I can't eat spicy Italian food but have no problem with spicy Indian food....
I have that too, I'm glad I'm not the only one! I'm not sure why it's happening but I just tuck a wad of toilet paper between the cheeks & that seems to do the trick....
I developed a lump on my neck after about a year of Humira. I had an ultrasound & a CT scan, which both came back negative but I was taken off of Humira just to be safe....
I have a dual-controlled heated mattress pad. I love it! It helps a lot with my aches & pains....
Hi onthecan (love the name), the only thing I have to add is to please please please ALWAYS take the time to read the side effects & warnings. I work in the claims department of a medical malpractice...
UC21, I've lost friends & a husband due to my Crohns & I think I'm way better off. The friends that have stuck with me & my new, understanding husband, are the best things that have ever happened to...
I'm so sorry to hear about your dog. I agree that this can throw you into a flare. I've been feeling kind of bad lately but last Tuesday, we found out our 10 year old doggie has untreatable bone...
p.s. I just read a bit of your blog. Just delete those hateful comments, no one has a right to judge anyone else....
I also disagree. And even if you did come here just to whine, so what? At least here we can whine to people who understand where we're coming from....
I take vicodin & I'm always worried about addiction. I come from a family of addicts & I've always stayed away from drinking, etc. It really helps slow down my guts & reduces my BM's to about 4 a...
That's weird, Nanners, that same thing just happened to me. I had been eating pumpkin bagels during the fall with no problems but last weekend I had a plain bagel & felt like I had been stabbed in...
I agree with Zanne, makeup tricks work great! Hang in there!...
I have trouble laying on my left side & can't lay on my stomach at all....
Asacol makes me lose hair so I take a supplement I found at Target called Hair, Skin, Nails. I just checked the label, looks like it's mostly biotin. Unfortunately, I hate having any length of nail...
I drink Emergen-C or Airborne when I travel. I'm proud that your not too scared to travel. Have a great time!!...
Anytime I have a problem with insurance, I send them a letter telling them if they don't resolve the matter, I'm going to file a complaint with the state board of insurance & I put a cc at the bottom...
I had all of those problems on both Humira & then Remicade. I was also getting horrible joint pain & weird inflammation all over the place. Last month I woke up & had a massive red swollen lump on my...
About the temperature, it is usually cold in the room & there's a fan inside the scanner that blows on you. I would recommend asking for a blanket instead of asking for the fan off. Moving air &...
Hi lass, I'm an MRI tech. I would recommend that you ask them to schedule you with sedation. We use xanax for sedation & it works pretty well. Are you having your abdomen done? Most times with an...
Yeah, I'm not real happy about the weight gain. I wanted to put on some pounds but not this many! I went from a size 0 to currently a size 10. I've had to buy new clothes every couple of months. The...
So far I've put on close to 40 lbs in a little over a year. Sometimes it's so sudden, that my skin hurts from being stretched. I'm quitting after my infusion on Thursday....
Last time I went for my infusion, they couldn't get a reading on my left arm after 4 tries. I mentioned that the Remicade makes my extremities numb here & there & that I'd been having problems with...
Hi luvnfishes, I get those symptoms any time I eat vegetables or fruit. Being that you're a vegan, are you eating those sorts of things? Digestive enzymes help me out a lot & they have vegan-friendly...
Thanks for your responses. I think I am going to quit. At least I can control my gut by not eating, etc but there's no control over the joint pain....
Hi everyone! I was on Humira for a year before I started to get lupus symptoms. I was switched to Remicade & have been on it for the last 8 months. It doesn't seem like it's making much more a...
I've put on over 30 lbs since staring biologics & it all seems to be in my belly, which is also bloated all of the time. I have to buy pants that are baggy everywhere else just to make them fit...
I was on Humira for a year & started to get lupus symptoms. I switched to Remicaid in January after a 2 month period of not taking either. My gut got really bad during those 2 months but the rest of...
I get pain in the area of my Crohns anytime I do exercises that involve my abs, especially when doing the hula hoop on my Wii Fit....
If you get an iPod touch, you can surf the net if the hospital offers free Wi-Fi. My Remicade infusion center has free wi-fi to I just play with my iPhone the whole time. Also, iTunes sells...
Hi Doc! I always have mucus, not sure why. Sometimes I'll think I'll have to go, run to the bathroom & it's just gas & mucus. I've mentioned it to my doctor but he didn't seem to think it was...
Definitely get a pain management doctor. My primary care doctor told me Crohns patients don't have pain. I went to a pain management doctor & they were very sympathetic & helped me out a great deal....
What?!? I better fill my refills as soon as they're allowed & start hoarding....
The "green" medicine works wonders....
I'm so sorry, Ryan. I was on Humira for about a year & started to get lupus. I've been on Remicade since January & am hoping I don't end up in the same situation....
Ok, I've used it for a few days now. It's pretty good but could use a few tweaks. Basically it's a log that you can enter your BM's, their consistency & whether or not there was any blood. You can...
Hi WriterMum! As an x-ray tech, I've assisted in many lumbar punctures. We usually advise people to lay flat for about 12 hours after the procedure to let the hole heal itself and to drink a lot of...
My boyfriend found this app for me. I'm downloading it now so I haven't used it yet but I'll let you know how it goes. http://www.wellapps.com/...
Mine is an internist but I barely go for her for anything anymore besides a physical. She doesn't seem to be real up on Crohns related issues. I was having problems with my eyes & when I saw her...
Sorry. Just saw it on CNN today. Didn't mean to double post!...
http://www.cnn.com/2009/HEALTH/06/11/teen.self.diagnosis/index.html I'm sure the pathologist didn't look at her slides very long....
They did one on an episode of Grey's Anatomy!...
I'll have to give that a try, MMMNavy. I have a lot of clothes that fit in the leg/butt area but I can't button them over my gut!...
Two years ago, after a year of trying to put on weight & get over 100 lbs, I gave up & cried as I gave away all of my "normal" sized clothes & started shopping in the children's department. Fast...
They are two separate scans. You can have a CT of your abdomen or a CT of your pelvis so even though they do them both at the same time, it's billed as 2 separate body parts. It seems like one to you...
I'm on Remicade & Imuran also. Remicade didn't seem to be doing much on its own so we added Imuran. I'm doing much better but since they're both immunosuppressants, I just be careful to keep my hands...
Where do you get it? Does it help with pain?...
I had the same problem with my primary care doctor, she said people with Crohn's don't have pain but would reluctantly give me 30 vicodin every 30 days. She also said it's a hassle because when I...
When my mom had gastric bypass, they gave her liquid vicodin because people who have that surgery have problems with absorption. I'm guessing it's the same for us crohnnies, since we all get vitamin...
We're all different, you can probably find something that works for you. I can't tolerate fruit or anything like that but I can eat candy like a maniac. And do! For some reason, eating something...
Thanks for posting that, kittikatt! That has always bothered me but I thought maybe I was just being overly sensitive. My other pet peeve is when people will just stand outside of the stalls having a...