Hi! Kazbern and Wednesday 77, Thanks for writing me. Wednesday77, really sorry that the psoriasis is bothering you so much and it seems to be spreading. Mine happened 5 months after I stopped...
Hi! Kazbern and Wednesday 77...
Hi! Everyone, Thanks for writing me. Sorry that I don't seem to get reply notifications anymore from Healingwell forum. My skin biopsy came back as psoriasis. The doc gave me prescription ointment...
Hi! Guys, Thanks so much for writing. I was out for a while going through surgery and radiation treatment for breast cancer. My GI doctor took me off Remicade as soon as she learned about my bc...
Hi! Merrida, Thanks for writing me. I did posted the same thread to Crohn's and Ostomy forums. No specific answers pertained to my situation. To my horror, when I re read the pathology report today,...
Hi! MmcKenna and Ides, Sorry to hear what you and your family went through. Thanks for responding to my post. This is by far the most info I got regarding my condition despite frantic research the...
Hi! I have Crohn's disese. I got an ostomy in 2006. I was put on Remicade in 2009. Everything went relatively well till my recent mammogram. The biopsy showed that I have Grade 3 DCIS. The surgeon...
Christine, Thanks so much for sharing your experience. Really apprecaite it. Sometimes I wonder if there is something wrong with me. /community/emoticons/smhair.gif The disease itself and...
Hi! It has been a long time since I last posted. I am a Crohnie for close to 20 years. I had an emergency ostomy in 2006 and was put on Remicade since Nov 2009. Everything was fine until my last...
Hi and thanks to all of you! Now I am a little confused about fistulas. I have them all the time since my unscheduled ileostomy back in 2006. They just come and go without warning. I do notice I tend...
Chroniemomx2, Thanks so much for sharing your experience. I guess we all have our share of difficult journey to wellness. I cannot be more thankful for all of your help. Antibiotics (Cipro and...
Thanks so much for your input. I guess I thought that I am not supposed to be on Remicade while I am having fistula (that I have to wait till it is healed). Thanks for your help....
Hi! Everyone, I am a Crohnie for the last 18 years. After two major surgeries and repeated hospitalization, I am now an ostomate. I will be going in for Remicade in mid October due to recurring...
Hi! Sorry that I am writing out of the blues. I am a Crohnie for 18 years. Two major surgeries and multiple hospitalizations left me an ostomate. I will be going on Remicade in mid October due to...
Hi! Flchurchlady, I was first told that I had UC. Then I got a J-pouch after terrible blood loss and sudden drop in blood pressure; horrible pain too. Then the pouch worked for about 7 years or so...
Dear Js Mom, Thanks so much for you kind words. Unfortunately, it is confirmed that my Crohn's has come back. Needless to say, I am very sad and disappointed. It really happens without any warning at...
Hi! Here I am enlisting your help again. When I emptied out my bag today, I found the output reddish and kind of a smell (Not too bad like blood but I am concerned) I guess I am worrying a little...
Hi! Stacie, I am sorry about your problem. I am not sure if you have the same problem that I have but my experience is, my stoma shrinks sometimes which makes the cut out hole not fitting anymore....
Hi! Judy, I don't have any new questions. I just want to let you know that you have done a lot for many of us here and I (we) cannot thank you enough. You have been a great inspiration for me and...
Judy, Thanks again for all your help. Well, my "Crohn's" was diagonised 13 years ago after repeated hospitalization and a J-pouch which quit working last year. Before that, the G.I. doctor just told...
Thanks for the info on ostomy supplies. Do you know if there is a limit on how many barriers/pouches/rings that one can get? Oh, my, a retracted stoma can be a sign on the illness coming back? I am a...
Dear JudyK89 Thanks so much for sharing your experience. I greatly appreciate it. Good tip on putting the edge of the seal over the stoma. I had never thought of that. I have Kaiser Permanente and I...
Hi! Wouldn't the pouch and barrier show when you guys wear low rise? I have been looking for jeans/pants that fit desperately too but I found it very difficult. They either show my bag or get really...
vette guy, Thanks for your reply. I did go to the ET nurse after having the skin irritation problem for a couple of weeks. She did seem to think that it was a big deal because she had seen people...
Hi! I had an ileostomy Feburary 2006. Things were going relatively o.k. until recently. I am experiencing stoma shrinkage or maybe I should say, it seems to change in size without any indication. As...
Hi! Purple, Thanks for your reply. Hope you got some good zzzzz last night. My experience with J-Pouch was good for the first 3, 4 years (with an initial bout of pouchitis which was cured by Cipro)....
Hi! I have Crohn's for 20 years. It was originally diagnosised as Colitis. I had J-pouch surgery about 10 years ago but had experienced repeated obstruction problems during the last 4 years. It...
Hi! Earthgirl and Suebear, Thanks so much for both your input. For a while, I was worrying that people had stopped visiting the site. Your advice and encouragement are real lifesavers for new...
Hi! I have to enlist your help again - My doctor put me on Azathioprine (Imuran, an immuno suppressant drug) after my surgery (ileostomy) in Feb. I am a Crohnie and had been operated under very grave...
Hi! GRMA 25, How are you doing now? What did your doctor say about the bleeding situation? Would greatly appreciate it if you can give me some pointers. TinTin...
Thanks so much Sue. I really appreciate your reply. There is so much to learn and I cannot be more thankful to people like yourself getting on the site helping all the new ostomates. Tintin...
Hi! Can anyone tell me if it is normal to pass a little blood from the rectal area after an ileostomy (I had mine in Feburary) I know about passing mucous, today is the first time I pass a little...
Hi! Suzie, Thanks so much for your encouragement. I am using Hollister's New Image 2 piece srainable pouch with filter. Doesn't it work pretty much like Convatec's? There is only one Ostomy/ET nurse...
Hi! Shaz Thank you so much for your prompt reply! I get really depressed sometimes with the hospitalizations and the surgery. I had two obstructions almost as soon as I got out of the hospital (after...
Hi! I am new to the site, new to ostomy. I was told that I had OC 10 years ago and got my colon taken out. Then they said I have CD. Just had an ileostomy after many unfortunate incidents. Terrible...