I've been on Imuran for about 9 years and am not to tolerant to the sun but we are going on Vaca and I would like to go to the tanner and get a little sun before we go. Anyone have experience with...
I'm so sorry for your confusion on a diagnosis ...but most of all being a mom with this bleep bleepin disease!!! I have two girls and wasn't clearly diagnosed until they were 12 and 15. I do believe...
My allergies are horrible this time of year so I usually end up taking something for it and for the past couple days I've taken Benadryl. I usually don't take it because of the tired factor but I got...
Bruised is exactly how I explain how my stomach feels at times. Very tender...like bruised. My G.I. doesn't make a big deal about it either. I understand that sensation though. It's weird....
I have type 2 with the Crohns along with Fibro. The combo is a real challenge! What you can eat for one you can't eat for the other. Everyday it's a counting game and to be honest when my Crohns is...
Hey Jas, Have had the scrambled eggs test. They don't really taste any different than regular eggs. I actually felt like such crap they were better than the ng tube I'd been tasting for a week lol....
Such good news! Thanks for sharing and Welcome to HW!...
Me tooooo !!! just another gift from Crohns I guess. I get asked if I'm pregnant! So annoying. I look like a Frog..big body little arms and legs. Hang in there!...
Anyone used this med before? Some websites say it's discontinued but my Dr. prescribed it to me and was wondering what anybody else has experienced with it. Thanks...
This is interesting...fongers06, feel for ya because raising kids and balancing this crohns thing is really hard! Not to mention trying a new med and taking the time out to do so. I find at least if...
I've been wondering lately if Imuran is really putting me remission. Wondering if I should expect more out of a med than just a so so time with it. Seems it's enough to take the edge off but I still...
Hey LG! Welcome to HW! After reading some of the responses I just wanted to add a few things. I am wondering when you say you go from a 3-7 in pain at night and swell if your not having an Immune...
Thanks for the update Randy! been wondering about how you were doing..t.o.y! Do you feel it may be time for an ostomy..is that an option for you? I've thought perhaps down the road for myself and if...
I've had C-diff a few times...I'd wait till his antibiodics kick in good. C-diff is really contagious. Not sure the age of your son but there is alot of urgency which would be hard a little one. I'd...
Hey NiNi, My Mom had alot of back problems back in the 80's and I remember all the pain she endured from myelogram tests! In 1997 I had to have back sugery (3 herniated discs nice genes huh? lol) My...
Hugs Annette! You and your husband are in a tough situation. It's so sad what insurance has come to in this country and decent people can't make a living or get the insurance they need with a crohnic...
Haha Supernurse... I've had 9 surgeries to my abdomen and 4 in other places. When people ask me about my hyster I just say "I'm and it" lol...I really love not having to deal with it every month! idk...
Hey Helen! I'm in Minnesota too! what part? I can share about my G.I. that I really love!...
O.k. so it is day 4 off of Pred since March. Yes, I tappered really slow but I'm hurting......every joint. I remember doing this years ago but can't remember how long it takes to get back to normal....
Singingsupernurse, Nice to meet you. I don't know how you do it having both MS and CD!! My brother has MS. He is 44 and was dx with secondary progressive MS at 24. He is 1 year younger than I am....
Hey Chrissy, Happened on your thread here... and seeing that you titled it "THIS SUCKS!" is exactly how I feel sometimes. I was dx at 36 years old and looking back at my life I know I have suffered...
Sorry to hear all this is going on Randy...you don't deserve more trouble! Here's hoping you can take more vacations soon! TC! P.s...Hewy, Dewy and Louy?...
This is an interesting subject:) I was dx with Crohns at 36 (2005) and will be 45 in Oct. I had a Hysterectomy in 2005 but kept my ovaries. I was tested recently to see if I had started menopause...
I think your all right! I need to get into some type of support group. I come here to chat and read the forum which has helped... I think I need more of a face to face. Just seems hard to get out of...
I love my family...and having a crohnic illness isn't easy especially for the family that has to live with someone who has CP. I really wonder who as it worse. The sick or the ones who watch the...
This happened to me...went to emergency from pain followed up with a colonoscopy and my insurance only covered large intestine. I have crohns in my small intestines. Got mis-dx for a long time!...
Yes! Yes! I agree with some of the statements here. Seems like I'm either nauseated or starving. I crave all the food I can't have. I often dream of eating large salads, vegetables and red meat!...
Hmm...Looking back I'v always since I can remember delt with D (IBS) since grade school. I was 36 when dx. I remember when I turned 26 I could not be out in the heat anymore. Really sensetive to temp...
2busy! Welcome to HW!! This is a great site to learn or throw a suggestion/question out and get some good feed back. Give yourself sometime to deal with your new dx (diagnosis). I think it took a...
OnlyByHisGrace...I'm sorry you have had to go through your harships when your kids have been so young. Had my first sugery (back) when my kids were 4 and 6 years old. Had many more surgeries...
Yeah, good point Monkiray! It's interesting to hear about anybodys journey with a resection....
I think everyone is different for loosing their "pred" weight. I actually loose weight on it but look like I've gained...weird right? It's sorta puffy, fluffy bloated look. I think I retain water but...
Geeesh Randy!!...So how are you now? I know after my re-section came apart they had me in bed for over 3days 72 hours in ICU...couldn't get out of bed...basically couldn't MOVE! Did they do that to...
Nice Cup of Tea, I had my first re-section in 06 and well 12 hours after surgery it came apart! Surgeon didn't attach it to healthy enough tissue I guess...So, I was in ICU for ten days and another...
Intersting beave thanks for that info...Randy I'm feeling for you..had know idea! hugz...
thanks for posting:)...
So, I had first re-sections in 2006. Fairly close together because well...that's a long story! Anyway, was wondering how long people have gone in between re-section surgeries. I know it will probably...
Hi NY, I've had both...Recovery after the lapo is easier! They do blow your stomach up so they can seem more being in there..afterwards your really gassy. But recovery is alot quicker. Usually in the...
I've soooo been there! Sorry it happened! It sits hard on a persons mind. I always carry extra things in my car and have gone to wearing a larger purse to put "things" in...baby wipes, extra pair of...
Hi Deb, Welcome to HW I've had shingles about 5 times ...and chicken pox about 3. I'm not surprised that you are experiencing this after being in the hospital. Seems like I always get something after...
A few weeks after I experience alot of joint pain. It does subside...but sorta shocking when it happens. Good Luck! keeping my fingers crossed you don't go through it!...
Randy, Some days are just blue...don't give up! I'm on Pred right now too...the double edge sword drug. So bummed to come off of it...Scared of the backlash! What is a person to do? Live quality not...
Dr. told me about 6 a day...and i've had too believe me! it's just what I have to do to leave the house or go to any appts...I also take Bentyl to stop the spasms...you should ask about that!...
Hey Cassandra, I have two daughters also...they are now 21 and 24 and I understand exactly what you are going through. It isn't your responsibility to entertain them...totally agree with you. When my...
Hi Love! Welcome to HW! Reading your story reminds me of raising my kids and being sooooo tired. It's like a zombie kind of tired! A ZOMBIE driving a van and shouldn't kind of tired!!! Raising three...
Hi Bandmom! Sounds like your daughters been through the mill! I have two daughters one at college and I feel for ya! I think having a specialist in NY was exactly the right thing to do. It takes a...
Thanks for the thoughts and suggestions! Dr. called today with the results and the pancreas looks normal (yeah!! so very yeah!!) Still seeing my endo at the end of the month though about all this...
Well, I have my endo appt the 29th of the this month. PCP called at the beginning of this week and wanted me to have a CT to rule out any tumors in my pancreus. Had my CT today. Does anyone have...
Gosh, this happens to me all the time too! We Crohnies just don't heal well especially on all our meds. One thing I have noticed that works is more time in between shaving and do it in the...
Thanks Lanie, nice to meet you. Your words were sweet and encouraging. keep ya posted!...