Thanks guys ❤️...
:( I just know most women also get constipated especially toward the end of their pregnancy but I’m definitely not there. Maybe the epidural blocks them up a bit? Like how narcotics can for some...
Hey guys, been gone awhile (as I’m prone to). Went into remission for about 5 years after my first bowel resection. It came back maybe 2 years ago but hasn’t gotten bad again yet so I’m just...
I'm sorry to hear about your friend, Gumby. I was diagnosed with lymphoma after being on Humira (and previously Cimzia and Remicade). Your friend is lucky that they found it early, mine was stage 3...
Thank you all so much. Your words mean so much more than I can tell you. I'm sorry it took so long to reply but it takes all of my emotional energy to think about all of that again and then I have to...
It's been awhile since I've been on here. A few times I've started to post but just got too overwhelmed with facing everything. I'm going to try to do a sum up of the last few years. I was steroid...
I had one that ended up being a fistula. Good luck...
My abdominal fistula gets better and worse but has recently gotten much worse. I really need to have tests run and likely be admitted to the hospital but I don't have time at the moment because I am...
Hey guys. I am doing a presentation on Monday about pain (how appropriate right? :P) and thought this would be a great place to gather some information. I am going to be presenting to MSW (Master of...
The one I have related to CD has not closed in 2 years even with medications but I think my abdominal fistula caused by surgery might be healing on its own. I hope yours has healed!!!...
I have seen these black stringy things in my BMs for a few months and couldn't figure out what they were so I just let it go. They break apart really easily and look like segmented black string. I...
I don't have any advice for a second one but I'm definitely feeling for you right now since I just had my first resection 2 months ago. I also had a lot of complications. I hope this time goes much...
Thanks guys. Sorry it took me so long, things have been bananas lately. I'll admit that I haven't even been good about the diet. It's just so hard for me to stay mindful of it if it isn't REALLY...
My surgery was a month and a half ago and my JP drain site turned into a fistula (it is also possible that I have a fistula going to my uterus). The doctors are kind of just...waiting and watching....
I had my JP drain removed yesterday and the surgeon put a wad of gauze on it and said it might drain some...well...that is an understatement. I don't know what normal drainage should be but I know...
Sorry it took me so long to get back to you guys, I haven't been able to make myself get off the couch to get back to the computer this week. Thank you so much for all of your replies. Some made me...
I'm finally at the point where I am starting to process what happened to me...I need to talk about it because I haven't quite dealt with it yet. I had my surgery on the 26th. I went in with the...
thanks :) Oh that's a good idea! I'll bring my laptop and play some Sims :P...
So the big day is nearing and I am getting a little anxious now. They are going to remove my stricture (about 3 inches of the terminal ilium) and my appendix. I THINK they may be taking out my cecum...
I'm on Cimzia and having a resection on Monday. My surgeon said for me to stay on it before but wants to see me after before I get my next shots. He thinks we may just stop it all together if my...
Personally, I always try to use the bathroom furthest away from the main gathering area whether it be the living room or the bedroom at night. If there are options and the other person doesn't want...
That really sucks and I totally understand. I have been feeling pretty well because of the steroids but I still have to be careful about what I eat. There were a few times last semester that we had...
Thank you! :) I will let you guys know if it gets bumped up. I'm basically waiting to hear from one professor to see if she will let me finish my class a week early. I'm trying to give myself as much...
Surgery is scheduled for August 2 but I'm working on bumping it up to July 26. I am sooooo excited and can't wait!!! The icing on the cake is that all of my family wants to come take care of me so...
My jaw started popping really loudly a few months ago after I started the Pred. I figured that was what was causing it but the GI I saw the other day said he'd never heard of Pred causing that. It is...
I've been on Pentasa for about 3 years and never had any problems with a rash. Is is possible its an allergy to something in the environment? Or maybe dry skin from weather changes? Hope you feel...
My GI won't give me pain meds because I am taking Effexor and he's worried that I'll get serotonin syndrome. I was wondering if anyone here has had similar troubles and what they did about it. My...
Thanks for the food advice. I would definitely want to work my way up to certain foods. I would probably start with cooked veggies to be safe but even that would be wonderful!!! I miss broccoli more...
Thanks Nanners. I know it isn't ideal to try to fit it into my schedule but I'm so impatient :( I really just want this thing out of me!! I'm tired of fantasizing about doing it myself lol. It would...
Thank you so much for all of that information!!! That was super helpful. I'm definitely going to talk to the surgeon and see what he/she thinks but I like to be prepared and have a plan set :) I'm so...
First I just want to say I love you guys and I'm so glad this forum is here. Second, I'm on my phone so I apologize in advance for possible typos ;) So I decided a few months ago that I wanted to...
Anyone a vegetarian? I've been veggie off and on my whole life but haven't been for a few years. My new boyfriend is veggie and I'd really like to go back but obviously that is a little difficult....
*huge hug*...
The pred made me break out really bad but one of the blemishes I had on my cheek refuses to heal and has been there since November or December. It looks like it scarred and I am thinking now that...
My doctor doubled my Effexor yesterday and I've been super depressed since. I know it's just the meds but it really sucks. I don't know if I should go back down to my regular dose or if I should just...
Well I managed to get an earlier appointment because of a cancellation so I will hopefully know more on Monday. I appreciate everyone's responses. I feel like I have a much better idea of what I want...
I needed to hear that too. I've been getting so randomly depressed lately. Today hit me really hard and reminded me why I refuse to ever get a gun =\ I made myself work out and feel a little better...
Beer is bad (but I still drink it), wine isn't great for my gut either. If you can tolerate the hard stuff, I would go for that but probably not mix it with anything too sugary or carbonated. Good...
Thanks guys. I'll give a call to my infusion nurses in the morning to see if they can get me squeezed in with the GI before the 5th. Hopefully it isn't anything big cause I need to graduate in May!!!...
haha yeah it will be awhile before I eat jello again but it did the trick. One pan of jigglers was more than enough to keep me feeling full. Hopefully I won't have anymore scopes for awhile so I can...
How long was it before you guys were 100% after surgery? I mean as far as being able to be up and about. I'm trying to decide if I could do it over a spring/summer break or if I should hold off until...
Thank you. It makes sense to have surgery when you are feeling better than when it's an emergency...I'm sure the healing process would be easier. My stricture is so tight that they couldn't get a...
I started having some LLQ pain a few weeks ago which I've never had before. My CD is in the terminal ilium so I always have LRQ pain when I'm flaring. I have tapered down to 10mg Pred but with school...
Thanks :) It's nice to see both sides of it...
I just thought I would share something that I found helpful when I was doing my last bowel prep. We decided to make jello jigglers instead of regular jello and it was great! I think the fact that...
To me, the thought of surgery was just out of the question unless I had an obstruction or was unable to get a flare under control for an extended period of time. However, I've been thinking about it...
Thanks guys. I'll check out the cream stuff today! I'm starting school again on Tuesday and my internship as well. I really didn't want to go back looking like the bearded lady lol....
Sorry to bombard you guys with a ton of questions at once. They are mostly silly (ish) questions but I've been really curious. 1- Does anyone know if waxing my Prednisone induced facial hair would...
I always flare at the beginning of the semester, I think from all of the stress. I take an antidepressant and as needed anxiety meds. Usually by mid-semester I am feeling better and by the end I feel...
Thanks!!! I was going to freak out if I had to start getting my face waxed forever lol. Oh I can't wait to be off of this stuff!...