That's what I'm trying to figure out... it's a very confusing issue. I know some people get iron infusions (IV) or shots, but these are expensive and carry the risk of severe allergic reaction. We...
I'm sorry to hear about what you're going through. Hope you get some relief soon. I have no experience with Imuran, but I had an allergic reaction to the bisglycinate iron (incredibly itchy rash and...
Same thing happened to me a few years ago... took a blood/mucous/stool sample to the lab and it tested positive for c.diff. My doctor was shocked, as was I. Did your doctor order a stool culture and...
Also, if your B12 levels are normal, I don't understand why your doctor has prescribed you Chromagen. It's basically just non-heme iron (damaging) combined with Vitamin C (helps your body absorb more...
Do you have a copy of your bloodwork? I'm wondering what exactly was at a level of 17 with a normal of 40-150. Sounds like ferritin to me. If that is your only abnormal blood result, it doesn't mean...
Thanks, everyone, for the input and advice. It sounds like both the Advil AND the high dose oral iron could have caused my current problem... certainly both together made it even worse. No more Advil...
Thank you VERY much for the information and reassurance, grayeyedblonde and NiceCupOfTea. That's exactly what I needed to hear. :) Angela...
Hi, another question for everyone... Has anyone ever attributed a flare to oral iron supplements? My doctor thinks I am having a Crohn's flare. I think it's either a C. diff relapse (had it 2 years...
Hi everyone, I have had many colonoscopies in the past, but always when things were "working normally". Only one ever showed any problems (small apthous ulcers in the rectum to 15 cm.) However, I...
It's very reassuring to know that there are others here who also have this symptom. I had a chest X-ray and an MRI, PFT's and a complete cardiac workup, all showing nothing out of the ordinary, so...
Hello everyone, I have noticed over the past few years that my fingernails have started curving down slightly at the ends. My doctor says it looks like mild or early clubbing, which is linked to our...
Oh great... I just applied a few weeks ago. Still waiting to hear. My insurance broker told me it wouldn't be a problem, that I just wouldn't get the best/preferred rate. Hope he's right....
LOL! Me too! Can't be any worse than what I'm eating these days anyway!...
This in today's news: http://www.webmd.com/ibd-crohns-disease/news/20090821/special-bacteria-may-curb-bowel-diseases?src=RSS_PUBLIC ...
I was given the Yellow Fever shots while in the USAF 20 years ago without anything but the regular side effects, like most people (soreness, lethargy) but a good friend of mine spent about a week in...
So sad. So sorry. :(...
I should have mentioned my sed rate was also fine (had to beg for that test, too), but I haven't had CRP tested....
Thanks for the information about Dr. Galland. I think I will look into getting an appointment with him. By the way, I'm in Freehold, Monmouth County. I had to push my doctor for blood tests for...
I have never had any of these tests, but I live in NJ too and was wondering who your daughter's doctor is? He/she sounds very progressive and smart about Crohn's! I have been having trouble finding a...
I had C.diff last year and my doctor started me on Flagyl but it was awful... terrible taste in my mouth, dizziness, etc. Since oral Vancomycin is not absorbed into the bloodstream, it has a lot less...
Congratulations on your upcoming wedding! I went gluten free and dairy free immediately after my diagnosis, and I've never taken any medication. I felt a lot of improvement in just two weeks....
Hi Susan, How stressful... hang in there Susan {{{HUG}}} I'm hoping it is just too early to see. Was it a transabdominal or transvaginal u/s? How long are your cycles usually, and when was your last...
Ouch! I can't imagine having labor pains all the time. (Well, actually I can and that's terrible!) Sounds like your symptoms are different and unusual. I personally think that being different and...
What is your usual spot for pain? I want to compare mine. My bloodwork all recently came back normal, too, with my sed rate just 5. But I always have pain/discomfort in the lower/mid right abdomen,...
EMom: Thanks for the welcome! You make a good point... I had forgotten about the protective benefit of probiotics. I take VSL and Florastor, and alternate with some others like Culturelle, etc. What...
I have flip-flopped on wanting a juicer too! I even ordered one and sent it back un opened. It seems the more I read about it, the more confused I get. On the one hand, I would love to have all of...
Gail - I don't mean to hijack this thread but I would be very interested in hearing more about your liver tumor if you feel comfortable sharing. Doctors found four small tumors in my liver last April...
I've read that some researchers believe that Crohn's severity varies between people but usually stays constant in an individual through a patient's life. In other words, if you have severe Crohn's,...
Being gluten-free is tough, but I definitely see an improvement in my symptoms. Who else here has gone gluten-free?...
I stay away from phosphates... I read recently that they might possibly increase the risk of lung cancer. It's amazing what you will find them in... flavored chips, most baked goods, meats,...
Did you take any iron lately? I had a reaction like that from an iron supplement once. But if the only thing new for you is the Remicade, that's probably it. You poor thing! Hang in there! Angela...
Hello everyone, I have been gluten and dairy free for a while now and see a lot of improvement in my symptoms, but I would like to see more. I'm considering trying the SCD (Specific Carbohydrate...
I'm recently diagnosed with Crohn's after having symptoms on and off for more than 10 years. In addition to the ulcerations in my terminal ileum, my doctor found a lymphangiectasia in my jejunum...
I had one about 3 months ago... got great pictures of the ulcerations in my terminal ileum, and I was happy to avoid a dose of radiation by not having the CT scan or upper GI series done instead. The...
Yikes, that was long, sorry! Angela...
Hi there, As some of you may know, I am newly diagnosed with CD but have had symptoms on and off for a few years. After reading many posts here, I am amazed at how many people here had a reflux...
Hello everyone, I am a 43 yr old female recently diagnosed with Crohn's after colonoscopy and small capsule endoscopy. I never have diarrhea, just a gnawing pain in my lower right abdomen, and pain...
Thanks, everyone, for the welcome, the enouragement, and the information! Kaycie: Yes, the Metformin is for PCOS. I wonder if there is any link between Crohn's and PCOS, or Crohn's and Metformin? I...
Hello everyone, I am a 43 years old female just diagnosed with Crohn's Disease after a small capsule endoscopy and colonoscopy. Fortunately, it's not severe, and I have apparently been living with it...