Had a couple of surgeries 7-8 years ago for Crohn's and for 6 years I was doing really well, in remission. Last summer had a bad flare, GI bleed (black stool and needed 2 blood transfusions), pain...
I had a bad flare last summer and was told I should try Remicade. While waiting 3 months to start it, I got better on my own and was feeling pretty good before starting Remicade. Since my third...
I've read drowsiness can happen, not insomnia. What other meds are you taking if any?...
Since May 27 been suffering from a bad ulcer at a gastrojejunostomy site. June 24 I needed a blood transfusion as I had lost a lot of blood over that time. June 30 I had an endoscopy which confirmed...
Hi all I've had Crohn's disease for almost 30 years. 6 years ago I had surgery where part of my small bowel was joined to my stomach to bypass a bad stricture in my duodenum. The past few weeks I've...
Hi all I suspect I have LPR. I saw my family doc back in June for phlegm in my throat that interfered with talking. He said it was likely LPR. I am not experiencing the heartburn that comes with...
You may be thinking of the Roux en Y gastric bypass. I read this is not recommended for CD patients. I did in fact have the Roux en Y bypass done 3 weeks ago but didn't bypass the stomach, only the...
I was on TPN and Lipids for 2 weeks prior surgery. I wasn't eating much but I gained 4-5lbs prior surgery. If I recall, I was getting 45ml/hr of the vits/minerals and 12ml/hr of lipids. I also felt...
Hello all I posted this on another forum but wanted to here as well. I'm 2 weeks in hospital now due to strictures in my duodenum due to recent Crohns activity which has left narrowings down my...
It took me almost 2 weeks before I moved my stool after surgery, but I didn't start eating until a week after surgery. What was the cause of your narrowings? inflammation or scarring?...
I drink ScandiShakes. 600 calories in a shake with 2% milk. Tastes great too! recommended by my dietitian. Breakfast Anytime shakes are good as well....
No infections and I've had the port for 1.5 years. Low chance of infection with the Power Port because its under the skin....
If you are going to need regular IV access, I recommend a port-a-cath. I have a Power Port (needed for chemo last year but not yet removed) and its really coming in handy for a bad flare I;m having....
Ask them for a picture of them with their product while holding a fish on their head to prove they are who they say they are. Then post the picture to the forum hehe...
I have strictures now likely from inflammation. I have no pain. At most I can feel the expanding/contracting/distending of my bowels as food is trying to pass. It's that bad I am likely going in for...
I am actually taking a dissolvable Entocort pill used for Entocort enemas to treat Crohn's in my duodenum. I put the pill in a glass of water, it dissolves and I drink it before my first meal to give...
Thanks for the reply. I hope you get over it fully. Sounds like a rough road you were on. I've had a resection (open surgery) before but not for a Crohn's problem. Did you have a fully open surgery...
Just wondering if anyone could share their experiences of their symptoms pre-surgery and how they were post-surgery. I am likely going in for surgery, a strictureplasty on one or more strictures due...
I have a stricture (or more, will find out later this week). I know there is one stricture in my duodenum. Food is having a hard time getting out of my stomach. My stomach contracts to push food...
I wish I had my resection in the Fall of 08 sooner. I would have felt better and could have avoided cancer. I needed one ASAP to remove a small bowel tumor located in an area of bowel that has...
I got some more information now for the group. The kit (I got last night) comes with 7 pills (the Entocort), 7 bottles of deliverable liquid, and gloves. All I have to do is get 100ml of water (or...
Yes, that is what my GI recommended based on a suggestion from a top GI in Canada. Sounds funny but has potential to help the duodenum. Has anyone tried this?...
Good to hear you are winning the battle too. I was lucky as well, it could have been much worse and I don't understand how it wasn't!...
What cancer did you have if you don't mind me asking....
I was on chemo from Dec 08 to May 09. It was brutal on my bowels. It was FOLFOX, used for colon cancer. I had 11 treatments. I had small bowel cancer likely caused by 20+ years of chronic...
Has anyone with Crohn's been on chemo? Did chemo affect the Crohn's in anyway? Given your immune system is pretty much shot when on chemo, can one still have a flareup while on chemo?...
I've tried Entocort twice. I had mod-severe CD at the time, and still do. I didn't get much from Entocort and didn't really feel like I was on it. As far as I know, its for mild-moderate Crohn's. But...
My GI is definitely not a fan of me taking Remicade. She said otherwise I'd be a perfect candidate for it. So I am starting Imuran. I mentioned to her about LDN, she is going to check it out. She...
Just an FYI, this fistula is connecting two loops of bowel, it is not an abscess that is draining....
Thanks all for the replies, especially PV. A very informative post, many thanks....
Its been a rough few weeks, and rough enough the past week or so where I've been off work. I went to ER last week because I was feeling so crappy and they set me up for an urgent scope that I had...
It's likely food moving through strictures in your bowel caused by inflammation or scarring from Crohn's. As food builds up pressure at this points, and gets enough pressure to push through, you get...
Was anyone officially diagnosed with intestinal yeast? How were you tested and diagnosed? and what symptoms exactly did you have? I am getting the scope done Monday as I've been having some serious...
I am having thrush and candida problems too but it was a result of chemo. You may find this post interesting http://ldn.proboards.com/index.cgi?action=gotopost&board=forum&thread=1058&post=6476 Just...
I strongly suspect a candida infection (and SIBO) in my bowels that may be aggravating my Crohn's. To help battle candida, I have to greatly reduce carbs and sugars. The shakes I drink now to try and...
Well that sucks then :cry:...
I can't find a DIN for it on Health Canada's website. If anyone has a DIN for this, can they post it up? Thanks!...
Thanks for the replies all....
I called 2 drug stores and they never heard of it. Is this available in Canada? I am sure my GI mentioned this drug as an option on my last visit. Thanks...
Yes, the NG tube for me was to allow my bowel to rest. It needs a few days to heal properly....
I had the NG tube and it was the worse part of the whole process. I eventually disconnected myself from it a week after surgery to see if the bile would make my stomach upset (my bowel was healed...
If you're asking what cancer I had, it was adenocarcinoma of the small bowel. I don't think I have active cancer going on now. My last CT scan late December showed all clear....
Hey Miro....I asked my GI about surgery in the past and was told it would have to be a last resort and most of my bowel would have to be removed. Well, the latter was proven false because I only lost...
I had no choice back in Sept 2008 as I had a tumor in my small bowel. They removed 2ft encompassing the tumor and another 2ft that was bad from Crohn's. After surgery I had not felt as good as I had...
Occasionally if I burp, the burp comes up as fizzy or 'carbonated' as if I gulped back on a soda but I actually didn't. Can anyone relate or care to guess what the heck that is?? :rolleyes:...
Most gravy doesn't agree with me AT ALL. My wife makes a gravy I can have somewhat that doesn't bother me...a Brad-friendly gravy haha...
Asacol is another possibility too I guess. I was on that many years ago, like 15+, and was switched to Pentasa. Asacol is an anti-inflammatory. 6MP is similar to Imuran as far as I know. From...
I take Pantoloc for heartburn and Pentasa already. Have been taking both for years. Pentasa will do little for Crohn's in the duodenum. I am also taking Glutamine and acidophilious. And Diflucan for...
Hi all I am caught between a rock and a hard place. Since 2002 to fall 2008, I was on Imuran to help control my Crohn's. I may have had a flareup every 1-2 years that 30-35mg of Prednisone over a 6-7...
Can anyone confirm this? Can a candida yeast infection CAUSE an overgrowth of bacteria in your bowels?? and stomach perhaps?? For weeks I've suspected I've had yeast and bacteria problems but...