Thanks - I had the same thought one day last week and had some soup with onion powder in it. I got increased pain (although not as severe as my worst nights) and diarrhea returned the next day. I...
I started a flare within the past couple of weeks/months - hard to pinpoint because my doc thought it was ibs based on improved blood work. I had several isolated episodes of severe pain - sometimes...
Hi, I had gastroparesis for several years (off and on, but seems to have been better the past 2-3 years). I couldn't handle reglan - it would knock me out within minutes of taking it. I switched to...
Others will know better, but from what both neurologists told me, MS is usually evident from 1 MRI because there are typically many active lesions. My lesions are inactive so if I have MS it's in...
Thanks - I'll ask again about Lyme disease when it see the next neurologist. Since my last post I got the results of the last MRIs, but otherwise I'm not really any further along. The cervical and...
Thanks Opugirl. The doctors already ruled out lyme disease during an early round of bloodwork....
I hope you find an answer, but i thought i'd throw in my 2 cents. I was on entocort for about 3 years continuously (this was awhile ago, so I don't recall my dose, but I'm assuming that I was at the...
Hi...I'm new to the MS forum, but have been on others...I've been relatively healthy over the last year or two(except for the last 3 months), so I've been absent from the forum altogether. Long story...
Hi Sara, I've been dealing with nausea lately too. Zofran works for me, so I can't help with Rx remedies but I do have bunch of OTC tricks that I use. Some of them have been mentioned -- coke...
NCOT - I skimmed through the posts, so someone else may have mentioned this, but i wanted to throw it out there. I think most mental health care professionals would have a difficult time truly...
My psoriasis is primarily on my scalp, with occasional outbreaks in eyebrows and ears. I've had psoriasis for about 22 years now (currently 34). Currently I treat it with either Olux foam or Clobex...
Thanks for the suggestions -- I actually just picked up some prunes, so I'll give those a try. Given my other issues I think the prunes might be better for me right now than juice, but if they don't...
My usual tendency is towards diarrhea, but over the few weeks I've been tending towards constipation. The constipation episodes have not been full blown until this past weekend. I've been having...
Hi, I live in a fairly big city with plenty of GIs, but choose to go to a GI who's about 25 minutes away (I know not really a comparison to 90 minutes, but still a bit of a hike). Long story, but...
I take librax on an as needed basis as well for stomach spasms. I might go months without taking it or take it multiple times a day (or anywhere in between). The first few times I took I felt a bit...
ChelRebe - I did have hair loss while on remicade, but it was not related to the remicade. I had assumed it was the remicade at first because it was the most recently added med, but my doctor, nurse...
Trust me, if I could have afforded it at the time I would have had a new one made. I was going through some rough times financially. Between my mom and my uncle (who's a dentist) all I would have had...
I hate to have to admit to it, but I've done that too! It happened the night before my mom and I were going to visit a family friend for a week. My mom used to be in the dental field, so she told me...
I was on Remicade for about a year and a half and had no real side effects (weight or otherwise). The worst of it was being tired after the first few infusions, but that was more likely due to the iv...
Thanks for the replies Couchtater and Moo'smum. Couchtater, the digestive enzymes are a plant based variety -- I used to take pioneer brand digestive enzymes but after I had a hard time finding them,...
I’m normally on the Crohn’s section on HW, but the GERD section seems more appropriate right now. I’m a 34 year old female. In addition to the Crohn’s and GERD, I have gastroparesis, celiac and IBS,...
You can also try taking folic acid (1 to 2 mg). My rheumy suggested I increase my folic acid when i started getting an outbreak of mouth ulcers in response to methotrexate. I've since found that it...
Ivy - I called in for all meals for a day at once (I think it was the night before, but it's a bit of a blur). Ordering a days worth of meals cut down the risk of forgetting to order. If you weren't...
The last time I was in the hospital i was on a low-residue, dairy free, gluten free diet. I progressed up from liquids to soft foods to solid foods. I ordered from a menu and it worked sort of like...
Thanks for the replies -- it's nice to get a dose of reality from others going through the same things. MToronto -- do you know if LDN helps prevent injury or treat existing injury? I'm not that...
I have joint involvement with my crohn's (and may also have psoriatic and/or rheumatoid arthritis...rheumy won't commit to type). Over the last 2 years, I keep getting bouts of mostly spontaneous...
I have it too -- HPV doesn't seem to be affected by crohn's itself, but some medications can make you more prone to an HPV outbreak. Mine was in remission from the time i was diagnosed with crohn's...
Dave, I don't have much experience with Pentasa (I stopped after a few weeks), but I'm on Apriso now (my doc also recommended it after finding inflammation in my small bowel). Of all the 5-ASAs I've...
I'm lucky in that it doesn't usually get bad until close to the end of the work day....i've been trying to wear loose fitting pants and keeping my fingers crossed that I can get home before it gets...
Nanners, what Funguy said made sense at face value, but I think you're right on this one. I was doing some reading on SIBO last night and the articles were suggesting a combination of probiotics and...
Good point Funguy. I do take them ... if it is bacterial overgrowth, I'm sure they're not helping. I need to update my signature...I switched from VSL to Align at the beginning of the year....
Thanks for all the helpful hints. Roni - I tried the honey last night and the chamomile tea today at work, which helped keep things at a bareable level. I now have them both in the same place and...
Over the last few weeks i've had episodes where my stomach gets extremely bloated, sensitive to touch and painful. It typically starts between 7-8pm and lasts through the night (I go to bed in pain...
Hi Michele, I eat gluten free, but tend to eat dairy (if i'm in a flare I avoid dairy too). I can't comment on whether it makes my crohn's better/worse -- I started eating gluten free a few years...
I've been on Canasa now for about 7 months. The Canasa has worked well for me and I pretty much know the times of the day that I'll need to go to the bathroom. Over the last few months I've missed a...
Sickofitall - I agree with teddybearweiser....talk to your doctor...it could be "just" the flu or it could be a bad reaction to imuran, itself. Imuran is an immunosuppressant which would make you...
Have you seen a dermatologist about the scalp sores? I'm wondering if it could be psoriasis -- it's hard to tell from your descript ion, but the timing is a bit suspect. Do the scabs have a silvery...
Bella - I had the same flu-like reaction after my first shot. I had been on oral mtx for 2.5 years and just started injections 2 weeks ago. After the first injection I could have sworn I was coming...
Hi Jen, I'm on methotrexate for arthritis (I find it helps somewhat with Crohn's but still flare occasionally while on it). None of my doctor's ever mentioned a risk of infertility with mtxafter...
As others mentioned too much water can be dangerous -- best to balance it with some electrolytes. Also, too much water too quickly (or other liquids) can wash away the mucous coating on your tongue,...
Stef, I'm sorry you had such bad consequences. Hand deformities have been a big fear for me. Rheumatoid arthritis ravished my grandmother's hands and is starting to affect my mom's hands as well -...
Thanks Lil - knowing that someone else is going through something similar gives me hope that my rheumatologist won't look at me like I have 2 heads when I go in complaining of pain after starting...
Thanks Keeper. Not that I wish that anyone gets worse, but I'm glad to know I might be on to something. Melissa...
Hi, I have some type of autoimmune arthritis - my rheumatologist hasn't officially labeled it yet, but strongly suspects crohn's related. I started methotrexate when i first started having arthritic...
Hi Snow, My stats are pretty similar to yours (5'2" and a bmi of 42). I think mmmnavy and her GI are onto something with the hoarder metabolism - that's the way I always thought of it with me. I...
I just came back from the allergist and finally feel like I'm making some headway. He suspects neutrophilic urticaria (hives caused by the white blood cells in the mast cells). I just had some blood...
Thanks for the info Kitt. I'll see what the dermatologist says tomorrow and will also probably make an appointment to see an allergist (I have an office scoped out, just didn't get a chance to call...
Thanks Sherry. The last new med I started was about two months before the hives started (I've taken other forms of the medication for about 3.5 years now though). Other than that, I took an...
Today is the start of week four with hives – I get 3-5 new hives a day and each one lasts about 4 days. Reading through some of the other posts, what I have seems minor in comparison, but when they...