I think I noticed an improvement on Cimzia after a couple of weeks. Also, with their Cimplicity program, I only had to pay like $15 either per month or per 3 month supply and it wasn't anything you...
I think I would start with Rite Aid and then contact Abbott/Humira if Rite Aid can't help you. I know they seal the pens/syringes separately also, but I still wouldn't use it if the box had already...
isergodur, when I first started a clinical trial for Cimzia, they gave me the option of the back of my arm also. I tried that first, but I get injection site reactions and it was really obvious on my...
I was on 6mp for about a year, but stopped it because it wasn't helping and my liver enzymes were elevated, and we knew it could be from the 6mp. I didn't have any hair loss or any other side effects...
I'm on the planning committee for my local Take Steps Walk and some of the suggestions they give people are: Bake Sales Yard Sales Get restaurants, etc. to donate gift cards and raffle them off...
I had this problem for a while, so I wore skirts with elastic waistbands to work and also went to New York & Co. and found some dress pants that don't have buttons, zippers, anything other than...
I almost always have constipation but didn't notice the 6-mp making it any worse and I know none of my drs mentioned that it could cause constipation, and they are usually really good at pointing...
I'm going to Cleveland on Monday, but I can tell you that unless you just show up in their ER, it will take you a couple months to get in. I've been waiting since mid-end of March and my appt was...
The only thing I've found that I can't ever have is iceburg lettuce. The list that I can sometimes have in small quantities in remission (but sometimes make me really sick regardless) include:...
Doctors are free to make blanket statements about drugs if they want to, but they should also point out that there are always exceptions. Especially with this disease...I have been amazed over the...
Sorry for not responding sooner, but I've had some stuff going on and forgot all about replying. Thanks so much for the suggestions. I decided to stay where I am and accept the promotion they are...
I applied for a much higher level job within my current organization and, to my surprise, landed a first and second interview (2nd one is next week). Job would be higher level of what I currently...
Kisskle, I would also agree that you are sick enough to be on 6-MP. And, from the research I did when I started it, the doseage they use for Crohn's is much lower than that used for cancer. I ended...
I was on Cimzia when it was still in the clinical trial stages and then again once it was on the market. I switched to Humira for a while in between and had no problems going back on Cimzia. I've...
I have Crohn's and hypothyroidism, but no hearing loss....
I've been on it on and off for about 3 years. I actually used to get sick all of the time (upper respiratory infections every month or so), but since I've been on prednisone for 2.5 yrs straight,...
My dr. had me take folic acid every day when I was still on mtx. Never had any side effects other than elevated liver enzymes, so I had to stop taking it....
Debra, I haven't heard of anyone else having this reaction to Cimzia and I never had a problem like that, but that doesn't mean it isn't being caused by the Cimzia. I would watch to see if it seems...
I've been on both and also stopped both of them. I was on 6mp for the Crohn's, but it did nothing other than elevate my liver enzymes. I took the mtx for Crohn's related arthritis and it worked so...
Welcome seeyajimmy!...
Was in remission for about 4 or 5 years and may still be, or I may have screwed it up recently by stopping my Crohn's meds to focus on the arthritis. Didn't really have much other choice, though....
Many of the crohns and arthritis drugs effected my liver, but Humira doesn't seem to bother it at all. Luckily, we've caught everything that effects it early enough and no damage has been done, from...
I also had to have mine moved to every 6 wks instead of 8 because I started to build up antibodies against it and it stopped working as well. But, then I ended up having bad allergic reactions to it...
I have thyroid disease and yes, it is auto-immune also. Both of my parents and my sister have it also. I just take generic Synthroid once a day and see the dr. once a year and don't really have any...
I used an inhaler when I was young and was never told of it having the same side effects that prednisone has, but a friend of mine was just told that he is having some medical/mental problems as a...
I was taking Tramadol but recently switched to Hydrocodone. Both are for arthritis and haven't seemed to do much for either that or the stomach pains. Both can cause constipation also, which is bad...
I'll be making a 6 or 6.5 drive to Cleveland Clinic hopefully soon, so I understand not wanting to travel that far, but something has got to be done for my Crohn's related arthritis. I hope they are...
Rheumy started me on the pills, which hurt my stomach, so we switched to injections. GI was a little mad that we had started out on pills anyway...said there was no reason to do them when they had...
Yes, been in an arthritis flare for over 2 years straight (that continues to worsen), yet the gut has been in remission for maybe 4 or 5 years....
Japey, I have Crohn's related arthritis and my hands and other joints used to swell up like that. They haven't in a while, but I'm still having lots of pain and stiffness. My Crohn's is in remission...
Cindy, how much are you reducing it? I'm stuck at 10 mg also and have been on it at some dose or another for over 2 years now (for arthritis). Anytime we've tried to taper me off, I have to taper 1...
Dana, I never had any problems from the 6mp other than elevated liver enzymes, so I can't tell you if the stomach cramps were from that or not. I seem to remember some others on here having nausea...
It took me about 8 years to get a diagnosis and then even this diagnosis was questioned about 5 years later. So, sometimes it is very difficult to get the right answer. I've had maybe 6 colonoscopies...
My enzymes have gone up and down over the years and we've suspected it was various meds. I had an MCRP, ERCP and liver biopsy and I think they concluded that everything was fine. The liver biopsy...
Shane, welcome to the forum. There are other biologicals you can try if the Remicade did not help like Humira or Cimzia. Also, if you have stomach cramps, trying something like Librax or Limbitrol...
I've stopped it a few times to try other biologicals to see if we can find something that helps more with the arthritis, but I always end up back on it because it helps just as much as any of the...
Oh, I've worn out several, including the one I have at work right now (this one is the first one whose light has gone out on the controller). If you buy some of the Kaz deluxe ones, they have a...
lamb, I think a lot of us have IBS also. Sometimes makes it hard for me to figure out what is giving me the pain...Crohn's, IBS, gastritis, endometriosis, etc. I want a new body, too! And yet I'm...
My concern would be adding methotrexate when the 6mp has already caused elevated liver enzymes. I have a problem with meds elevating my liver enzymes and had to stop both 6mp and mtx because of it....
How long are you usually at Cleveland when you go? My rhemy is probably going to send me there and I tried to find out what the normal visit time frame is and they couldn't tell me until I scheduled...
I think my dr. just wrote a rx for every 6 weeks and maybe a letter explaining why we were bumping it up and it got approved. As far as I know, there were no problems with it, and I'm one who can't...
It doesn't help any, but you aren't the only one with this problem. My Crohn's has been in remission for close to 5 yrs but my arthritis has continued to progress, quite rapidly. GI won't do anything...
a. I would either start a maintenance med now or, if you really really want to wait, don't wait a whole 6 months. Maybe a month or two but not 6. 6mp does sound scary when you read about it, but all...
I've been told that the joint pain is usually a precursor to a Crohn's flare, but I have been in a major arthritis flare for over 2 years now but the gut is still in remission (well, at least it was...
Yes, it really does. I'm going to start taking dulcolax and see what happens with my joints. I see the rheumy tomorrow and am expecting her to refer me to the Cleveland Clinic, but maybe I'll have...
Okay, I knew JMHO and OT, but what is BBS? I don't know that I've seen that one, artist guy (I thought putting "AG" here would get too confusing). =)...
Since I'm lucky to go twice a week, maybe that's why my joints are so bad!...
Yes, when I get really bad stomach spasms, the pain gets so bad in my back as well, that my back ends up hurting worse than my stomach. I was crying so loudly the other day from it. I've found that...
I work full-time for a university doing payroll/HR. Desk job really helps when the joints are hurting too badly for me to move. I can sit with my heating pad everyday. My boss's daughter has Crohn's,...
For years, it was the joints in my limbs: fingers, wrists, ankles and knees. But, for the last year or longer, it's been my back and shoulders....