Hi everyone. I have a son in college who I have on occasion written in about who has had Crohn's for almost 5 years and has not ever really been i remission. He is now in college and is holding his...
Hi We have been trying to get approval for Cimzia every two weeks for our 21 YO son for the last 3 months. He too has needed double the dose on all the biologic agents for them to continue working....
I was just wondering if there are any of you out there who have been on a steroid taper for a flare and had some periodic short term memory loss. My son has been back on Prednisone now for about a...
You know that you can and should appeal the HMO's decision. They will probably say no a few times before they say yes. Is you doc involved in trying to get the HMO to consider Remicade. Of course...
Thanks everybody. My son who is a freshman in college has not been in remission for the 31/2 years he has had Crohns. He started out treatment on steroids and moved to Remicade and Imuran within 8...
My 20 year old son with Crohns diagnosed 3 and 1/2 years ago is now beginning an enteral diet. He wants to know if there is anything besides the liquid protein drinks that he might be allowed to...
I know there are numbers of people on weekly doses and I think your docs have to at least give it a try. There are acually sample letters for physicians to use to have the dose of Humira increased...
I was just wondering if there is anyone else here on weekly Humira injections? My son (19) who has been on weekly injections since April and gets them delivered once a month, has noticed that the...
My son has had Crohn's for three years. Before he was diagnosed he had terrible breath and we did not know where it was coming from. He is still not in remission but has been on Remicade and is now...
Hi again! As the Remicade would wear off his joint pain would become bad and it would subside for several weeks during the hight of the effectiveness of the Remicade. Once he was off the Remicade it...
Have you been checked out by a rhumatologist? My son was on Remicade for a year and a half. It was great for the first year and then he developed antibodies to it. He began to get terrible joint pain...
Thanks to everyone who replyed. We have a tentative date to go to the Mayo Clinic in April but I am trying to get an appointment for my son sooner so that he does not have to go back on prednisone...
Has anyone had any experience with a consultation at the Mayo Clinic? Do you know who might be the best to see? Thanks in advance for your help?...
Cleveland , Ohio...
Pb4, Do you have any link to that article? One of my sons biggest handicaps with Crohns is the fatigue it causes him. Very little is written about this and although the physicians acknowledge it, the...
Hi v.scho! I am starting to look for possible clinical trials for my 19 y.o. son who is starting to fail on Humira. He was on Remicade for a year and a half until that stopped working and is now on...
Has anyone been getting these emails from Josh Golder about signing up for his book, diet, and videos undr the title Beat Crohns? Do you think there is any validity to his program? He maintains that...
I was just wondering how many people feel or have heard of others feeling that when inflamed their throat seems to swell up or feel restricted due to possible swelling. My son seems to get this...
I had written about a week ago about problems my son was having post colonoscopy. He had a colonoscopy and took his Humira injection the next day. Often he gets diarrhea the day before his injection...
Hi I am writing to ask for any advice from experienced colonoscopy enthusiasts. My 19 yo son was diagnosed 2.5 years ago and is not yet in remission. He was on Remicade for 1.5 years until he...
Thank you everyone for responding. I think to be safe I am going to make him an appointment with a urologist. This sensation can't be coming from nowhere....
Hi everyone! I have a question and wonder if anyone else has experienced this . My son has been complaining that he has been visiting the bathroom frequently feeling the need to urinate and in fact...
Well, my feeling is that you stay on anything that is at least allowing you to function as long as you are not having any detrimental side effects. So far although the Humira seems to be wearing off...
It seems that this research was done in 2006. Do you know if there has been any follow up?...
His CD at diagnosis included his colon,TI, rectum, and his stomach. Most of his disease is in his TI,colon, and rectum. He is on a prenatal vitamin, Tums, vitamin D, Folic Acid, Iron and B-12...
How long were you able to stay on Humira?...
Hi! I don't write often but I am a regular and find a lot of support and answers to questions that nobody but someone with Crohns seem to be able to answer. So thank you in advance. My now 18 year...
Hi Julie! My son was on Remicade for 1 1/2 years. At a point his dosage was doubled which helped for a while. IN April his GI decided to change him from Imuran to Methotrexate and during that switch...
Hi Softballfan! My 19 year old son was diagnosed 2 years ago and one of his most major symptoms has been fatigue. Prior to his diagnosis he would regularly fall asleep in class (even in choir) and as...
I am just curious if anyone who has had experience with Vitamin b-12 injections has any idea how long it takes to feel their effect. My son started injections today and will have one every day for...
Hi ! My 18 year old son just switched from Remicade to Humira as he had developed antibodies after a year and a half and on a max dose. He has had the two loading doses and it seems to be working as...
My son was on Imuran and Remicade and was recently taken off the Imuran and it was exchanged for Methotrexate. The Imuran or Methotrexate is needed along with Remicade in order to alleviate the...
Hi Julie! My 18 year old son is just changing from Remicade to Humira and his story sounds very similar to yours. He was on Remicade for a year and a half and experience much relief from it. about a...
Hi Lissy! My 18 year old son was diagnosed two years ago with Crohns. He started Remicade about a year and a half ago. about 4 months ago he started having terrible joint pain near the time he was...
I would be curious to know how your gut is doing. Often with Crohns Disease if your joints are not doing well then your gut may be inflamed as well. It can also be that your joints can hurt and your...
Maybe it is not an early sign of Arthritis but rather a sign that the inflamation in your gut is present. Did you recently switch from Remicade to Humira? Maybe the Humira has not yet taken effect....
My son who was diagnosed with CD two years ago had no joint pain initially and only 4 months ago developed it as his Remicade would wear off each month. As soon as he got his Remicade the joint pain...
Hi pb4. I am just curious if you have had any colonoscopies to see if your dietary changes have made a significan difference in the health of your colon. It sounds as if the diet and vitamins have...
Are you in Ohio because so am I. My 18 year old son was diagnosed 2 years ago with Crohns and is on Remicade and Methotrexate. Are you happy with your Drs. It sounds like you and your daughter have...
Can you say more about why or how the Remicade did not work. Most people take either Imuran or Methotrexate along with Remicade to avoid developing antibodies....
Have you thought about going to anyone at the Cleveland Clinic? Maybe your health insurance does not cover Clinic doctors....
He goes to a peds GI at UH. Are you going to Dr Katz at UH. My son saw him also for a consultation. He seems to be very nice but not particularly aggresive. I hope you find somone to help you as...
That was probably the story about my son. We were on the 7:00pm news. The school has been horrible about the Crohns. They will not budge. They have no idea what he is going through and I am not sure...
Hi Everyone! I do not write in often but I am on daily reading and you have been one of my most valuable sources of information. In anycase my son now 18 was diagnosed almost two years ago. He began...
Thanks so much to those of you who have written in. It is so helpful to hear and learn from your personal experiences and insights. Your responses have been so balanced and rational and I appreciate...
I am just curious to know if anyone has not had success on the Makers Diet or other similar diets. My now 18 year old son was diagnosed with Crohns in August of 2006 and he is still not in remission....
Hi! My 18 year old son is being switched from Imuran to Methotrexate today. He is also on Remicade. They are switching him because there is research that shows that the combination of Imuran and...
My son also had horrible hand tremors while on Prednisone and even worse as he was weaning off. He is now on Remicade and the tremors are gone. He is 18 and was diagnosed when he was 16. Hope this is...
I think the asprin in addition to being helpful to those with cardiac disease has recently been found to prevent colon cancer. Pentasa I have been told has similar properties and it to is believed to...
Hi! I am a regular lurker here and I do on occasion post something. I have an 18 year old son that was diagnosed 11/2 years ago with Crohns and has not yet achieved remission. He has been on Remicade...