I'm 37 yrs old now, had Crohn's since I was 12 yrs old. My symptoms/flare-ups have always been worse in winter. Of course I have been sick in spring/summer but winter by far have been the worst. I...
I had my 1st Resection in 1990. Going to have my 2nd Resection on May 17th. I held it off as long as I could....
Dr Ullman does his Colonoscopies himself and only on Tuesdays. Not sure about the other Docs. I do highly recommend Dr Ullman. However, it is a busy practice. If you need an appt ASAP and he is...
Sorry to hear your having alot of pain. Mount Sinai is rated very high for Crohn's/UC. Mount Sinai Hospital 5 East 98th street ( between Madison + 5th Ave) (212) 241-4299 They have a team of expert...
Well your certainly not alone. I have Crohn's. Unfortunately, I have had quite a few accidents in the past. I'm a guy, but I wear always thin pads just in case. Also travelers baby wipes in my back...
For my Honeymoon. We went to the Bahamas and stayed at Sandals Resort. Great place. All Inclusive. No tipping. 7 pools/3 big jacuzzi's, several restaurants on site, the Resort had its own private...
Sorry but I'm going to be completely blunt. Those that say they could drink with Crohn's/UC are in denial. I had Chrohns for over 20 years. Never have I had a Doctor and I been thorogh plenty, say...
You can ask about Asacol or 6MP. both 5 asa's...
5 mg per kg, every 6 weeks...
Hey Anthony I have Crohn's and unfortunately have had several accidents in the past. Just in case : I do the following. I wear pads, long with wings. I stash an extra pair of underwear in the trunk...
That is a disappointing response. Not very personable, like a copy and paste form. You made a good effort for us. Thanks....
I'm not very good with diet. I do my best to avoid things that are bad for me but I'm weak. lol So, Yes I occasionally eat candy. I do have to be very careful. I have 2 Strictures. 1 in the Rectum...
I have Crohn's for 22 yrs now. Have never had a GI doc yet to say drinking was good for us. If people really want to drink, they will find a way to rationalize it. I personally won't risk it. Since I...
I'm on Remicade, Entocort and Cipro. No 6mp. I was last on 6mp a few years ago, did not work for me....
Re CrazyColitis Like Ides said: There are TWO types of Disability here in the U.S SSI and SSD SSD you will probably not get. You must have a certain amount of work credits/history...think its 3ys but...
Ok, 1st let me say : GO YANKEES !!!!!! I agree it varies from person to person. I would personally stay away from, nuts, popcorn and alcohol....
Yes. Hopefully I can get it next time I go in for my Remicade, Nov 9th. I already took the regular flu shot....
NostraHistoria I live in NYC and I'm on disability for my Crohn's. I was also denied, I appealed and had to wait for a hearing to be approved. Wait was appr 18 months. I did not use a lawyer and...
I took the regular flu shot on Oct 1st at my G.I office. I'm going to get the swine flu shot as soon as it becomes available here. Not taking any chances....
I don't think Crohn's discriminates between class. I worked for the U.S Postal service until my Crohn's became more severe. I'm now currently on SS Disability....
I have been interested in giving this a try for sometime but $42 a bottle is very expensive. how long does a bottle usually last you? a month?...
Sorry, this is just a quick reply. late here in NY. I have been on SS Disabilty since june 1st. I have only Crohn's + anemia. I was denied the 1st time but won on appeal without a lawyer through a...
I have had Crohn's for about 22 years now. I never met a G.I doctor that said alcohol was ok for this disease. Actually every G.I I had said to avoid all types of alcohol that it can trigger flares,...
I'm also on 9mg of Entocort. Although its not as bad as prednisone. I still find myself a liitle irritable/cranky with Entocort....
On the prescript[b] ion bottle that I have for Entocort it says to take the pills in the morning. [2]I also take 9mg. I would not play around with it unless your Doctor tells you its ok to take it...
Also: Stool Softeners are more gentle on your stomach than laxatives. Laxatives work faster than stool softeners. A laxative can take 6-8 hours to work. As a stool softener could take 12 to 24 hours...
I go see Dr Ullman in Mount Sinai hospital for my Crohn's. Very caring, listens, Good Doctor. Mount Sinai has G.I specialists for Crohn's and Colits. Mount Sinai Gasto dept is located at 5 East 98th...
I start a round of Iron infusion tomorrow. It usually takes 2 hours for me. I can't imagine sitting there for 6 hours, wow. Its simple. They have nice comfortable recliners, snacks they hand out too,...
Next time ask your DR if you can take the pill prep. Visocal? not sure if I spelled it correct. I did the pills my last colonoscopy, much better then the liquid drano, lol. It was 4 pills every 15...
Hello I'm in the same situation now. I have been on humira for almost 2 years, (this oct would have been 2 yr). It started to lose effectiveness for me. It took 6 months for it to work . I never have...
"It is my understanding that you cannot get disability unless you have not worked for more than 6 month. So long as you work you are not disabled." I'm not sure where you live. I'm in NY. I applied...
Hello Flowery. Sorry about what your going through, your certainly not alone, especially here. Did you appeal your denial? I was denied about 2 months after I applied. Went to see "their" gov doctor...
I agree with CrohnsPatient . Not everyone has the same experience dealing with Social Security. If you feel you can't work, Apply ASAP. I'll tell you about my experience. From what I was told, most,...
Hello Everyone Of course, I was denied my initial application for Social security. I appealed, and now after a 19 month wait my hearing is set for tomorrow morning. I'm getting nervous, been in the...
Hello Pia Sorry that your having a tough time. I have been experiencing the same as you. I have a Stricture (Narrowing) near my rectum area. I have a colonoscopy on Friday and have a corectal surgeon...
Hello Yes, I have been on Humira since Nov + gained about 15 lbs since then. For me this was a bonus because I was severely under weight when I was flaring. I think it is from absorbing the nutrients...
I guees I'm one of the lucky ones. I have Crohn's for 20 years now + never visited a Rheumatologist. No joint pain but plenty of the other symptoms. lol....
It took 4 months for the Humira to start really working for me. You should give it more time, it can work as little as 4 weeks(loading doses) to 6 months. You may also ask your doctor about taking it...
Your welcome. That is prob the only negative, Dr Ullman and the other DR there are busy. It is still well worth it. When I have my appt, on my way out I make a new appt. I see him every 2 to 3...
I see Dr Ullman in MT Sinai hospital. Great Dr and good guy, would definetly recommend him. Mt Sinai has several top G.I Dr if your willing to travel to Manhattan. Its 5 -- 98th street, 11th floor....
Good luck with Humira. Really all 4 exactly at once? I'm not so sure he would like that much. I did my loading doses one at a time with the nurse. 2 shots were very easy but the other 2 stung bad. It...
Hey Penny Since starting in Nov. I had only 1 bad reaction. After the loading doses, I came down with Shingles. I went to the doc right away, was given a script for Valtrex and pain meds. I had to...
Hi Crohn's 4 ever I been on Humira since Nov. I was afraid to shoot the pen in my stomach and kept to my legs. However, I finally built up the courage and tried the stomach a month ago. It is...
Hi. Sorry to hear your in discomfort. I too have the same leakage problem. Feels like after a bm that I did not finish, very uncomfortable. Like Ivey, I use very soft toilet paper between my butt,...
When I was taking Flagyl, I had that metallic taste. It went away after I stopped the medication....
LDN is not FDA approved yet in low doses for Crohn's. There is an ongoing study at Penn Univ. that Crohnies have been discussing here. Not sure about the long term affects yet of this drug....
Hey there The pens are not too bad. However, I don't do them myself, my wife happily does it for me. I was afraid of shooting it in my stomach but finally decided to try it and its easier in the...
Hello I started Humira in late october. After my loading doses I developed Shingles on the side of my face. Not much pain for me, but itched alot. I was told by my doctor to skip my next humira shot...
ozonehole, What about those that are lactose intolerant and don't drink milk? It has been years since I had any milk....
I know how you feel and your certainly not alone. Although its been about 5 months since my last accident, hoping thanks from the Humira. Anyway, after a few accidents, I started to wear a pad. I buy...