I have Crohns. My stepbrother has ulcerative colitis. I have been thru it all med wise and diagnostic tests, where I have decided that enough is enough. I feel better than ever, even before Crohns,...
I was on cimzia for a year and a half with no colds, flu, sinus infections, etc., but when I hit the one year mark...wow! Respiratory infections (sinus, ears, bronchitis) sores that would not heal,...
I was on Remicade and it worked initially but by the 4th infusion it didn't work at all and my blood pressure soared during the infusions and it affected my vision. I've tried everything and Cimzia...
I've been on cimzia for a year and a half and it has its pros and cons. I had previously been on Remicade, anyway, 4 months on cimzia I developed an abscess, took Leviquin and Cipro ..yuk, then felt...
I'm on cimzia now for 16 mos and my hair is fried. I too thought it was from lack of absorption but now reading these posts, I'm blaming the Cimzia. I've tried all the supplements too in every form...
I feel you...I know there is no way to justify smoking, but I'm like you. All the CRAP I deal with...no pun intended...I enjoy them. Stupid, I know, but Crohn's is a full time job and smoking gives...
wow, I had never heard that antihistamines could make it worse, no wonder. I'm O.D.ing on them. I'll try Musinex today. that's for the info....
I've had sinusitis since the beginning of allergy season this year. Started in April, as always and with no signs of going away I saw the dr. and was put on a Z-pack. I'm on Xyzal year round. It got...
I was referred to an allergist by my GP since 4 rounds of antibiotics have failed to completely clear up a sinus infection/bronchitis I've had since April. The allergist is making me stop all...
I know what you mean about the financial stress. This is one expensive disease. My premiums are $16,000/year with $4500 ded. These premiums go up every year and this is just for me and our 2 kids. I...
Am I the only one on Cimzia with every side effect listed? swelling of lower legs, muscle pain in legs...and I mean PAINFUL, random sharp stabbing pain in a toe or somewhere on my feet, numbness in...
not to beat a dead horse, but the vaccination theory...I'm saying that when I was given the MMR I couldn't have been under more stress at the time and I believe that shot was the one thing that...
Randy, I had not ONE symptom prior to the vaccination. No one in my family has any auto immune disease either. I got the MMR vaccination and 11 days later blood was pouring out of me, no pain at all,...
I still believe there is a connection to vaccinations. Maybe some of us are just predisposed to autoimmune diseases and a vaccine is the one thing that can trigger it. Why are so many children being...
I also had that problem for the last year and two drs agreed that I needed to STOP my probiotics...I was a huge advocate for years on them. Their thinking was that they were colonizing in my small...
I'm embarrassed to admit it but, Crohn's has given me sort of a weight obsession. I was 148lbs when diagnosed and got down to 97lbs. I looked like, and was, walking death. I've been at 110 for the...
how do you get tested for the yeast thing? I also have that extreme itching down there..it'll drive you crazy. I do have HUGE hemmies (I'm guessing that's what they are)it's SO DISGUSTING that I'm...
I noticed you're on Humira, Ebrukilic. I'm on Cimzia and experienced the same awful pain in my leg muscles. I've read where others on Humira also experienced the same leg pain. I was able to adjust...
Wow. I think you guys have better drs than I have. Everytime I was on Pred. I was prescribed 10mg pills and told to take 4/day, I HATE THEM!! I never was told to taper down to anything less than...
sorry for the previous post. I just saw that I had already posted a reply a while back saying virtually the same thing....
I'm really glad you're feeling better and jealous that you can inject yourself. I'm still a weinie and have my sister do it. I also had shortness of breath after I first started Cimzia. Like you...
Looks like this bill screwed me by reducing the amt we can contribute to health savings accts. I've be able to put 5500.a yr to cover my 4500 deductible with the rest being used for dental or eye...
I have the same side effect from cimzia. It can range from being a nuisance. To unbearable...
I'm squeamish about needles so I have my sister give me the shots...she's a nurse. She thinks it would be really difficult for me to give them to myself since I have no fat on my stomach to squeeze ....
I noticed alot of you use heating pads. I did as well last year while in horrible abdominal pain and then this discoloration appeared - really strange looking. I saw a dermatologist who examined it...
I had quit smoking for two years and then diagnosed with crohn's at the age of 44. I started back about 5-6 mos after diagnosis. For me it just takes too much energy to quit and these past 7 yrs with...
I've been on cimzia since 5/09. I saw improvement but not great. Had an abcess 9/09, treated with antibiotics. since 10/09 feeling wonderful until my first gallbladder attack 11/09 (I thought I had...
I've been drinking a Twinlabs Energy Drink everyday for years while battling Crohns and never had this cracked/peeling corners of my mouth before. Now finally I've been in remission since Oct and I...
I tried tea tree oil and it immediately got worse...red, peeling. I tried it again with Vit E and the same thing happend. So far I'm seeing improvement by drinks with tons of Vit Bs and applying zinc...
since I began supplementing the B's. (multi vitamin)..I can't sleep, I'm never tired. I go all day, sleep 3hrs, and go all day again. I want to be tired sometime!! I can't imagine what I'd be like...
Well, I'm impressed with your knowledge. Thank you for taking the time to educate me....
The zinc oxide, which is diaper rash medicine, is helping, but it just won't completely go away. I can't understand the B12 deficiency theory from by GP when bloodwork shows it to be normal...
Bella3250...the iron deficiency is something we never addressed. My hemoglogin was 9.7, which GP said was fine, but I thought it should be more in the 12-15 range. I wonder if that has anything to do...
Saw my GP yesterday and she took one look at the corners of my mouth and my tongue and said it's deffinitely B12 deficiency. I said blood work a month ago showed B12 in normal range. She wanted to do...
this makes sense. Thinking back, I had key lime pie...the next day the corners of my mouth were cracked, peeling and bleeding. Put vasaline on it and no desert the following day and today it looks so...
Thanks so much for the advice. It might be candida since I was on xiflanan a couple of months ago. I have an appt in the morning with GP. Thank you...
OMG, you're right medchrt1, apple cider vinegar is acidic. What was I thinking??? Since it was recommended for acid reflux, I assumed it neutralized the acid. All the other benefits associated with...
Anyone have an answer to this. Scar tissue thruout small intestines and colon has inhibited the absorption of vitamins, (I'm taking multi-vitamin plus a folic acid w/DHA and B12 and chromium, I can't...
I was on a 6 strain formula of pure powder form probiotics for years and swore by it. Probably relied too much on it whereby avoiding conventional meds, causing extensive damage. Then I started to...
I started having those accidents a few years ago. I know what you mean about the anxiety. When it's really bad...like 10 accidents a day, it just puts me in such a depressed state I totally isolate...
I tried a homeopathic/chiropractor, well known with his own radio talk show, I drove 4 hrs each way every week to meet with him. He was so encouraging, saying that it would be no problem he could get...
If this is something new, you might wonder about your gallbladder. I had my first gallbladder attack 3 mos ago. the very next day the constipation started. Ultrasound showed the bile to be sludge...
I've been on Cimzia since May '09 and it took until Oct for good results. Problem is the pain in my leg muscles, numbness and tingling in feet and "electrical" like misfiring in feet and hands. My...
I was told that the small intestines reabsorbs bile acids and with Crohns this is hindered, if not impossible, due to scar tissue, surgery. Without being able to recycle the bile acids the bile then...
firecracker1...my 4th month into Cimzia I developed an abscess, but antibiotics took care of it. Probably a month later the Crohns greatly improved until my first gallbladder attack. So, Started...
I had the same problem on remicade and that's the reason I had to stop it. My blood pressure went to 189/115 during my 4th infusion and stayed there for a week. It affected my eyesight. It was...
I'm also struggling with this gallbladder issue. I had my first "attack" in Nov...thought I had perforated...by the time the dr. saw me in ER it had stoppped. ultrasound showed small gravel like...
Has anyone had surgery while on one of the TNF blockers? I had my first gallbladder attack the other night - wow! I have gallstones. I've only been on Cimzia for 5 mos and finally have decent blood...
I'm being tested for rhabdomyelitis. When I told my dr about the muscle pain in my legs and what all I was taking for it he ordered blood tests checking CPK which indicates muscle damage leading to...
I don't have joint pain. I always had that when I was flaring. This is muscle pain and in the feel feet too. My upper body doesn't hurt, just thighs, calves and feet....