WARNING - VERY LONG POST As a lot of you know, I have had a lot going on in my life in the past few months - my mom was hospitalized for a time, my dad had a heart event, my cat has cancer, and I...
Got the pathology results from leep - completely normal. I had the pathologist retest the pap, and they are saying they still see the high grade dysplasia. Talked to my doctor, and she has no...
I am beginning to think my pap was a false positive. I got my ECC test back and it was normal. So, after the high grade abnormal pap, I've tested negative for hpv, had a colposcopy where ny gyn said...
Thanks gumby. I'm doing better this evening. I just needed to have a good cry. I got a notice from the bank that my checking account was overdrawn. I usually keep at least $5k buffer in there. So, I...
She did a colposcopy, and said everything looks normal, she found nothing to biopsy. She took a sample through ECC of the cervical canal to get pathology about the inside part of the cervix. I am...
Sounds like you are doing at least somewhat better. I wonder if you need to try an elimination diet perhaps. Cdiff does a number on your colon, so you may have post infectious ibs. My husband had...
Maybe I missed it, but I don't recall seeing a post from you about your colonoscopy, and how you're feeling. I hope you're doing well, and had a good holiday. PV...
I'm sorry you need antibiotics. After my husband's bouts with c-diff, we are very vary of antibiotics as well. He recently had to take antibiotics for a skin abscess (not crohn's related). I think he...
Thanks for posting this. My husband would love to do this....
From the little I was able to read about pelvic floor descent, it sounds like it can be caused by constant straining with bowel movements, which I think you've been struggling with because of...
My cousin who was a smoker, quit smoking cold turkey after seeing a hypnotherapist. Apparently, when she saw someone smoke after that, she felt revulsion, not craving. No idea if this has worked for...
Homeopathy is no better than placebo; scientific facts contradict the axioms of homeopathy. Read about how medicines are made with homeopathy, and you'll realize that it is really completely...
I know this isn't crohn's related, but you folks tend to be pretty well read and experienced with all digestive issues, so I thought I'd ask for help/support here. My sister just called and said she...
A colonoscopy may not be a bad thing. My husband had both cdiff and crohns flare up at the same time. They knew about the cdiff and were treating it, but the crohns was completely untreated until...
When my husband was first diagnosed, and was on a large amount of steroids (80mgs of solumedrol) and remicade, he was on vancomycin for c-diff as well. He tested positive for c-diff while on...
My husband has now been on remicade for over 6 years, and so far, it has been doing well for him. Our insurance changed to where a remicade infusion went from being $50, to $1200 before insurance...
I'm a caregiver. I'd certainly participate in such a forum. Thanks!...
Celgene recently bought ged-0301 from Nogra pharma for $710 million after seeing unpublished phase 2 results. The phase 2 results should be published end of this month. Celgene plans to start a phase...
Sorry gumby, I have no advice on the nausea. My husband didn't feel nauseous on the vancomycin. If vancomycin is making you feel bad, there is a newer more narrow spectrum antibiotic called...
I'm sorry to hear that you have cdiff again, but I am glad to hear you have a doctor who is going to get you through it and not fob you off with IBS or bacterial overgrowth with no testing. My...
My husband has patches of eczema and we have no idea whether remicade caused it or not. My husband has continued to take the remicade because it is keeping Crohn's in remission. He uses...
As Kazbern said, there isn't a mild steroid per se, but there are steroids that are less systemically absorbed like entocort (effective for small bowel disease) or uceris (effective for large...
Insurance quite often does stuff like this. They want to keep costs down, and since vedolizumab is new and they haven't yet got a standard/usual order in which to prescribe (as in normally they go...
If you have rectal inflammation, I think you should try a mesalamine suppository (Canasa) to bring down that inflammation. To me it sounds like you are experiencing tenesmus (urgent need to go),...
I'm so sorry to hear that Habs. Only time will help, take it one day at a time, and be kind to yourself. Please take care of yourself, and listen to your body. ((Hugs)). PV...
No, you just slip it up your butt like you do hemorrhoid suppositories. Also, I don't suggest systemic steroids either (like oral pred). My husband had osteopenia of the spine after being on high...
I second a mesalamine suppositories and perhaps also cortifoam suppositories (steroid). My husband is on remicade, canasa suppositories, and lialda. There is a new steroid called uceris, which is...
Minnie, I know you've heard this before from me and others, but I really wish you would give some other medications a try, like the TNF blockers. It sounds like your disease is running rampant, and...
I don't think you have exhausted all your med choices yet. I think there's vedolizumab, stellara and cimzia to try, in addition to imuran, 6mp and methotrexate. I think it is very tempting to think...
You know I thought this was an old thread! I read the date, but I completely missed the year! Well, I'm glad you are still better!...
I think it is a delayed infusion reaction. I think you need a course of pred. But your doc will know best. I hope you start feeling better soon!...
Hey gumby. Sorry to hear about the cat bite, but I'm glad to hear you are feeling better. Perhaps until all the antibiotics are out of your system, you should take florastor as a preventative against...
My husband has Crohn's disease and he didn't have the time to wait to take the vaccines before he started remicade because he was very very sick with crohns and needed to start remicade right away....
Oh geez! I completely hate that - when people attribute behaviors to why you're sick! A woman in the office once told me that my husband was in the hospital because I talk too much and am Hindu. I...
Thank you all so much for caring, especially on a completely crohns unrelated post. It means a great deal to me to have your friendship. Thank you so much! My cat has recovered somewhat on the...
Thanks for commiserating with me. NCOT, he says he still has no digestive issues, only really bad bone pain in his back. I will be seeing him next weekend. My dad thankfully had a hypertensive...
Today has been a very upsetting day. My best friend of 35 years was diagnosed today with colon cancer that has metastasized to also affect his bones. He started this investigation because his back...
Hi. I'm sorry you are soo ill. My husband also had a very lousy time with cdiff and crohns at the same time. He had a recurrence of cdiff 4 times before over the course of the year. He's now been...
I see that you are on entocort and pentasa. I suggest moving on to something like remicade or humira, because obviously just the entocort and pentasa are not able to control all the crohn's symptoms....
Treat it just like you would a flare up. Perhaps it is time to consider a biological like remicade....
My husband had a bad bout with what the docs termed either reactive arthritis or crohns related arthritis. He had SI joint inflammation, neck inflammation and tremendously swollen knees. He had to...
If you are getting immunizations before travel, make sure they are non-live vaccines. On remicade, you must not take live vaccines. My husband (who has crohn's) and I just returned from India without...
Very nice to hear that your son is doing well. My hubby has now been on remicade for slightly over 6 years; the past 4 on double dose. He like your son owes his good health to remicade. I wish your...
I've had hip bursitis in the past; very painful. For me, since I was moving so very poorly, they decided to aspirate the bursa and give me a cortisone shot to bring down inflammation. Also took...
Hope she's better now. ((Hugs))....
I have a bad cold right now - and I'm tired and cranky and a misery to be around. With chronic health issues like thyroid, chrons, anemia, it is like that every single never ending day - and I...
My husband had pretty bad night sweats when he was on pred....
I hope you poop soon gumby and get out of the hospital soon. I've been trying to lose weight this past month, and I cut out a lot of carbs and sugars and fats, started counting calories and started...
Sounds very positive. I hope this surgery will give you a very long remission. PV...
Hope your surgery went well. Wish you an easy, quick and uneventful recovery....