Yes I get that- plus worsening eyesight- I even went completely blind for around 45 seconds or so (Was lighting a cigarette at the time, and everything went black and i couldn't even see the flame)-...
Hello Owwies- Yes- I have been tested for all those things you mentioned- nothing is ever amiss- bloodworks is all normal, hormones all normal, no arthritis, no lupus, tested for neurological...
that's pretty quick development- perhaps you should talk to doc about more frequent colonoscopies just until they determine that you aren't developing those things so quickly again- Thanks, it's...
I've read that having the rectal stump inplace creates more risk for cancer- apparently the digestive tract needs waste material going through it all the time in order to be healthy and not so...
quick update- had an issue with the scar opening up again- small area- but had to have more surgery- doc thought it would be a quick surgery, but turned out longer thna expected- took about 4 1/2 to...
I have recently been taking metamucil- two heaping teaspoons, and it bulks up the stool quite a bit- I always take 2 right before bed- and it really cuts down o nthe liquid- Also- have you tried...
10 days does seem like a long time to not have movement- with me, it was always around 4-5 days- but once, I had I guess soem intesting twisting and it owuldn't pass anything- horrible pain- passing...
Here in the states- Docs will store up a patients own blood I believe upon request- maybe ask about doing the same? I dunno how much more of a risk it would be to immunosupressed folks- but I'm sure...
Been 4 1/2 weeks now- things are quite a bit better- but still can't sit upright for long periods unless it's on cushions like a couch- I guess that is because of the muscle they used to fill the...
Day 19 Still not able to sit for long without pain causing me to shift- but I'm gaining every day now- however, it still feels like I'm sitting on a tennis ball- and the muscles they tucked into the...
Day 11: Sitting is hard- especially in computer chair and harder chairs- thigns get achy pretty quick Even nearly laying in a recliner is getting painful- after awhile that is- Hopefully things will...
Update Day 7: Still quite a bit of pain- Docs gave me only 5 days of pain meds (after i was released)- hope the pain subsides some in the next day or so as sometimes it causes nausea and vomiting...
Thanks folks- regarding the surgery- there are several different ways for doing the surgery I guess- some leave the wound open- some close the wound without filling the cavity left by the removal of...
i don't know yet- things are numb down there right now and a bit painful- I did get some issue with holding the urine in (incontinence?)- but that seems to be clearing up. The surgeon told me before...
For those who are facing this fairly common surgery and wondering what it is like- I must start off by saying The buildup to the operation was worse than the operation itself --SO FAR-- I had read...
I know it's an old thread- but the info might help some- I' on 5 Fu they call it for colon cancer- and use a pump 24/7 for the chemo- which supposedly is much easier on intestines because you aren't...
Hello- gotta have the same surgery (for stage 3 T3 cancer) and chemo and radiation myself- going to start the chemo next week and radiation too i guess- for the burning and itching- maybe try some...
I've got a couple of health issues- and have nevr been officially diagnosed with fibro or chronic fatigue or myofacial or anything but docs suggest it 'might be' fibro- Thing is i don't have any...
hey Dan- sorry- didn't get the notification to your post- No, no soap only water- I clean very well around stoma, and wipe with wet toilet paper- trhen dry thoroughly- My skin aroudn stoma is usually...
[[Do any of u have trouble with walking when u over do?]] My cal muscles tighten up after about 100 yeards or so and forearms will tighten up doing simple things like even just typing- this tightness...
to try to explain it to people use the battery analogy- Tell them your day starts out with a battery that is only 1/4 charged- ad when that runso ut, you have little energy for anything- Explain to...
[[Day long Drowsiness - standing, sitting, walking, driving Fatigue Lack of concentration Memory loss A little speech problem (rare) Sleepy during driving]] These coudl also be realted to sleep...
old post i knowe, but it might help soem folks- for loose stool in the case of an iliostomy- I've recently been taking metamucil- it bulks up the stool and makes it almost gelatinous and it slides...
unfortunately it doesn't seem to hold well for me if I only use the tincture with no adhesive combined- (although I am still using it Under my Hollister medical adhesive layer that I spray on over...
thanks folks- sorry for the delay in responding- I've got a Hollister adapt seal (which I'm reluctant to try, but will eventually)- I have tried Hollister adapt paste in the past, but didn't have...
You must use two piece I'm assuming? I use 1 piece- I was using some paste (Adapt I think) but I'd put it on the seal itself- but found it would squish out, and stick to pouch (like the issue I'm...
we generally fluctuate from night to morning- I'll weigh about 7 lbs or so less in morning- also, are you weighing yourself the same (IE with no clothes on?) Clothes can add as much as 10-12 lbs-...
Thanks Bania, I'll give those a try- I just need something that will stick like glue and melt to my skin well enough to prevent leakages- just wish there was a kind of super glue for pouches- nothing...
Yes, I have to cut hole larger in wafer because of size change in ostomoy- if I cut it so it fits snug, then the changing size of stoma pushes the edge of the wafer up and then leaks happen...
up around the stoma- the eakin melts inwards towards the stoma, and when it does it makes contact with the plastic of the pouch and the contents of the pouch pool up behind it (Up near top of pouch),...
I'll give it a try- skin is hair free- good flat skin- no dips or anything-...
ok- when I use eakin seals, they melt inward toward stoma, which isn't the problem- the problem is that as it does so- the eakin sticks to my ostomy pouch plastic- and I have to rip it off the eakin...
dang didn't see that you had takedown surgery- ok- nm- my last post doesn't apply then lol...
Hey Swollen- I'm in the same boat- can't get a pouch to last more than 24 hours, and when I change, it's almost leaking right out to edges- I empty my pouch with water, and the pouch will be fine for...
Dan I just got mine Geritrex BCT- it's waterproof- but it's not very sticky at all- just tried putting some on and using the pouch seal that I cut off this morning (I use cut to fit pouches) and...
try Hollister medical adhesive without any Eakins or extra seals- I've used it for years and have had good success with it- until recently- (I'm having leak issues now too- due to gaining weight-...
one piece as it cuts down on the possible added failure points (where something could go wrong and contents leak out) and I was always paranoid of odor seeping out from the snap ring on 2 piece- them...
[[Post Exersional Malaise will only get worse if you don't watch it.]] Yeah, I know- been dealing with this for 18 years now- I know my limits- but I do have to try to push some to try to get the...
Thanks Dan- My problem though is that I have to be rough by pinching and pushing down on it kinda roughly to get it to shrink enough so the pouch can slip down over it- This means the stoma gets...
Thanks JK- definitely exercise intolerance - I have been forcing myself to walk a mile every evening due to weight gain causing problems with my ileostomy (I'm not overweight- 6'3" 200 lbs, but the...
OK all you Compound Benzoine Tincture users- I've been using nothing but Hollister medial adhesive for yearsm and never had any issues with pouches leaking- but now all of a sudden the pouches do not...
hey folks, sorry for not responding for so long- I didn't have it set to tell me if someone answered- DJ Yes, all my tests come out normal JaSanne- sorry to hear about your pain- The sulfa meds can...
Hey JL- no meds- (Except Prilosec for ulcers)- I also had been tested for sleep apnea, which apparently I have, and the doc told me that the brain activity was commonly seen in someone with fibro-...
I agree answers- I have an ileostomy, and for some reason the odor can get quite bad- I had heard about the devrom tabs- I think they work much like peptol- binding with the gas that causes the odor...
I've tried that before- To me it just seems like the smell of altoids mixes with the smell of poo- I've been taking peptol fairly regularly and it really does a great job neutralizing the odor- I but...
I hadn't heard of that- I'll check it out- thanks...
Just a real quick post for htose suffering from odor issues Three things have greatly improved my situation- 1: Use a squirt (about a teaspoon worth) of hydrogen peroxide in pouch IF there's bad...
Aint this the life? Having to sit around worrying and wondering whether or not our pouches are going to leak? I went for years wearing Hollister Karaya pouches and could waer them 3 days with no...
Does the dermacol need an ostomy that doesn't change size? Mine swells and shrinks a lot- and do you have ileostomy or ostomy? I wanted to try the dermacol, but read that people had problems with it,...
ok, old thread, and I haven't read through it all yet- but here's some facts about lyme and manganese- Bacteria scour the body looking for trace minerals because they need these trace minerals to...