I have had this issue for 17 years since being diagnosed at 14...i recently started taking a certain herb that is inhaled and soon to be legalized in CA. I havebeen on Humira for almost 2 years. With...
I have been on humira for a year. Although it has helped the crohns i am not in symptom free remission. I flared once very bad. And i honestly feel that i have aged 15 years in one year. I am 30 and...
Told ya! Lol...
Just google stemcell treatment for crohns. A friend of mine was going to go when he thought he may have gotten cancer. During his research he found a lot of info on crohns and he called me really...
In europe and south America they are having 80% success rates with complete no symptom remission at the 6 year mark with stemcell transplants. 20% have had their symptoms decrease by such a large...
Well its no biggie ill just drink it in moderation. A cup every now and again. But tomorrow im styling hair for a big fashion show and will need a cup at some point im sure!!!...
Well it caught up with me last night and i have been pooping since 2:30 am! Lol...
Well i appreciate all of your feedback. The only ill effect i have is if i drink it on an empty stomach i get Jittery! Lol and a bit aggressive...
So i am 30 and have never been a coffee drinker. I started having ine cup of java in the am with sweetner and soy and i have been so regular since. It also helps me with not having to strain as much....
Nanners thank u! Im gonna go eat!!! Lol...
Got to weigh myself again after the whole lymphoma scare and i only weigh 128 lbs. I havent been this light afterva flare for years. However i also did not use prednisone this time. I have been doing...
Test results came back and there are no signs of Lymphoma Yall!!! Lets have a Cosmo!!!...
Okay thats over! Really no big deal until the radioactive dye made me vomit!!! And i was in the donut up to my chest with no where to run! Lol the nurses scrambled and got me a bowl...they said...
Thank You!!!!...
Tomorrows the big day...was more scared of the iv than the results until i had a bad dream last night that the results were positive for lymphoma! Aaaaggghh and I do have a strong dream intuition...
Yup since ive been diagnosed sometimes its better than others but i have never been completely free of it...16 years now. Slimy is the word...i call is swamp behind!...
Thanks! I just cant be bitter or angry or sad or even mad, because hose are mments i will never get back... Ya know what Im sayin???!!! Its all about attitude In my case I have to laugh because what...
Wow....I have to say that I am not terribly worried...C'est La Vie...what will be will be you know what Im sayin yall! LOL I so appreciate all your feed back...Im just going to go with the flow and...
Had my check up today with GI after coming off of a major flare. I have felt consideribly better for the past 4 weeks and have been eating pretty well. My appetite is back Im eating healthy and back...
Haha im the polar opposite! Having crohns since i was 14 has made me so hard...i cant cry at all and i cant tolerate weakness in anybody except children...if u are an adult and try complaining about...
I am in cosmetogy school, and will finish in June. Hoping to convert our studio apartment into a salon when i am finished! Working next door would be Heaven dealing with this disease. The best part...
Hey artist guy i live in SD as well. Have a house in North Park with my partner of 3.5 years...
Well Well Broomhilda...what would you know I came home today from school took my temp and 99.5... Im gonna check again before bed then in the morn then after school... Does low grade fever mean...
Havent slept well in a year...dont know who to talk to about it....
Could low red blood cells from Humira be causing me to be constantly cold? I feel like My insides are cold, no matter how many layers of clothes i have on....
Thanks im really ok just annoyed lol! Im to young to be incontnent lol...
Well i have had a fistula and this is different this is deffinitley coming from my rectum. Im leanimg toward proctitus. Dr is wonderful i just have never mentioned it to him but he will get on top of...
I would think ivy but there isnt any pain... Or burning...
Thanks!! I have never mentioned it because i assume it would go away when flare went into remmission but not the case. I have an appt in two weeks and will talk about it...
For the past year I have had the worst leaky butt ever! About once a week I wake up with wet spots in my undies! Its not poop but yellowish stuff with verl little oder. I cant walk around anywhere...
I have had the absolute worse leaky behind the past year...and it includes soiling my underwear at night!! Its so annoying and not to mention embarrassing. Im not crapping on myself but wakng up and...
It is so cool to hear these stories of love amd support! With so much bad stuff on the news and in the papers, its cool to realize that love is all around us. Especially when it comes to partners of...
Lmils i am in the same situation. And I have a four year old daughter that he considers his own and completly takes the load when I am down. I to have never felt so loved and suported on all my life!...
Took the survey glad to help!...
I just wanted to ask you all how do you show your gratitude to your significant other when they are so understanding, patient, supportive just over all great toward you and your disease. My partner...
Both! When the pain in thigh becomes unbarable i switch to tummy. Right now im so thin and have no thigh fat so im gonna have to do tummy for a while....
Going to get some today !...
I have had horrible night sweats. I have had to litteraly change my clothes last night it was as if i fell in a pool. What do u all do when u have night sweats or how have u dealt with them in the...
Ur gi didnt show u??? Weird! it was a theatrical production for me! I had to watch DVD first then the nurse did my loading dose for me and demonstrated 4 times LOL. She offered me a try I let my...
I have been on humira since april 2009 and flared in dec 2009 dr did quick scope and said the crohns looks worse than before i started. So he is trying once a week dosing for 12 weeks. He keeps...
Well im in a foreign land it feels since being on bio's for two years after dealing with this diesase for 16 years. It has progressed into a new and different monster and i have to find out what...
I have been on humira for 9 months and flared 3 weeks ago. To treat flare dr prescribed weekly dose of humira for 12 weeks. Took 3 rd week shot today and i feel a difference. Does anyone else take...
Loved boost and the cvs/walgreen brands and they used to help me maintain weight. Buy last two flares i could not hold them down! Especially chocolate i throw it up within 5 mins of consumption...
After checkng for everything dr did sigmod this am and said its crhns and its vey very bad... I asked abo swichng to remicade and he said no we r going to humira once a week first.......
After 9 days of high fevers, diahrea , some vomitting and two battery of test that all found nothing my GI called and says he thinks its crohns!! I have never flared like this i had very little pain...
Very concerned that i might be catching humira induced lupus....
I understand JavaJAy, but if I live in fear of "LIVING" then Crohns wins...if this is the only life I get then I have to make it count! No regrets and no Crohns holding me back......
That is what my thoughts are Undone! That their germs are foreign and my body just went into high alert! They actually arent itiching anymore and the bruises arent as sore. I was in Puerto Vallarta...
I have noticed that since taking Humira and especially since the Seasons have changed that I am constantly cold and can not get warm. Unless I am in direct Sunlight or in a hot hot shower I am cold...
well i just got back from my first trip to mexico while on humira...i will have to say it was a bit of a challenge and for the first time i really noticed the effects of humira on my immune...