurance also covered it. I think it depends on your provider....
I just wanted to say "thanks" to all the Canadians on here for sharing. This was a very interesting thread to read. I would agree with Fitzy that many of the discrepancies mentioned above, also exist...
I was diagnosed after having the prometheus test in conjunction with a CT enterograph and colonoscopy with biopsies. All three came back suggestive of Crohn's. My titer on the prometheus test was...
There are many options for probiotics. You can try a few things and find what works for you. Every night I take VSL#3 (two pills) and Primadophilus reuteri (one pill). I buy VSL#3 online and buy P....
If you are having liver problems, you should try going off of the contraceptive and see if it improves. I was on OCs for years and ended up with an enlarged liver and high enzymes. It normalized...
I had a pretty painful one recently... I would not say it is 100% healed, but it generally is not a problem anymore. I soaked in hot water 15 min a day for a few weeks. Also, I was applying vitamin E...
If your daughter has not looked into exclusive enteral nutrition, I think it is worth trying. Enteral nutrition means going on an exclusive liquid diet using a product like Ensure. I used something...
Congratulations!!! Best wishes for mom & baby....
Not exactly the same. My husband and I met in 2001. I was diagnosed with Crohn's in 2007 (I am the only one in my family). He has an aunt with long-term Crohn's, and since we met his cousin and...
Just wanted to say good luck--you can do it! I was off food for 8 weeks and did not cheat once. In the US we can't get Modulen so I used another Nestle product called Nutren and drank only water. It...
Just thought I would mention... Have you considered trying VSL#3 probiotic? It is supposed to help maintain remission of pouchitis after you have completed a course of antibiotics. Sorry I can't be...
Hi Joan, I had a SBFT and two CT scans with IV contrast and neither one showed inflammation definitively. It was not until I had a CT-Enterograph (IV contrast AND oral contrast) that they were able...