My PCP put me on Lexapro. He said is proven that anti-depressants help with crohnic pain. And with Crohn's and gastroparesis, I'm constantly in pain. I was wondering how many of us are also on...
I was in the same boat. I tell my GI doctor all the time I'm in pain, and he won't prescribe anything. Because it slows things down...blah...blah...blah. So I went to my PCP, and I explained the...
I don't think your rx will be that far off, my eyes get worse and better, and I wear the same rx thru it all. The glasses help. I also have been dealing with dry, tired eyes. Thought maybe from the...
My vision has not gone back to "normal". But it does somewhat improve about a month after prednisone....
I take reglan to help my stomach digest food. I wasn't digesting at all. I was vomiting up everything and had severe pain after eating. After having an EGD , turns out I have gastroparesis on top of...
I was first put on prednisone at 16, and shortly after that, I would say a month or so, my long distance vision went downhill fast. I went to the eye Dr. for glasses. I now need glasses to drive,...
The only iron I tolerate is thru IV infusion. Any pill or even vitamin with iron tore my stomach apart! It didn't cause diarrhea, just pain. So finally, dr. ordered me infusions. My CBC has been 12...
Dr thought my gallbladder was acting up recently, but turns out I have gastroparesis. LOTS of nausea with vomiting and pain, pain, pain. I think when one has crohn's or any sort of digestive issues,...
Thank you all for your input! I guess time will tell if the reglan works....
Thank you crohnielass. That website was very informative. It says that medications such as "hyoscyamine; Bentyl; Levsin; and narcotics" all can effect gastroparesis. Turns out I've been on ALL these...
I have been in and out of the hospital 4 times now in 6 months. Thought I was flaring/blocking from the Crohn's. This last time they did an EGD to rule out any blocking, because CT scans were...
I've had a chiropractor tell me he can cure my crohn's. Total nuts! Not all, but some are. He wanted me to take no meds at all, and just come 3 times a week for adjustments. No thanks....
Thanks everyone for your input. It really helps to know that other people know exactly how I feel. The pain is terrible - I don't even want to function. Unfortunately my insurance requires...
Thanks for your response, I am totally feeling like "get this thing out of me" right now!...
I notice in the mornings that I do "go" many times, but it's also the only time I don't have that extremely full and bloated feeling. By 5 pm, I am so bloated and gassy, I can't take it....
I've been in the hospital three times in the past six months, each time with extreme pain. It is above my belly button, in the center of abdomen. Because I have Ccrohn's they have been treating it as...
I follow a low residue diet always, unless I eat out and know I will suffer later, but sometimes its worth it. The ONLY fruits and veg I can tolerate come out of a can. they are: Peachs, pears,...
Scrambled eggs, white bread, vanilla pudding, organic applesauce, low-fat american cheese, lean beef, chicken, turkey, mashed potatoes, sweet potatoes, ensure, saltines, mac n' cheese (the boxed...
I was recently hospitalized for a flare up and of course each morning they do blood work. My CBC (iron) was reading normal, but as I got more fluids in my body from IVs and was hydrated, my CBC level...
Dr called today with results. My hemoglobin, protein, and potassium are all really low. He said to start taking protein supplements, iron, and eating a banana a day. We'll see. Thanks again!...
Saw my doctor today. He ordered blood work and a urinalysis. He seems to think it's a protein/malnutrition issue. MMMNAVY - I asked him about heart disease, because it is a prominent issue in my...
I had 23 inches of small intestines removed. I went into surgery not knowing if I would wake up with a bag or not. The doctor said he would have to see when he got in there, thankfully, the...
Thanks so much for your input! I feel a bit relieved knowing it could be crohn's related. I'm reading things online, like heart failure and edema and it's scaring me. Unfortunately, I am a...
For about 2 months my ankles have been swelling up. Some days are worse than others, sometimes my legs hurt as well. I have no tingling or swelling anywhere else. It really is scaring me now, because...
This is a typical conversation at our house: Yelling from downstairs, "Amy, what are you doing?" Me, "I'm in my office." (aka bathroom) or- Yelling from downstairs, "Amy, what are you doing?" Me,...
Thank you all for your congrats and kind words! We are planning Sept 2010, but that could change. Lots of planning coming up, but we are super excited for it all....
Thanks you guys!...
I just want to say that I have truly found, who I believe to be, the most awesome man in the world. On Easter Sunday, my boyfriend since 7th grade (crazy right?) proprosed to me. If I were him, I...
Isn't it nuts how we all have the same (or similar) disease and yet everyone is SO different with what works and doesn't work for them?...
popcorn, nuts, seeds, whole grains, and lettuce! lettuce is the absolture worst!...
I totally know what you mean. I can't usually control myself when there's so much awesome food around. I am currently following a low residue diet, and I know Easter is going to be hard. I made a vow...
After my resection, I still had diarrehea. I never went into remission. The blockage was taken care of, but the Crohn's symptoms never went away, they were just less severe than before surgery. I...
fruit roll ups, fruit by the foot, and swedish fish are all good at hiding pills in. They are pliable enough and are easy to wrap areound pills. The "mini" swedish fish are almost a large pill size,...
I was diagnosed at 16, but had issues since I was about 10. It started out as irritable bowel syndrome....
I would not recomend taking in any more fiber than you already are. You don't want to bulk up your stool anymore than it is. You mentioned your eating alot of fresh fruit and vegetables, that...
The only pain med, besides my vicodin, that works is Advil or Motrin. I have never had a problem with either of them, and I always take with some food. Tylenol is a joke, I don't even bother....
I was in the middle of flare and had lost about 10 lbs. Being tall and thin to begin with, 10 lbs. made me look like a twig. I got so many comments on how good I looked! Normal people would be happy...
A low-residue diet is the ticket for me. I eat very low fiber foods and drink ton's of water! It's the only diet restictions I give myself. Food shouldn't control your life, but unfortunately with...
After I had my resection, morphine alone did not touch my pain. I was actually given morphine, then dilaudid (sp?) on top of that. It actually worked. don't know if your dr's will approve this...
I was always a teenager with perfect, clear skin...until prednisone!!! I was covered all over my face, back, chest, and shoulders. I was painful, itchy, and just plain ugly! Then I found Proactiv. It...
I truly understand how you feel. Being young and also having a father that shows favoritism to my sister, I totally get what you are saying. When you don't feel well, and have pain constantly, it's...
I get very blurry vision on any dosage of prednisone. I have worn glasses since I was 15, but on prednisone and about 2 months after I finsish, I can barely see with my glasses on!...
Have you been tested for C. difficile? It's really awful smelling. :( This is the technical definition: "Clostridium difficile, often called C. difficile or "C. diff," is a bacterium that can cause...
I totally understand! I am a hairstylist, and I can sit around for an hour feeling fine, and then when I have a client in my chair, I have to go! I don't hear a word they say, all I'm thinking is,...
Thank you all for your responses! It's so nice to talk with and read about other people who truly understand how I feel. Since Saturday (after the ER), I have been on 20mg of Prednisone, and my...
I am currently in the first few days of trying a low residue diet after a TERRIBLE flare up. So far so good, but I am eating the same things over and over. Is there any pre-packaged foods/snacks that...
Thank You! I have had Crohn's for 7 years now and never seeked the help of others like this. It is so refreshing to read about others just like me!...
I feel bad for people who can't laugh at themselves. Living with Crohn's obviously isn't fun, but you can't take yourself too seriously. You have to get over the "embarassment", farting and pooping...
Remicade was a miracle for me for about 6 months, then it stopped working. :(...