I take 40mg fortnightly but when I had a flare (small) the gastro nurse put me on 40mg every week for 12 weeks which did the trick. Humira has been a God send for me though,it is the only drug that...
I have been through quite a list of medications now for the crohns but have been on Humira for almost 2 years now and to be honest it is the only one that has stopped me flaring every few months.I...
your definitely not a lone with exhaustion! I am currently on Humira (which has helped with the crohns tremendously) A few months a go I started battling with nausea and vomitting and during these...
I have been feeling nauseated and vomiting with no energy and I went to the doctors. He has prescribed me anti nausea tablets (cyclizine and promethizine) but both have povidone as one of the...
I've been on humira for nearly two years now and can honestly say I must be one of the lucky ones.I usually feel tired after I've done my injection on that day but don't feel tired all the...
I was going to ask the same thing...leg or abdomen. I've been on humira for nearly 3 years now and never had any pain as much.Maybe a little stinginess now and again but nothing major to make me stop...
Thats partly the reason why they did it for me too...and the nausea and weight loss! AND when you do the prepping your not allowed to take any form of codeine or immodiums.Which I take daily to slow...
Did you have to have it all over again Ides,or did they give it up as lost cause? And I suppose the lady that took less than 2 hours didn't get very many pictures! :( Maybe if they did it again on me...
I had the Pillcam today after doing all the prepping yesterday which was the worst part about it. I swallowed the capsule at 9:50am and was told to remove the belt at about 10pm or when I go to bed...
Hi Erica.Not sure where you were but I had to do the prepping for the pill cam yesterday and the same concoctions are used for that as a colonoscopy.When I had the colonoscopy I was given Kleen Prep...
Haven't been on here for a while now. I am on Humira and have been doing quite well up until lately. I had a gastroscopy today and they found inflammation and now have to have a PillCam on monday. I...
Thanks for the link PB, I have looked at quite a few pictures and mine is not as severe as those ones , mine is not at all red and angry looking but can definitely see a resemblance in where the...
I have also been loose most of the time since surgery, I take loperamides (immodiums) in quantity on very bad days and have 3 monthly B12 injections as apparently helps with the bile salts. Some days...
Hi I haven't posted in a long time now, I have been on Humira for the past 18 months since the steroids were not having much effect and as soon as I tapered down, up would go the flare again, doing a...
THANK YOU so much to the ones who mentioned Flylady, it's brilliant!!!! I now don't think about cleaning or shining the sink so much! Still tempted some times but I try and stick with the routine of...
Thank you for both your replies, both very helpful. Kitt, they would not have a cleaning service in and she does not like strangers going into the house , I think she is actually ashamed of how it...
Hi I usually post on the Crohns Disease forum as I have Crohn's, but after quite a few years of being called a 'clean freak' by my kids and friends, am not sure if I have OCD too. I need to vent out...
Yes, I have had chicken pox twice and have had shingles as an adult too, although they do say you only get it once! Thats why I am concerned because I am obviously not immune to it....
Hi I have now been on Humira since the beginning of November and have been doing really well on it. Just one query though, my grandson has just recently got chicken pox, his spots only came out...
I also have a hernia from my first surgery, that appeared not long afterwards. I had my resection 4 yrs ago and every time i have spoken to the specialist or doctors they said, as long as its not...
I don think I will ever go meds free, I dont think it is a good idea for any crohnie to be totally off the meds, as previous replies it usually ends up worse and drastic measures then..... I know...
I usually see a few specialists, some are the registrars from the gastroenterologists department. Apparently they all have a meeting together once a week to discuss all the cases seen. I know it can...
Hope the rest does you good this week, and relax a little!...
Thanks for the replies, I have made an appointment for tomorrow afternoon at the doctors. If it is just side effects then maybe he can give me some thing to relieve the itching and help me sleep too,...
Thanks for the reply, it does say on the side effects swelling, but mostly points out to the injection site which mine isn't. This is driving me mad, I feel tired and cant sleep, then when I do dose...
I started Humira on tuesday this week and gradually I have been itching more than usual,also insomnia like you cant believe!I am battling to sleep even worse than when I was on the pred...and also I...
This is how I first started with crohns, I used to have the diarrhoea mostly in the morning and vomitting, with not much pain, then after a few months it gradually increased and the stomach pains...
Ok tx, was just a bit wary! but I do need to get this flare under control, it has lasted far too long. Think I done about 2-3 months work this year with all the time I have had to take off work due...
Hi I have had recent blood tests back and my CRP has now gone to 40 and ESR to 38 which is the highest they have both ever been even before I had my resection 4 yrs ago! I had a call from the docs...
I am not currently on modulen but I was on it for 4 weeks before my resection. Whilst I was taking the modulen I was allowed to have clear boiled sweets, which I think actually helped me to get back...
Crohnielass Hi Bev Just wanted to know how you got on with the Humira that you were due to start n wednesday? I have done all the blood tests and everything now, just waiting for my appointment with...
I had a resection 4 yrs ago and at the time I was also warned that it would be either a resection or bag. But thankfully it was just the resection. I didnt have any problems with infections at all,...
I think it is hereditary. Although not confirmed, my dad has got bowel issues though he wont always admit it, and also my Uncle has been diagnosed with IBS but has had quite a lot of bleeding...
I was told for 2 yrs before being diagnosed with crohns that i had IBS. Until the month i ended up in the emergency room 3 times and each time admitted into hospital for a week at atime, when they...
Good Luck! There is no easy way of taking it, You can not flavor it in anyway. I got away with drinking just 1 and a half of the cups (the cups are the disposable ones you usually find with water...
I'm the same as sweetnakira, I never know when the big D is going to hit so have to take each day as it comes and it is so hard to plan anything.Even work is worrying as I never know whats going to...
I am in the UK , My chemist couldnt get Questran Light either but did manage to get a substitute, the box just says cholestramine powder. I think that the questran has been discontinued for some...
Bev, I am not sure excatly when I am starting on it yet, I have the x-rays and blood tests on thursday, then i presume wont be long after that , that they start me on it, the gastro nurse specialist...
I know that it is not a cheap drug and I know a guy here with crohns that went on to an iv medication, but cant remember if that was infliximab, He did have to pay some for that, worked out to about...
I am going to be starting on Humira and wondered if any one in the Uk is on it. I see that alot of Americans have to pay for it. Anybody know if it is chargeable on the NHS or not?...
when my bloods were done last month my B12 level was on 458, and I have 3 monthly injections of B12 and still take supplements every day as well. I would get it checked out in more detail, as ppl...
I have similar queiries qith CRP levels...... mine have been raising since my resection in 2006 and not gone down at all. MY CRP level atm is sitting between 19 and 33 for the past 2 weeks. I have...
It is a hard situation to be in with crohns. I seem to be at home more than I am at work recently due to flaring since January but if you feel you can not cope with working and it's going to make you...
good luck in getting a new job! I am too scared to look for a new job atm as I have taken quite a bit of time off this year due to flare up after flare up, which is not settling down! HR people are...
I know how you feel, I struggle sometimes, and it is hard to entertain when your in pain. I have good family and a good partner that generally take over and let me rest when I need to. Even if I dont...
I had the same fears but am sure your partner will be understanding, explain to him that it is some times painful and also with being on steroids that also suppresses your sex drive as well. Your not...
I think we all have the same worries and I know I prepare myself before hand with the anti d's etc. My flights are usually long haul and 11 hours at a time, but nowadays I never go direct so I have a...
I am still flaring after being on the steroids now for nearly 3 weeks, my dose has dropped now to 15mg a day, and I just recently had my B12 injection, which I went and had my annual blood tests done...
If I know we are going to have sex sometimes I take pain tablets first, it does help some times....
I did the moviprep about amonth ago too and it isn't nice how ever you take it.I found it just about bearable with flavoured water and add a small amount of cordial.I took slightly longer than it...