Sadly everyone is different when it comes to Crohn's Disease and to Medication and Of course Surgerys as well. My first Small bowel surgrey was 7 yrs ago and it was too laparoscopically as well,...
Decisons like this are a hard one to make and i can completely understand because i was in the same predicament. I have taken Remicade (which cased Anaphylaxis), Humira (lupus-like symptoms),Cimzia -...
i was on vedolizumab in its lll phase in clinical trial and was in remission for 2 yrs w/ no other maintenance medication. i had no side effects other then being drowsy because i was given Benedryl...
No i had no idea what they were going to do. When he seen me he looked over my medical records which I copied for him but i also did a summary of all the medications i was on, what issues i have...
I went to Cleveland Clinic back in Dec 2012 to see Bret Lashner for a 2nd opinion and I was amazed at the what they did in just day one. i did stay overnight because they wanted a colonoscopy done...
Well I'm actually going back on to it as all i needed was a dosage increase. So I have waited 2 yrs for this to be FDA approved.YAY... But my local hospital doesn't have this drug yet on there...
I would say I started feeling better wihin 3 weeks. I went in initially it was 0,2,4,8 weeks for injestions. I know everyone is different and responds different. I was nervous to take a med that...
I was one of the guinea pigs for Vedolizumab when it was in the third phase of clinical trials. I have had Crohns for 16 yrs and w/ all the meds out there and including Remicade, Humira,Cimzia. I...
I Was wondering if anyone Taking Methotrexate Injection had any throat/vocal issues? Since I took it the past 2 weeks my voice is fading like I have laryngitis w/out any fever or swelling... frankly...
I have a recto-vaginal fistula and for quite some time anytime I had watery stool it would pass through and burn the hell out of me. I could be shopping and if I have to use the loo I can't wait or...
1st bowel resection 11/2008-remission lasted 9 months before flaring 2nd bowel resection 6/2012- never got any remission active crohns in July 2012... Luckily we are all different......
This is so sad that NOT one person has been on this drug called {thinguanine} or any advise for someone who has no options left! Their is no one who has been in my shoes? I find that hard to believe!...
I'm in a bad place right now! I just had my second resection surgery June 11 and I have been on MANY drugs.. I even joined a clinical trial.. So I'm not against medication. But after this surgery my...
I was on this trial for 2 yrs and honestly I have NEVER been in remission w/ any other medication this was my savior for only 2 yrs because I started stricture. So unfortunately my time with this...
I have had EN When I was first dx'ed... Those buggers are NASTY! I was put on Prednisone @ that time. But a few yrs later they got pretty bad to the point they started ulcerating, I couldn't get rid...
Well it depends what u r seeking, what to expect right before/after surgery or for the rest of ur life? I had a resection back in 2008 removed 12" of ileum. After surgery I would say with my pain...
Hello....Other then prednisone what other meds are you taking? Have u tried Remicade, humira and/or Cimzia? This disease is exhausting, frightning and plain ole' Pain the Butt....At this point most...
Well I survived...HehE...They did not have a separate room for doing the enemas but I managed and also I too think they provide no sedation but I did recieve Sedation...I overheard the hurse asking...
Thanks I have to be there very early tomorrow so I'll deal with it. But I took some lax'es just in case. never can tell anymore.... mkl11, I have been trying to figure that one out myself and allot...
Hello, I can also relate as well, I have had this for over 10 yrs but in the beginning I had a young child and most of my time was spent in "my throne" as I call it. HehE..My son never said anything...
I myself was taking Pred for over a year before I got off and I had a hardtime getting off of it...Had to start taking Remicade just to get off the drug..But I BELIEVE that because of the long term...
Well Before I had my resection surgery I got the Vomiting, cramps once a month...It was like clockwork...Like I was getting my period, I would get the cramps and vomiting for HOURS! But then it would...
Wow...I wasn't told to go on a liquid diet for the day! I was told it was nothing like a colonoscopy so I didn't need to...Holy smokes now I'm upset. I may take a few laxetives tonight because I...
Ok the problem is, is that I have to give myself 2 fleet enemas at the endo center.....How do I do this? I mean I can't really lay down in a public bathroom floor...So I'm really upset and don't know...
Well I've had Small Bowel Resection over a year ago and still I have Diarrhea or very soft stool..I was told it was normal and that there is meds to help w/ it but I have only had about 3-4 bathroom...
Oh I've had this a few million times! HEHeh...I HATE IT...so does everyone else but I only had to drink 2 of the bottles....PLus holding ur nose does nothing cause the texture right away makes ya gag...
Wow! I didn't know that Crohn's Patients were prone to be/have hypercoagulation...I've never had a clot but, years ago had genetic testing done and I have The Factor Five gene mutation which is a...
Zoso73 Hello....I too have thyroid issues but I have Hypothyroidism...Underactive...I was DX'ed after my long take of Prednisone but I take Levoxyl everyday. I used to see a Endo but since my levels...
I live in NE PA But don't see doctors around here I go into NJ for me it's a better option. Where exactly are u? I'm in the Bushkill area?...
I may ask about Cimzia...I know I can't have remicade Bad anaphylactic reaction and Humira just gave me drug induced lupus but I need to find an alternative to all that besides a Clinical trail ...I...
WOW! Thank you soooo...Much! It's feels good to know that theirs so much support...I know that w/ my son it's best to do what I can w/ him..And I do..I just shouldn't sweat the small stuff!...
Hello....I'm writing because I'm curious and because I have a family member who has had One Grand-Mal Seizure 30 yrs ago and was put on Phenobarbital (Also he has and AVM) Anyway he has been in the...
Thank you so much for the support! Is it that when u get Crohn's other things follow Or it's by pure coincidence that everything follows along! Also PIX- U have other auto immune diseases does that...
Well went for my Colonoscopy/Endoscopy This morning and of course I wasn't prepared for the news I got. Crohn's has peered it's ugly little head on the suture site..I'm so Upset..I really am..Had...
Oh...Thank you So much! I was dreading the other bottle...I don't even want to think about it cause it's making me sick! Why can't any of this be easy! UGH.........
If it comes out and feels basically like pee then it's GREAT prep? Hey I can live w/ that! But would I need to take the 2nd 10oz Bottle at 4:30am ? if it's what it is suppose to be? I just don't know...
Hello Everyone..I know this is a Topic that is all over the place but actually I need to ask...I'm going for a Colonoscopy/Endoscopy tomorrow and The thing is the Prep Is SOOO..........Bad! I had to...
Well I too have a Fatty Liver, Came up to reading from a CAT scan but, Otherwise don't have any problems from it...NOT that I know of anyway! Sounds like Gallbladder to me but I could be wrong....I...
Welcome Pimfram, I to was diagnosed at a young age... when I should be enjoying my life, I was gripping this awful disease. In the beginning I was resentful of others and cried allot..."Why Me" was...
When I had my first shots I went to the office to get it done just in case I had a reaction...If it worries u , call the office to see if they will administer the shots for u the first time... Short...
Gail, I wake up every morning feeling just the same way....I wonder how I push myself or even con myself into thinking today will be a better day...I sometimes just sit back and cry cause I know It...
I had Small Bowel laproscopic Resection Surgery Nov 08...Went in Monday and was out of the hospital Friday...Eating solids...Recovery time for laproscopic is allot easier then open surgery. The drs...
I also have the same issue w/ conversations over and over in my head, Things I said, things I wanted to say, I play out scenarios over and over.....I once asked a Dr and he said it was a form of...
RA&CD132010: Yes I took my regular medication Imuran and Asacol as well....Resection surgery did me wonders..For now! U can't have a resection done?? I hope the Humira works out for u I hear GREAT...
RA&CD132010: I actually tried Humira before my resection was on it a few months but did nothing for my crohn's but in all honesty I needed the surgery, the Humira did give me Drug induced lupus Which...
Well maybe I found someone who feels the same way I do! I was suppose to find a Psych dr to talk about my problem which I believe is Health anxiety. But it went away and I was feeling some what back...
Well ask the questions about the disease that you need to know, If your not having any problems right now after taking ur meds then your pretty good, as for other tests being done if your disease...
Personally I will ONLY take Entocort. I don't touch Prednisone at all.....If ur looking for the lesser go w/ the Entocort....Plus too Denial is normal...Went through it myself til one day I said this...
Well I was taking Azathioprine for years god...Can't even remember when I first went on it that's how long...I had to have blood work done every 3 months and I really had no symptoms just maybe very...
Funny you mention this but, I totally refuse it at all costs...The doctors get aggravated w/ me and tell me I have to take it. (I live 60 miles from where my G.I. doctor is located, So I usually go...