I have Crohn's and my daughter (2 yrs. old) has a suspected fever syndrome of some sort (at the moment, the doctors are thinking PFAPA, but we have not ruled everything else out yet). I am curious...
I had a beautiful Remicade baby 2 and a half years ago. During my pregnancy I was on Remicade, Imuran (for part of it), and Zoloft. My doctor upped my Remicade (usually 300mg) to account for my...
Hi Linda, I know everyone's experience with Remicade is a bit different, but I thought I'd share my story. I received my first Remicade infusion about a month after being diagnosed with Crohn's...
I began to get eczema on my face after starting Remicade a few years ago. It's seemed to wax and wane, and right now it's doing pretty well. I've always wondered if the Remicade is what caused it,...
@73monte--I'm currently on Remicade 8 mg/kg and Imuran 100mg. I've had 3 GIs in the past three years (one of them one of the most highly recognized in the country) and they all have been sort of...
Thanks everyone for your replies! @pb4--I have never thought about someone having both diseases! Ick! You mentioned UC/MC together--would you consider them the same disease? @73monte and Joni222--I'm...
I've been lurking on here for too long! I was diagnosed with Crohn's Disease in August of '09, and thankfully, Remicade threw me into remission and I've essentially been symptom-free since then. I...
I agree with IAmtheWalrus and others who have told you to relax (although I know that can be hard). The doctor on that video link is MY doctor, and he is AMAZING. He one of the best IBD GI's in the...
I started Remicade just over a year ago, and I was in remission within a week! It has been an amazing drug for me. I know the scared feeing; my doctor wanted me on it within two weeks of my...
I love Dr. Rubin. He is so knowledgeable and sooooo kind. He'll take time with you and explain everything to you and answer all your questions. Also, it's easy to ask his nurse questions over the...
I've only ever been on zoloft and xanax, but they both helped me alot! Perhaps you might want to see a psychiatrist and/or counselor to help you work through some of your anxiety. It can be helpful...
The first thing I noticed was the "irritable bowel" thing, too! I couldn't believe that the WSJ would print something like that. I'm glad they're at least trying to write about it, though. My brother...
I'm 21 weeks and we just found out we're having a girl! I got my Remicade yesterday and the nurse was super reluctant to give it to me b/c of the pregnancy (and I had a cold). I kept telling her that...
Mine costs (drumroll please)..... $14,000!!!! Ick, ick, and ick. This includes the entire administration and is what is billed to insurance. Insurance gets a discount and ends up paying about $7000....
Thanks for the link debilitated! I found it fascinating as my brother has type 1 diabetes and I have Crohn's...makes you wonder what environmental factors influenced our autoimmune issues....
I'm curious about the barium enema. I've only ever had a tap water enema to help clean me out when I couldn't finish my colonoscopy prep. That in and of itself is a horrible memory. For the barium...
I'm so happy to hear happy prednisone stories from you all! I keep wondering why my doctor is concerned about prednisone if he wasn't at all concerned about Remicade OR azathioprine (which I was on...
Hi Angie, I'm on Remicade every eight weeks and I'm nearly 15 weeks pregnant. I'm having a mild flare at the moment and doc want me to wait for pred. till about 21 weeks. My doc. mentioned cleft...
Hi Octobergirl, My story is really similar to yours. I was diagnosed in August of this year and prednisone did very little for me. I was hospitalized in September b/c my ins. refused to approve the...
I've been stalking this forum for the past three months ever since I was diagnosed with Crohns. I figured it was time I stopped stalking and instead actually tried to participate here! First of all,...