Hi tabicat, I may well be the xpert on constipation around here. I've lived with it all my life and had it severely for 25 yrs. When the others mentioned the fleets enema, they didn't specify oil...
I think it varies for different people. I don't really know how long it took for me as so many things were going on at that time. I can tell you that it works very well for me and has since 2006. I...
Hi sweetbabyray, I have been taking Entocort with Pentasa since my diagnosis in 2006 with good results and no ill effects. I hope your experience with it is as good as mine....
Hi Bev, Great to hear it's working so well for you and good to hear from you again....
I have pretty constant pain and times of intense pain. Mine is almost certainly intestinal spasms. Perhaps your doc would agree to trying an antispasmodic to see if that will help. I hope something...
I live in Tucson. I'm 4th generation southern Arizonan and I can't help feeling ashamed that such an unbelievably horrible thing could happen here. All of my friends and family are fine but one...
Hi Daunting, I'm really sorry you're going through this. Please try to understand that you are probably going through the worst period you ever will with this disease, whatever it turns out to be....
The only thing I can think of is to try something like Gas-X to reduce the bloating. If you can get the bloating down your apatite may improve. If you haven't mentioned that pain to your docs, then...
Well I hope it's not something incurable like Crohn's even if it takes longer to diagnose. If it is, then welcome aboard :(...
vid53, I take Pentasa and I was told that it is designed to dissolve at the end of the small intestine, in the area of the ileum. Perhaps you should bring this up with your GI....
I don't know if it will help right now but catnip tea helps reduce gas. I drink it a lot and it is a very mild fresh tasting tea. You just have to keep the cats away. lol...
Spider, you have Crohn's, AS & bone spurs? You have a full plate. I know how much a bone spur hurts and it sounds like you have several going down your spine, OUCH! . All I can say is "pain killers"...
Good luck! Finding the right doc can make life so much better. There has to be the right one out there for you, so don't settle for the wrong one. Sounds like looking for a spouse, doesn't it? LOL...
I'm so glad to hear you're doing better. Get your strength back at a reasonable pace and enjoy feeling better!...
Hi concernedparernt, I'm sorry you have to go through this. I can remember being young and stupid and thinking I new everything. We usually pay for such stupidity in some way. Your son will probably...
Welcome aboard Kid, I haven't had surgery for Crohn's yet and I hope it will be a long time in coming, if ever. Sorry you've had so many. If I do need one, hopefully you'll be around to give me some...
The part about infection possibly triggering Crohn's is very interesting as I had pneumonia just before the onset of my Crohn's. Anyone else have an infection just prior to the onset of Crohn's,...
Binya, I'd talk to my PCP about pain meds. They tend to keep better track of meds and GIs tend to dislike prescribing pain meds. I got over the concern about "addiction" quite a few years ago. I've...
Congratulations on avoiding an "incurable" diagnosis, and all the best to you too....
Hi akgrown, I'm glad you found the forum but sorry you needed to. You're starting out really rough with all the abscesses. I haven't had one and I hope to keep it that way but there should be someone...
Hi mighty.mouse, I have to say that I don't agree with the recent trend among Drs to start the "hard drugs" for Crohn's early in treatment. I feel that they should be used only as a last resort....
Welcome to life with open eyes Flipside. Thank you for sharing your story. I think you will find that your wife will be very happy with you sharing with her. She almost certainly feels that you have...
I get hot flashes, some pretty severe, but no temperature....
You might try the Atkins shakes, made for diabetics and people on the Atkins diet, if you don't want to make your own drinks....
When I'm flaring, consuming anything, including water, can cause abdominal pain. I won't pretend to know the reasons for it, I just know that it happens....
@Not2Spunky, Sounds like you have one of those GIs that you would be better off without. I can't believe he is prescribing an NSAID to you. :skull:...
I have a chronic bladder infection and cranberry juice clears it up faster than antibiotics do. I fact it clears it up long before I could get in to see doc. Hope you get that under control soon, I...
I had that once, long before crohn's, when I had a bladder infection. The urge to urinate was quickly joined by a burning pain. If you don't have the pain, I don't know what it is but someone else...
Either EMom or newfoundsun, please post that link here so we can all take advantage. I've decided to get one too....
The ideal method would be to go on a liquid diet to give your bowels a rest and then add foods one at a time to see how you react. I get the same kind of pain you do and it really helps me to go...
It depends on what it's made with. I react to beef and pork, so I just don't eat mammals. If there's any mammal in it at all, I'll flare....
Not a flop to me Sniper, I love it. Keep em coming....
I think we all go through this to varying degrees. From your docs concerns about irritability, I take it your taking prednisone. Pred will cause me to question every irritation I get. As far as...
I have horizontal lines in my big toes and vertical lines (raised ridges) on all of my fingers. So what does that mean?...
I'm glad it's helping Julie. I hope the taper goes easy....
I've never heard theauxs jokes. I'd love to hear as many as you want to embellish....
And you have a right to be mad. Dealing with a bureaucracy can drive anyone over the edge. I am so sorry you have to go through that to get treatment. Hang in there, it'll get better sooner or later....
I've never had a fistula so I can't speak to that but if you're still bleeding a considerable amount then that alone would indicate (to me anyway) that a trip to the ER is warranted. Hopefully...
My GP tests my blood for many things once or twice a yr. He told me to start taking vit D but it gave me horrible migraine headaches. A short time later there was a long thread on this forum about...
tiredguy, since its getting worse over a period of time, it would be wise to have your GI test for a developing stricture. Meanwhile, an anti-gas such as Gas-X might help while you pursue longer term...
onemoreday, if that happened to me I would not only change GIs at any cost, I would also place an ad in the local paper warning people that he had dementia. :devil: We have enough problems getting...
It could be gas but I've been awakened by hiccups when I had acid reflux. Hope you get it cleared up soon, that can drive a body nuts....
When I have to strain a lot with the C, I sometimes get sore in the sides or lower back. Hopefully that's all it is. I prefer to get sore sides from laughter, but Sniper hasn't been around enough...
I agree with the others and would add that I would fire that GI and find an intelligent one. There can be no excuse for not doing the necessary and appropriate tests to diagnose your condition before...
Thanks for posting that lilcrohnieUK, it's great to read such good news. May you live in remission always....
I've been having hot flashes and night sweats for many years. I thought it was due to the meds I was taking before my Crohn's dx but now I wonder. My hot flashes are worse then my wife had when she...
Thanks for making the hugs gentle Kitt. My back is worse than my Crohn's. Gentle hugs and good wishes back to both of you....
I used to have something like this happen every few years most of my life. It wan't until after my dx that I realized it was probably Crohn's all along. With me, when the pain pulsed each time it was...
I'll bet that if you polled a lot of GI docs with those test results and asked "does this patient have Crohn's? Yes or No." You wouldn't get far from a 50/50 response. I think if it was me I would...
No, psyllium husk never made me feel worse, it just acts like a slow acting, mild laxative. It usually takes a lot of it to do me any good and it takes a while. If you're feeling worse then you may...