Just need some advice! Last week I was hospitalized in the ICU for a GI bleed from my Crohn's disease. I required a lot of fluid to keep my BP up and a blood transfusion. The bleeding stopped on its...
Thank you for all the advice! I was taking 9mg total to entocort and 100mg of imuran. I actually saw a doc at the Cleveland Clinic last January about my Crohns options after a nasty flare because my...
I just recently found out that I am pregnant. I called my GI doc to figure out which meds I could and couldn't take. He said a definite No on the Imuran, but to ask my OB about the entocort. He also...
One if my co-workers at work yesterday asked me if I had ever heard of a "squatty potty". I hadn't . She proceeded to educate me about it and then said she couldn't find it anywhere because it was...
During my most recent flare, my doc put me on a prednisone taper, which is pretty standard. After stopping the pred, I noticed that I was still gaining weight (15 pounds) so far, I developed strech...
I was diagnosed with crohns when I was 18, so I totally understand where you're coming from with the whole young adult thing. I was a stubborn one and refused to let my disease keep me from trying to...
After my 4 day hospitalization in the beginning of September for a bad flare up, my medications were switched all around. Basically I left the hospital on Cimzia, and prednisone.... which I was only...
I had a colonoscopy May 12, and my doctor told me that my Crohn's disease looked like it was remission. I was thrilled! He also has always said that he thinks I have IBS. However, ever since the...
I also built up antibodies to Remicade. My doctor told me that on Humira, I would really only have a 30% success rate. I opted for a resection at that point. My Crohn's returned 6 months later, and...
I get terrible cramping pains there too. My doc told me that's where my Crohn's disease is, and thats why it might be a little bit painful. Before my resection, you could actually feel how hardened...
My mom said that she had to give me soy milk when I was a baby because I couldn't tolerate regular milk.......
I had a colonoscopy today because I had started with really bad cramping. He wanted to make sure there was no scar tissue building up at the anastamosis site and that my Chron's was not spreading....
I have a colonoscopy tomorrow, and like a pro, I have my Nintendo DS and magazines all in the bathroom, along with my precious cottenelle wipes. While waiting for everything to kick in, I was...
I'm the type of patient that gets all the weird side effects from meds. Things always seem to work opposite on me. I've been trying for years to find a diet that made me feel good, and go figure, it...
I failed Remicade tooo.... which I didn't know was possible until my Doctor decided to enlighten me. I'm on Humira now.. I don't really get any of those side effects from it... but has anyone else...
Here's my beauty secret! I do work in a hospital and all of the patients skin always gets dry! I always make the families bring in the Eucerin lotion for the skin. Its amazing. But for your cuticles...
my tiredness is one of my biggest complaints! I always know when my crohn's flares up, the rest of the day is shot because the exhaustion gets so bad! I was put on humira almost a year ago, and my...
I'm currently attending nursing school at Walsh University in North Canton, Oh. Its been a lonnngggg road due to my Crohns. I've had to stop for a resection, only to have crohn's reappear 6 months...
I only wipe with those Cottonelle wipes and I use Balneol.... its amazing....
I'm on Humira and Entocort and my crohn's is far from under control. I find that when my doctor tries to taper me off entocort my crohn's becomes 1000 times worse, so its obviously doing something...
Beers always tear my stomach up... but I do much better with liquors... and I'm a total liquor snot so I go for top shelf... Grey Goose and cranberry is a dreammmmm....
Just when I think I know everything about my Crohn's disease and what it does to my body and why, it seems some kind of new symptom appears. I'm currently in the middle of a moderate flareup.. I...
I actually have heard of Tysabri. My best friend has MS and is currently on Tysabri to control her relapses. Although the drug has been approved for Crohn's treatment, this drug does have alot of...
I had this same problem too! I would lose so much hair in the shower it would literally clog the drain in the middle of the shower and I'd have to stop and clean it out. [u]Nixoin [/b] really worked...
I guess I have been fortunate and really haven't had the problems of losing friends. My friends are all pretty understanding. There are definitely those ones that I can talk to about my issues, and...
My Crohn's is causing me so much pain right now, its hard for me to even type this or think straight. I can't get out of bed or really walk anywhere right now. My sister has to bring me stuff. I've...
I'm always exhausted. I never figured out why either.... my bloodwork always came back with no anemia or anything like that either... except when I had the GI bleed. It gets ten times worse when I...
This happened to me too. I couldn't even put a blanket over my ankles because the weight of it was excruciating, not to mention they were incredibly swollen. I was worried I had developed RA or...
So I know this might be a little bit weird, but over the summer I've gained about 10 pounds. Although most crohn's patients would be thrilled about it, I was a little irritated. My weight really...
Hi Kix! I've been doing my undergrad for going on 6 years now. I did have to drop some classes which put me behind some years, but you do what you have to do for you. I understand that it can be...
I had this problem for about a month. My parents thought I was nuts for having joint pain at the age of 23, but when I showed them the massive swelling they believed me. It was also in my knees and...
Since I was diagnosed at 18 (officially) I think the way I dealt with it was drinking... for a while, which in hindsight wasn't the best.. plus my crohn's would hate me for it... it was kind of a...
Fettuccine Alfredo....mmmmmmmmmmmm. Ice cream and most fried foods too... but I'm a sucker for a good cream sauce with my pasta! haha...
My GI doctor has always told me that crohn's patients tend to be very driven, and I'm no exception. The stress of nursing school has done terrible things for my crohn's, but with my doctors support...
Ugh I'm sorry that happened! I know how frustrating it can be. My body also knows when my next Humira dose is due... i have injected more than 24 hours early, once because I felt like shit, and the...
I'm actually in my last year of nursing school right now. I do work at the hospital as a nurse aid, usually 12 hour shifts. I have to say that they are incredibly understanding of everything... since...
I was also intrigued when I saw this ad on TV. I have not taken accutane, but regardless, these class action suits against drug companies still irritate me. Every single drug has side effects, its up...
Just have to vent for a minute. I called up one of my best friends today because I feeling just a little depressed. I've been under alot of stress latley and as a result, my crohn's has flared up.......
I think I'll always be single too. I don't think of it as a bad thing, I just think that with having Crohn's disease, we see life in a much different perspective, which most people don't understand....
I've filled my Humira prescription twice now since having that card and each co-pay has been exactly $5.00 for me. Are you sure the pharmacy is billing the right card? Sometimes they just see a...
I had this exact same problem when I was in the middle of a terrible flare up in January. My ankles were incredibly swollen, my elbows and knees hurt too. I was walking like I was 80 because the pain...
I personally haven't been on Tysabri, but my best friend is. She has MS. Her treatments started off well, but as time went on, she got sick for a couple days afterwards. She was on it for about a...
I just had a colonoscopy Monday because I was having GI bleeding. The doctor found Crohns all over my bowels, especially at the surgical site where I had my bowel resection last year. He told me to...
Thank you for all of your support! It really makes a difference. I'd never had an endoscope before, but medical procedures don't really get to me anymore.... with Crohns, unfortunaltly we all get...
All of December was a flare up mess for me. My doctor did a high dose prednisone taper, which fixed the Crohns, but caused other hellish problems. I've been having horrible stomach pains after eat,...
Against my better judgement I'm eating whatever the heck I want! My aunt is 100% italian and always makes delicious food! However, its full of butter, meat, and fat.... but so worth it once a year....
I'll be joining you. At this point I'm willing to try anything... and end my prednisone taper... haha....
Usually with a blockage there is alot of pain, and you wouldn't be able to have a bowel movement what so ever. Usually vomiting comes shortly after that. Perhaps you just have some narrowing of the...
I'm in nursing school.. going on to my senior year and i obviously deal with alot of pain meds. I always tell my patients that although their medications can be habit forming, if you don't want to...
I had my bowel resection a year ago, and was only in remission for about 6 months before the Crohns came back. That 6 months was amazing. School was alot easier to get through.. my gpa went from a...