From time to time I get water/fluid build up in either my knee's or ankles. But it's also when I'm going through a crohn's flare. Its like my bodies way of telling me my crohn's is going to flare....
I have had crohn's since I was 25 and working since I was 16. I work 40 hours a week with no real problem. Every so often I have to call off for my crohn's but my crohn's (knock on wood) is pretty...
I have been on cimzia next month will be a year. I have never hit a blood vessel so I'm not sure???? I usually inject them in my upper tighs and yes I have problems with it burning. My right leg is...
I have been on Cimza almost a year (sept) and at first didn't really think it was doing anything. But I have been pretty good for some time now. The only thing I don't like is usually within a few...
I found out I had crohn's when I was married to my first husband. He was clearly not going to be there for me. When I was sick and went into the hospital he bascially never even came up to see me. He...
Do you find your gaining weight on it? I have been on it since end of September and really didn't notice for a little while. But man the past few months I feel like I have really put on weight. Of...
I do my own every month. Not hard at all. Yes it is thicker so I have to push real slow to get it all in....
I haven't found a drink yet that doesn't bother me. I'm not a huge drinker either but when I do I know I am going to pay for it most likely....
I have been on it since end of September. It's ok. Has been working so so for me. But I am another that has tried most meds and not responded. I was doing really good on it until about two months ago...
Thats great!!! Glad you got first dose. It's strange you had some shortness of breath though. Make sure to tell your doctor about that before you take the next one. Also make sure you drink lots of...
Hmm I didn't know we could. I may bring this up with my doc if things don't settle down for me. I currently only do 400mg once a month....
I started on Cimzia 9/2009. The first 2 starters were done at my doctors office. I was doing great until about 3 weeks ago. Crohn's flaring and my lovely joint pain. I am due to inject tonight. I...
WOW I can't believe you are on all that and still flaring. I wish I had some advice. I would say if you are really that bad then yes go to ER. Pleae keep us posted. Also what are you eating???? Try...
Thank you everyone. He wanted to put me on predisone and I turned it down. lol I know bad but I don't like that stuff. It doesn't put me in remission and it makes me feel horrible everywhere else...
I am sorry you having trouble. I have never had problems with with my gallbladder due to disease so I'm not sure about that. I hope others here have some good advice for you. Hang in there....
:sad: I started on Cimzia end of Sept. and really started feeling good after I got going on it. Well last injection I did actually on my b-day 3/5 and two days later I was flaring living in the...
Congrat's to everyone expecting on here!! That's awesome! I was in remission and on no meds when I got pregnant 5 years ago. However, my GI has assured me that most of the Crohn's meds are very safe...
Me too- flaring and over weight. :-(...
I am about 250lbs so don't feel bad. I can never seem to loose. As far as meds go, yes there are so many other meds out there. I have been on pred. many times and I am to the point that I refuse to...
Pina Colada's rip me apart but oh man they are so good going down. lol I had a few last night at a friends house and boy am I paying for it today. I am not a big drinker though so it doesn't happen...
Hello and welcome to HW. Like states above, I think the object is to have a colonoscopy when in a flare. When I was first dx, I was so sick and could barely walk almost wheelchair bound. It took the...
Steriods are not a fun thing. Yes I would have red face, break out horrible, hot flashes, gain weight...you name it. I would make sure to let your doctor know of this too though....
Hi Stayingpositive- I'm glad you found this awesome site. The people here are wonderful if you ever have any questions don't ever be afraid to ask them. I was 26 when I became really ill with...
I felt fine once I visited Mr. Toilet bowl. No other symptoms. Just was woken up about 4 hours after. Now I'm afraid to do the next one in stomach. It just hurts so bad in my upper leg area....
I started Cimzia back in September. Everything going good with it. Well I was due for my injection the Wed. right before Christmas. I had to call doc that morning because I found some type of sore on...
I agree, that is just crazy that your GI will not treat you because you are pregnant. You definitely need to find a new GI doc. I have a 3 year old and was on 6mp while pregnant with him. He is as...
I did Remicade many years ago probably right after it first came out. I only had 3 infusions and after the 3rd I had a reaction and ended up in the hospital. It did help me though and I felt great on...
I was on it last year and can only tell you how it worked for me. Like stated above, everyone is different and I know people here have great success with it. It worked great for me Crohn's wise, but...
It has been a long time since I tried Pentasa but I believe when I started taking it that it made me pee a lot...and I mean alot. And I had to take something like 16 pills a day. No way. I hate...
I just started on it a few weeks ago. I just took my second set of injections Wed. night so I'm very new on it. lol But yeah I did notice after this second set Wed. I haven't really been all that...
I know my doctors # by heart and don't have to keep looking it up!! lol :-)...
Can your husband call his doctors office and ask for the doctor to call him back that he has questions he would like to ask him??? My GI doctor doesn't always call me either, his nurse or securtary...
I had a hard time on it. At first I took mid week and I had to eventually move it to a Friday night so I had the weekend to be sick. Saturdays were usually a very big down day for me when I was on...
I am an administrative specialist for a well known insurance company. Have been there almost 14 years the end of this month....
I wasn't in on that so not sure what your having done, but whatever it is good luck!! I hope all goes well for you!!...
Yeap my GI told me the same thing. We can have the shot as it isn't live. We can not have the nasual as its live. But I heard the nasual is only available to children anyway. I just don't know the...
I just started Cimzia last week. I did two injections. Next week I do two more and the following week I do two more. Then I go to every 4 weeks. My GI doc said you can't get it any sooner. I've...
So those on it, just curious what little side effects your seeing, if any? I know we are all different and going to see different things. Just curious is all... I only just had my first two...
I'm a remicade failure. So my doctor and I both felt most comfortable with me going on Cimzia since Humaria is more related to it than Cimzia....
Aww thank you everyone!! I go tomorrow afternoon and oh my am I nervous!! I made my husband ask his boss if he could leave early tomorrow to go with me!! lol I'm such a baby!! hehehe I am going...
You may remember I was having trouble getting my Cimzia meds insurance didn't want to approve me but finally did thanks to doc appealing it. I got it shipped to me last week. I'm going Wednesday for...
I work full time and I'll tell you what, it isn't easy sometimes. I'm in a bad flare now and actually stayed home today, but my work is so understanding. I also consider my crohn's very mild compared...
I stayed home from work today because I'm dealing with a bad flare waiting to go Cimzia this week. Anyway I have slept all day literally. I have no energy to do nothing. :-(...
I was on Remicade like 9 years ago. I had 3 infussions and within like a day or two of the 3rd one I had a reaction and landed a week in the hospital. It dropped my white cell count down like way...
Mine is good for a year so I'm not sure if it's different state wide or a company thing....
I have life insurance through my company but when we got my husband's life insurance policy independantly since he can't get it through his company, they denied me because of my crohn's. We were...
Smoking makes my crohn's worse so I know it isn't good for us crohnies. I quit 4 years ago when I found out I was pregnant with my son. I did really good until this past March when I was dealing with...
Yes I have had it happen to me before many of times. It isn't fun that's for sure but know it's normal for us to have happen....
Thats really sad and what a shame. I pray that never happens to me although I do have a card that I got from the Crohn's foundation and I do carry it with me. So far I have never had to use it....
Hi LBJ I think that what Frogalieta has said makes a lot of sense...being overweight (obese) would would still affect those prone to it if the disease was confined to the large intestine... I might...